Cystic Fibrosis Podcast

By Jerry Cahill

Jerry Cahill's Cystic Fibrosis Podcast is presented by the Boomer Esiason Foundation. A non-profit organization dedicated to funding research for CF and improving the quality of life of those affected... more

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FAQs about Cystic Fibrosis Podcast:

How many episodes does Cystic Fibrosis Podcast have?

The podcast currently has 179 episodes available.

Cystic Fibrosis Podcast episodes:

July 07, 2005Jerry Interviews Ashley White
Ashley White, Awaiting a Double Lung Transplant at Duke Medical Center,
Looks Forward to Being Able to "Breathe Again"

Jerry Cahill interviews Ashley White
Ashley White was diagnosed with cystic fibrosis at 4 months of age.

Ashley has 4 sisters and 2 brothers, one brother also has CF.

Ashley attends home school daily.

Medication, therapy, more medication, and more therapy Ashley spends
many hours a day being compliant to here routine trying to stay healthy along
with nightly tube feeding.

Ashley enjoys scrap booking and spending time with her friends and family.

Listed for a double lung transplant in March 2005 after being on oxygen
24/7 and when her FEVs dropped below 24.

Ashley, along with her mom, had to face and make the big decision
regarding the double lung transplant surgery.

My Mom has been the biggest influence on my life

KEEP GOING! Ashleys advice to others with CF and facing a transplant.

Without my Mom, who pushes me, I may have giving up
...more
22min
July 01, 2005Jerry Interviews Lisa White
Lisa White's Daughter Awaits a Double Lung Transplant at Duke Medical
Center and Her Faith & Family Give Her Strength

Jerry Cahill interviews Lisa White
Lisa’s daughter is awaiting a double lung transplant at Duke Medical
Center in Durham, North Carolina.

Lisa has the endless support from her family, friends, and faith.

Lisa stresses? “Stay positive? and keep on “living life? regardless of
the obstacles.

“Keep researching EVERYTHING on cystic fibrosis and lung transplants?
and most of all be “PRO-ACTIVE? and “VIGILANT?

Lisa states: “Ashley and I never give up, you must have the SURVIVAL
INSTINCT or LIFE WILL STOP!?
...more
43min
June 06, 2005Amy Purdy, Social Worker at St. Vincent's CF Center in New York, is Passionate about her Work!
Jerry Cahill interviews Amy Purdy

Amy Purdy has been a social worker at Saint Vincent’s CF Center, in New York
City, for over 8 years and “loves helping people?
Amy grew up in Long Island, NY

SUNY Albany undergraduate degree

Adelphi University graduate degree in Social Work

St. Vincent’s has over 170 cystic fibrosis patients where Amy works full
time for the center.

Amy has great relationships with her patients and knows “what there
favorite flavor is in bubble gum?

Amy deals with various issues including; medical insurance, medication
compliance, educating families on CF, transplant issues, and “just being
there? for the patients?.

Amy states: “Teen years are critical for medication/therapy compliance, as
this sets the stage for your future health?.

St. Vincent’s has a “phone a friend? program for CF teens to speak to
adults with CF

Amy’s goal: “Take the burden off the young adults by becoming like a
personal assistant?

Amy’s advice to families: “Use ALL the resources at your CF Center?
...more
27min
May 24, 2005Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis
Kristy Denninger Enjoying Life at age 28 with Cystic Fibrosis

Jerry Cahill Interviews Kristy Denninger

Kristy Denninger is 28 years old and has a phenomenal support team of family,
boyfriend, and friends.
Kristy was diagnosed with CF at 3 months do to “failure to thrive?.

Kristy at age 14 also diagnosed with Diabetes.

Degree in Social Work from St. Thomas College in New York.

Kristy enjoys: “Family, Friends, and Vacationing?

“Relaxing on the Beach is great for my Spiritual and Physical Health?.

Kristy raised over $10,000 this year for CFF “Great Strides?.

Kristy states: “Exercising on the treadmill for 20 minutes per day helps
keep me healthy?.

