Cystic Fibrosis Podcast

Cystic Fibrosis Podcast

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Cystic Fibrosis Podcast episodes

  • Cystic Fibrosis Podcast 199: Living Life After a Double Lung and Liver Transplant

    Jerry Cahill chatted with Kathryn Norris about her journey with cystic fibrosis in his latest podcast. Diagnosed at 3 months, Kathryn soon moved back to her mother’s home-country, Spain, where she had a different experience growing up with CF. Because of socialized healthcare, she had a great deal of access to specific medications, but no access to more recently discovered treatments. In her hometown, walking to and from school helped her fit exercise into her daily life, as well as a number of extracurriculars including tennis, swim, roller blading, and more.

     

    Tune in to learn more about Kathryn – her path with CF to a double lung transplant and a liver transplant, why she is studying to be a personal trainer, and how she copes with her disease.

     

    This podcast was made possible through an unrestricted education grant from the Allergan Foundation to the Boomer Esiason Foundation.

     

     

     

    32 min
  • Cystic Fibrosis Podcast 194: One-year post-transplant checkup

    In the latest CF Podcast, Jerry Cahill sits down to answer some of his colleague’s questions about life post-transplant, specifically about what happens during the one-year checkup. He explains how the doctors put him through a series of tests including, but not limited to, PFTs, blood tests, a 6-minute walk, a lung CAT scan, a bone density test, and more. Tune in to learn more about Jerry’s personal experience with the checkup!

    This podcast was made possible through an unrestricted educational grant from Gilead to the Boomer Esiason Foundation.

    20 min
  • Cystic Fibrosis Podcast 193: Why do you exercise with Faith Stone?

    Jerry sat down with Faith Stone in his latest #cysticfibrosis podcast to discuss why she exercises. Faith is a 20 year old CFers who attends West Virginia University. Her parents always encouraged her and her sister to stay active while they were growing up, so dace, tennis, basketball, and track were all a part of her normal routine.

    Tune in to learn more about Faith and why she exercises!

    This podcast was made possible through an educational grant from Allergan to the Boomer Esiason Foundation.

    12 min
  • Cystic Fibrosis Podcast 191: ‘Why do you run?’ with Ben James

    In his latest podcast, Jerry Cahill sat down with Ben James, a 19-year-old college student who was diagnosed with cystic fibrosis at 4 years old. Originally from Chester, VA, Ben now attends Mount Vernon Nazarene University in Ohio where he studies pre-medicine. When he isn’t focusing on school subjects like anatomy and physiology, Ben likes to play basketball and soccer, and also likes to run long distance.

    Ben loves the challenge of running long distance for a number of reasons, including building character, facing challenges as an individual, and learning discipline, which helps with his overall medical compliance.

    This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

    14 min
  • Cystic Fibrosis Podcast 190: Getting a Double Lung Transplant

    In his latest podcast, Jerry Cahill sits down with Storm Johnson, a 22-year-old CFer who is currently recovering from a double lung transplant at Duke. Before his transplant, Storm’s lung function dropped to 8%.

    Tune in to hear about his love of cars, his recent engagement, his journey to transplant, and what his hopes are for his life three weeks post-transplant.

    This podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

     

    13 min
  • Cystic Fibrosis Podcast 184: Involvement in the CF Community

    Today, Jerry interviews Mark Levine, a 48-year-old husband, stepfather, tennis player, traveler, engineer, and cystic fibrosis patient. Mark lost his younger brother, David, to CF at the age of 21. So today, he is extremely active in the CF community. He is a CFF speaker and top fundraiser, is on the board of directors for USACFA who publishes the CF Roundtable newsletter, and was a keynote speaker at Breathe-Con in 2017 and a mini-con facilitator in April 2018.

    This podcast was made possible through an unrestricted educational grant from Genentech to the Boomer Esiason Foundation.

    36 min
  • Cystic Fibrosis Podcast 178: Life Post Double Lung Transplant with Lizz Kaup
    Life on the Other Side of a Double Lung Transplant with Lizz Kaup

    Originally on the cystic fibrosis podcast series around three years ago, Lizz returns to discuss her life after her double lung transplant in March 2016.

    • Lizz is 37 years old and was diagnosed at age 3.
    • She is from a small town in Oklahoma.
    • She loves the outdoors and traveling.
    • Lizz began the transplant process in 2011 when she was knocked down by a micro bacterium.
    • In 2014, she started using oxygen to assist her breathing.
    • Lizz works for the state and continues to search for adventure at every turn.

      This educational podcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

      35 min
    • Cystic Fibrosis Podcast 177: How to Survive and Live a Healthy Lifestyle with CF

      Faisal is 18 years old and currently resides in Concord, CA. He recently graduated from High School and is headed to college in the fall. Faisal plays soccer for the Diablo FC in the National Premier League and was a member of the Afghanistan U19 National Team.

      • Faisal was diagnosed with cystic fibrosis at birth.
      • He was once ranked 3rd in the world in the video game Call of Duty Black Ops 2.
      • His love of soccer stems from his sister. She played while he was growing up, and he always wanted to play too.
      • In middle school Faisal started to understand the importance of being compliant with his cystic fibrosis.
      • When Faisal was 13 he attended a soccer camp in Barcelona and met Lionel Messi.
      • To learn more about Faisal and the ways he manages his mental well being, please listen to the podcast.

        This educational podcast was made possible through an unrestricted educational grant from Chiesi to the Boomer Esiason Foundation.

        19 min
      • CF Podcast 167: CF: Living Life with a Terminal Illness

        Michael Bramhall

        Michael is 24 years old with CF and 5 months post double lung transplant. Michael is from Nebraska, and loves fishing, hunting, exercising, and EMS. Michael also loves the outdoors and helping people. He was diagnosed at 4 months old and has a younger sister who is 20 years old, without CF.

        • Michael never let’s his CF stop him from doing the things he enjoys
        • In 2001 Mike began to understand the severity to his CF, due to a collapsed lung.
        • Michael believes that with a life threatening disease “feel lonely at times” is typical, so you need an outlet like exercise to feel better.
        • Michael states“Post transplant, is the best I have felt. Ever… I can finally breathe and have a great outlook on life” and he is extremely thankful to the donor.
        • Michael believes “if he keeps working hard and exercising he can keep his new lungs healthy and have a great quality of life” Life with a life threatening disease is “difficult”
        • Michael is happy to wake up every morning and enjoy life and thankful to his donor and family everyday
        • This educational podcast was made possible through an unrestricted educational grant from Allergan to the Boomer Esiason Foundation.

          22 min

        About Cystic Fibrosis Podcast

        From the publisher's feed

        Jerry Cahill's Cystic Fibrosis Podcast is presented by the Boomer Esiason Foundation. A non-profit organization dedicated to funding research for CF and improving the quality of life of those affected…