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Listen to Hayleys unbelievable story with a huge diagnosis:
She is currently on a GJ feeding tube. 3 of these are categorized as a type of dysautonomia: Autoimmune Autonomic Ganglionopathy, POTS & autonomic small fiber neuropathy. 4 are GI tract paralysis: gastroparesis, intestinal dysmotility, chronic intestinal pseudo obstruction, esophageal dysmotility.
Even though she has this diagnosis, she is positive about creating a bright future for herself. Without her advocacy, her determination to know what was wrong and the ample amount of research she did, who know what her health would be like today! Connect with her on Insta @Halesssss
Having a bag could seem horrible to some people, but when you have severe Crohn’s disease you outweigh the pros and cons of having one, especially when medications are failing you, and the pain is unbearable. Listen to how Cassidy has overcome many challenges with Crohns and how she is living a better life now with the ostomy bag. Connect with her on Instagram: @BrokenBellies
Listen to Crystal Kings story with kidney disease, her life without many medications or any treatments to help. She is eagerly waiting for a kidney transplant in hopes for a bit of a normal life again, without her dialysis every single night. Her saviour is motherhood and her little boy Avery. Connect with her on Instragram @JusttheKings and her website JusttheKings.com
Margarita lives with more than just Lupus, she lives with rheumatoid arthritis, Reynolds disease, pulmonary hypertension and scleroderma. Listen to her story about medications, flare ups, how she was a volleyball enthusiast and had to give up her dream and so much more! Connect with her on Instagram @MarMarAngo
Stein has lived with T1D since he was 6 years old, listen to how his life changed as a kid and how he lives his life now! He is an advocate for those with T1D, a great Saber fencer and he is only 16 years old! Connect with him on Instagram @SteinPortman
Listen to Laura’s crazy story with Endometriosis and more, her misdiagnosis, the mistreatment with doctors telling her it was all in her head and worse! Listen to how her life has changed since being diagnosed, the ups and downs and how she lives now. Connect with her on Instagram @TheEndoMonologues
We try our best to stay healthy, to stay away from illness and disease, but some of us have to deal with the hand we are given. This episode Anna and I get deep into conversation about why do people out there say there are "cures" for incurable diseases, and much more! Check it out! Be sure to connect with her on Instagram and Twitter @annascanlon
And be sure to subscribe to her YouTube channel!
https://www.youtube.com/user/TheAnnainWonderland
Listen to Tracy’s story and how her life had to do a 180, more than once. What her life was like before chronic illness and how she lives her life now! Connect with her on Instagram @Unspoken.Words.of.the.Heart Check out her website: https://www.unspoken-words-of-the-heart.com/ She lives with POTS, Fybro, Chronic Fatigue Syndrome/ME and EDS.
Labelled as the worlds most painful disease, listen to Tom’s story living with. Trigeminal Cephalalgia Neuralgia also known as Cluster Headaches, or the suicide disease. From exhausting all prescriptions for this disease, two unsuccessful brain surgeries, PTSD, near death many times from surgeries and knocking on suicides door, there is magic in the world, and Tom is with us today because of it. Tom’s story will leave you in awe of this disease, as well as the medical system and faith in humanity. Please like and share, as this disease is just as common as M.S. but does not get near the appropriate research and development, understanding and awareness.
Connect with Tom on YouTube: @ClusterHeadSurvivor
Instagram: @cluster_head_survivor
Be sure to read his blog about cluster headaches, mental illness and more: clusterheadsurvivor.blogspot.com
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