Cost of Caring

Cost of Caring

By GiversEducation
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Cost of Caring episodes

  • Better Communication In Caregiving w/ Speech Language Pathologist Adria Thompson (Be Light Care)

    Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to Speech Language Pathologist Adria Thompson of Be Light Care Consulting about communication challenges for individuals with dementia, practical strategies caregivers can use to communicate effectively with their loved one(s) living with dementia, collaborating with your LOs care team, and other speech language services and supports.

    In this episode—

    • Can you tell us about your journey as a speech language pathologist and how you developed a specialization in dementia care?
    • What are some of the misconceptions/myths surrounding dementia care that you often come across, and how can we debunk them?
    • In reality, what common communication challenges do individuals with dementia face, and how can speech language pathologists support them in overcoming these challenges?
    • What practical strategies or techniques can caregivers use to communicate effectively with their loved one(s) living with dementia?
    • Could you share some insights on the importance of non-verbal communication and its role in enhancing communication with individuals living with dementia?
    • In your experience, what are some key components of a successful dementia care program, and how can caregivers incorporate these elements into their daily routines?
    • Speech language pathology services are rumored be costly. Can you recommend any resources or programs to help individuals with limited financial means access speech language pathology services?
    • Are there any specific tools or resources you recommend to family caregivers seeking to improve their communication skills with their care recipient?
    • How can caregivers ensure speech-language pathologists collaborate with other healthcare professionals to provide comprehensive care for individuals with dementia? Could you share some examples or success stories from your work?
    • What advice would you give family caregivers feeling overwhelmed or frustrated in their caregiving journey? How can they prioritize their well-being while caring for their loved ones with dementia?

      • Find Adria online—

      • Website: https://www.belightcare.com/
      • Facebook: https://www.facebook.com/BeLightCare/
      • Youtube: @belightcare
      • Instagram: https://www.instagram.com/belightcare/
      • Tiktok: https://www.tiktok.com/@belightcare
        • 41 min
      • Dementia Education, Policy, and a Positive Approach To Care feat. Teepa Snow

        Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to Dementia Care Specialist Teepa Snow about how dementia education, policy, and her Positive Approach To Care.

        In this episode—

        • Can you tell us about your caregiving experience and how you became passionate about dementia care and supporting individuals with neurocognitive degeneration?
        • You've worked in various care settings and conducted research in the field of dementia care. Based on your experience, what are some common misconceptions or myths about dementia?
        • Tell us about your Positive Approach to Care. How did you develop this approach, and how has it transformed how caregivers provide support?
        • Could you explain the GEMS® States model for brain change and how it helps create a positive dementia care culture?
        • How else can we work towards reducing the stigma associated with dementia and promoting a more inclusive and compassionate approach to care?
        • How can individuals and policymakers address the financial challenges associated with dementia care, such as access to affordable long-term care and financial assistance programs?
        • Technology innovations (like assistive devices, remote monitoring, and virtual support networks) have the potential to revolutionize dementia care. How can we harness this to enhance the quality of life for individuals with dementia and support caregivers?
        • As an OT with extensive clinical experience, what practical strategies or techniques do you recommend for caregivers to maintain their well-being while caring for someone with dementia?
        • Money can be a significant concern for family caregivers, and financial planning is crucial for long-term dementia care. Do you have any advice/resources for caregivers regarding financial management and navigating the complex financial landscape associated with dementia?
        • Dementia care requires collaboration with healthcare professionals and support services. How can caregivers effectively communicate and advocate for their loved one's needs with their care team?
        • As someone involved in national and international projects and collaborations, in your opinion, what are the most pressing issues/challenges facing the caregiving community right now, and how do you envision addressing them?

          • Find Teepa online—

          • Website: https://teepasnow.com/
          • Facebook: https://www.facebook.com/teepasnows.pac
          • Youtube:    / teepasnow  
          • Tiktok: https://www.tiktok.com/@teepasnow
            • 50 min
          • Holding Grief & Joy At The Same Time In Caregiving w/ Erin Antroinen

            Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to Erin Antroinen of The Millennial Caregiver about how caregivers can hold grief and joy at the same time in their caregiving experience.

            In this episode—

            • Can you share the journey that led you to become a caregiver and the challenges you faced?
            • You talk about how millennials will be the primary caregiver demographic in the coming years. Why do you think this shift is happening, and what unique challenges do millennials face as caregivers?
            • How did you navigate the role reversal of becoming your parents' caregiver as a millennial? What were some of the emotional, mental, and physical tolls you experienced during this process?
            • Caregiving often comes with a significant financial burden. How did you manage the financial aspect of caregiving, both in terms of practical money management and the emotional impact it had on you and your family?
            • What about your system for managing finances worked well, and what would've been even better?
            • You talk about automating specific tasks and creating care plans for your mom. Can you elaborate on the importance of streamlining caregiving processes and how it helped you maintain your energy and focus on your loved ones?
            • Many caregivers struggle with decision fatigue and grit fatigue. How did you personally cope with these challenges? Did you find any strategies or techniques that helped you manage the overwhelming responsibilities?
            • As an advocate for millennial caregivers, what kind of support or resources did you find lacking when you were in caregiving? How do you hope to fill that gap for others going through similar experiences?
            • What do you now know that you wish you had known at the beginning of your caregiving journey?