Kristy believes in “staying positive? and is empowered by the online
Cystic-L Support Group.
...more
31min
May 11, 2005 Jerry's Update on Benefits of Home Infusion
...more
9min
May 09, 2005Laura Cianci Home Infusion Nurse
Jerry Cahill interviews Laura Cianci

Laura Cianci has been a Home Infusion Nurse for the past 16 years working with
patients with acute illnesses. Home infusion therapy offers flexibility to both
the patient and the nurse.
Laura has many CF patients that receive numerous antibiotics and
steroids by IV.
Patients can start home infusion care as young as 18 months

“I love my patients, they are the reason why I do what I do?

Laura states: “It’s important to mobilize the secretions, not only
through IV antibiotics but also through postural drainage?

Laura believes CF patients need to be more pro-active in their care.

“I have learned to appreciate life more after working with my patients
and seeing the fortitude they have for life…

Laura states: CF has an effect on the entire family
...more
24min
April 29, 2005Michael Marten's Lung Transplant Interview
Cystic Fibrosis Podcast Intro (38:05 Minutes)

Jerry Cahill Interviews Michael Marten

About three years ago Michael Marten received a double lung transplant at Duke
University. In this interview Michael discusses his life experiences both pre
and post transplant with host Jerry Cahill.
Michael Marten Background Information
Age 45 -will be 46 in May

Those crazy
"Mist Tents"

4 Years Old when diagnosed

Fairly normal life until graduate school (St. Johns
University).

1991- Graduated Grad School

1993- Started to Repeated infections (Disability from work)

1996- First put on oxygen

1999- Put on oxygen full-time

2001- Duke University Evaluation

2002 -July, Michael Moves to North Carolina with Family

2002-August 1, Goes to hospital for transplant

3 Years Post Transplant-Still Going Strong
Importance of Family Support Mechanism

Jerry Interview Questions
...more
38min
April 20, 2005 Cystic Fibrosis Podcast 4-20-2005
Show Notes 4-20-2005

1. DISCLAIMER:
The views expressed on the Cystic Fibrosis Podcast are those of Jerry Cahill and
his guests, and not necessarily of the Boomer Esiason Foundation.

NOTHING ON THE CFPODCAST SHOULD BE CONSIDERED MEDICAL ADVICE.
SUCH ADVICE CAN ONLY BE GIVEN BY A PHYSICIAN WHO IS EXPERIENCED WITH CYSTIC
FIBROSIS.
THE CONTRIBUTORS ON THIS PODCAST CANNOT BE HELD RESPONSIBLE FOR ANY DAMAGE WHICH
MAY RESULT FROM USING THE INFORMATION ON THIS PODCAST WITHOUT PERMISSION OF
THEIR MEDICAL DOCTOR

2. Dave Rimington Intro
Introducing Jerry Cahill and Natalie Stout

3. Intro-Jerry Cahill's Cystic Fibrosis Podcast

4. About Jerry:
Jerry and Natalie discuss Jerry's background and his involvement with the Boomer
Esiason Foundation.
5. For more information on cystic fibrosis go to:
www.esiason.org
6. Email Comments/Questions to
[email protected]
...more
24min
December 31, 1969Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference
Laurie McDonald Podcast

Title:
Laurie McDonald, Social Worker at UNC Transplant Center Makes a Difference

Jerry Cahill interviews Laurie McDonald, Transplant Social Worker at UNC Medical
Center in Chapel Hill, North Carolina. Laurie works closely with the medical
team, patient, and family to make sure everything runs smoothly with the
transplant.
Laurie is involved in lung, heart, liver, and kidney transplant social
work.

Cystic Fibrosis disease progression is the reason for over 50% of lung
transplants at UNC.

“Financial issues as well as re-locating and waiting for the transplant
are the biggest challenges for patient and family? states Laurie

UNC Transplant Center offers support groups to patients and family that
is both educational and good forum for stress release.

Laurie recommends setting up a “fundraising team? ASAP once you are
listed to help ease the financial burden of unexpected expenses.

Laurie’s advice:
1. “Live everyday /minute of your life and don’t count on transplant to turn
your life around?
2. “Prepare Financially?
3. “Exercise – the surgery and recovery will go smoother?
...more
1min

FAQs about Cystic Fibrosis Podcast:

How many episodes does Cystic Fibrosis Podcast have?

The podcast currently has 179 episodes available.