              • Find Erin online—

              • Youtube:    / @themillennialcar...  
              • Instagram: https://www.instagram.com/millennial_...
              • Conscious Caregiving Course: https://docs.google.com/forms/d/e/1FA...
                • 47 min
              • How Expectant Caregivers Can Prepare For Caregiving w/ Danielle Miura

                Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to Danielle Miura about how expectant caregivers can prepare for caregiving.

                Danielle is a a fee-only CERTIFIED FINANCIAL PLANNER™ professional, who weaves together her knowledge, your financial information, and reasonable assumptions so you can make the best decisions for your family. In order to provide the best quality of care to her clients, Danielle is continuous learner. She is currently obtaining her Masters in Advanced Financial Planning Program, Taxation Option at Golden Gate University.
                In this episode—
                ‣ Can you share your caregiving journey and how it influenced your work as a certified financial planner?
                ‣ How have you personally navigated the financial challenges that come up when caring for multiple generations (in your case: your grandma, mom, and daughter)?
                ‣ Some people are more likely to become caregivers in the future, like daughters, LGBTQ+ individuals, only children, and minorities. What should these expectant caregivers consider now about their possible future responsibilities?
                ‣ Expectant caregivers often face additional challenges and potential disparities in accessing financial resources. What steps can these people take to start planning ahead and building a solid financial foundation?
                ‣ What role does financial document review play in helping family caregivers (or expectant caregivers) ensure their financial affairs are in order, and what key documents should they prioritize?
                ‣ Retirement and long-term care planning can be challenging for family caregivers who often prioritize their loved ones' needs over their own. What advice do you have for caregivers in planning for their retirement?
                ‣ ... and what strategies or options should they consider when planning for long-term care?
                ‣ What do you now know that you wish you had known at the beginning of your caregiving journey?
                Find Danielle online—
                ‣ Website: https://spark-fin.com/
                ‣ Facebook: https://www.facebook.com/sparkfinanci...
                ‣ Twitter: https://twitter.com/Daniellemiula

                33 min
              • Building A Sustainable Caregiver Wellness Routine w/ Nikki Nurse

                This week, we talk to Nikki Nurse of A Log Cabin In Brooklyn about her caregiving experience and building sustainable wellness routines.

                Nikki Nurse is a writer, wellness advocate, and former caregiver with 10+ years of experience. Nikki believes that real health and wellbeing come through tending to small moments—in the mundane of our everyday lives. She wants us to pause, reflect on what might need healing, and find simple ways to take care of ourselves every single day. Through her empathetic writing and calm presence, she makes it easy for us to acknowledge our pain and struggles—embracing them not as enemies, but as part of our ongoing journey towards joy and empowerment.

                In this episode—

                • Nikki's caregiving journey
                • How did you discover the importance of self-care? What were some of the first changes you made to prioritize your well-being?
                • Self-care looks different for everyone. How can caregivers identify their unique self-care needs and preferences? Do you recommend any resources or tools to help caregivers discover activities that resonate with them?
                • Many caregivers face financial constraints or limited resources. What are some affordable or accessible self-care options that caregivers can explore without stretching their budgets?
                • Many caregivers struggle with guilt or feelings of self-neglect when focusing on their own needs. How can caregivers overcome these feelings and embrace the importance of self-care without feeling guilty?
                • Could you share some insights & examples of how you established and maintained boundaries as a caregiver and how they positively impacted you and your mom?
                • Can you talk about how jewelry-making became a source of joy for your mom and contributed to your daily routine as a caregiver? How might this translate for other caregivers?
                • ALCIB has grown from a blog to a full-on brand & jewelry collection. How has ALCIB become a vehicle for raising awareness about Alzheimer's? What impact do you hope to make?
                • What do you wish you had known when you first started caregiving?

                  • Find Nikki online—

                  • Website: https://www.alogcabininbrooklyn.com/
                  • Instagram: https://www.instagram.com/alogcabinin...
                  • Facebook: https://www.facebook.com/ALogCabinInBk/
                    • 55 min
                  • How The Grit Of Caregiving Creates Strength & Purpose w/ Jessica Zemple

                    This week, we talk to Life Coach Jessica Zemple about her experience caring for her partner, feeling lost after the caregiving experience, and how to find meaning and depth again.

                    Jessica Zemple is the founder of Life Shucker, a coaching strategy for opening people's shells to discover their inner pearls and manifest their personal and professional dreams with more confidence, joy, and inner peace than ever before.

                    In this episode—

                    • Jessica's caregiving journey
                    • How the caregiving experience impacted Jessica's business and her financial situation
                    • How did you and your partner fund his care?
                    • Systems for managing caregiving finances
                    • How caregiving impacts thoughts of the future
                    • I know your relationship was on the rocks before you started the journey but you chose to stay by his side throughout. Then, you parted ways once he was healthy. What was that transition like for you? What is life like now post-caregiving?
                    • How did you reconnect with your purpose?
                    • You talk a lot about grit and how it helps people learn and grow. Can you elaborate on this?
                    • How does one find time for themself while they don't feel like they have enough time to make sure their LO’s needs are being met?
                    • What are some of the ways you implemented self-care during your caregiving journey?
                    • What do you wish you knew when you first started caregiving?

                      • Find Life Shucker online—

                      • Website: https://lifeshucker.com/
                      • Instagram: https://www.instagram.com/lifeshucker/
                      • Facebook: https://www.facebook.com/jessica.zemple
                        • 42 min
                      • How Health Informatics Can Help Family Caregivers Manage Care w/ Kayleigh Gordon

                        Health informatics expert Kayleigh Gordon about how health informatics and data can help those navigating a chronic illness and their caregivers better manage their care.

                        Kayleigh Gordon is the Director of Client Experience & Curation at VITALL. She holds a PhD in Health Informatics and works as an RN at University Health Network in Head & Neck Reconstruction.

                        In this episode—

                        • Overview of health informatics
                        • How health informatics technologies help family caregivers in managing care
                        • What type of data does VITALL acquire?
                        • How family caregivers use electronic health records (EHRs) to manage c
                          • are
                        • How health informatics tools help family caregivers better communicate with healthcare providers
                        • The latest developments in health informatics
                        • Where Kayleigh sees the future of health informatics heading
                        • Kayleigh's top tip for family caregivers

                          • Find VITALL online—

                          • Website: https://www.vitall.com/
                          • Instagram: https://www.instagram.com/vitallhealth/
                          • Facebook: https://www.facebook.com/vitallhealth
                            • 35 min
                          • Reflecting On A Young Life Interrupted By Caregiving w/ Adrienne Marioles

                            Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to former caregiver and host of the Young Life Interrupted Podcast, Adrienne Marioles about her experience caring for her mom who lived with Parkinson's disease and multiple system atrophy (MSA)

                            In this episode—

                            • Adrienne's caregiving journey
                            • What is life like now post-caregiving?
                            • Transitioning from being a long-distance caregiver to living closer
                            • How did you manage the feeling of being "on hold" while life around you kept moving?
                            • How did you and your mom fund her care?
                            • Systems for managing finances as a family caregiving
                            • What are some of the ways caregiving impacted your thoughts of the future?
                            • How to hold onto hope during the caregiving experience
                            • What do you wish you knew when you first started caregiving?
                            • Adrienne's #1 tip for other caregivers

                              • Find Adrienne online—

                              • Facebook: https://www.facebook.com/younglifeint...
                              • Instagram: https://www.instagram.com/younglifein...
                              • Podcast: https://podcasts.apple.com/ca/podcast...
                                • 43 min
                              • Everything is Temporary: Caregiving From A Distance w/ Jess Smith

                                This week, we talk to Caregiver Jess Smith of Alzheimer's Awakening about her experience caring for her mom who lives with Alzheimer's.

                                In this episode—

                                • Jess' caregiving journey
                                • When you suspect something’s wrong but your loved one won’t go to the doctor
                                • Coordinating care as a long-distance caregiver
                                • How did you and your family fund your mom's care?
                                • Jess' family's system for managing money/caregiving finances
                                • Establishing your relationship with money as a caregiver
                                • How caregiving impacts Jess' spending, saving, and thoughts of the future
                                • How positivity has shaped Jess’ caregiving experience and how to keep cultivating positivity
                                • What do you wish you knew when you first started caregiving?

                                  • Find Jess, Patti, and Ken on Instagram at https://www.instagram.com/alzheimers_....

                                  49 min
                                • Medical Decision Planning for Dementia Caregivers w/ Dr. Brittany Lamb

                                  Hear from Emergency Room Physician Brittany Lamb about medical decision making for dementia family caregivers.

                                  Dr. Brittany Lamb graduated from medical school at The Florida State University College of Medicine and was residency trained at The University of Alabama at Birmingham. She is a board-certified emergency medicine attending physician with over twelve years of healthcare experience and nearly nine in the emergency room.

                                  In this episode—

                                  • The connection between financial, legal, and medical decision planning
                                  • What is medical decision planning?
                                  • Benefits caregivers can experience by taking advantage of planning
                                  • Are advance directives & medical order forms enough? How do we layer in medical decision planning, too?
                                  • How to determine the goals of care and why this is important for future medical decisions
                                  • How to craft a plan for medical decision-making
                                  • Communication skills required to be a better advocate for your LOS
                                  • Tools or resources for becoming a more confident decision-maker
                                  • Number one tip for navigating the healthcare system as a caregiver?

                                    • Find Dr. Brittany Lamb online at https://blambmd.com/ or on social at https://www.instagram.com/blamb.md.

                                    45 min

                                  About Cost of Caring

                                  From the publisher's feed

                                  Join Certified Caregiving Facilitator Katie Wilkinson to uncover the financial truth behind caregiving. Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with…