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David's Refuge: "We Care for the Caregivers"
Today we are talking with Daidra Hamlin from David’s Refuge. David’s Refuge has been helping families in the Syracuse area since 2011 but has recently branched out into Rochester.
David’s Refuge was started by Warren and Brenda Pfohl after their son, David, died of Batten’s Disease, a rare, progressive disease that took his life just shy of his 21st birthday.
Instead of turning inward with their grief, the Pfohl’s decided to take the strength they saw and received from their son and turn it outward to help other parents and guardians of children with special needs and life-threatening illnesses.
David’s Refuge was created as a place where caregivers can spend a complimentary weekend in the company of others who understand their unique struggles.
Daidra was asked to talk to us today because she can speak both as a caregiver and a recipient of the benefits of Respite Weekends. Daidra and her husband have 3 wonderful boys: a set of 16 year old twins and a 5 year old. One of the twins and their youngest son have a genetic diagnosis of Ponto Cerebellar Hypoplasia (PCH) which is a neurogenetic disorder. They are non-verbal and in wheelchairs. The other twin is neuro typical.
When parents find themselves in such a challenging environment, sometimes we forget to find time for ourselves. But if we don’t take care of ourselves, we are less prepared to care for those who need us.
The Respite Weekend is the heartbeat of David’s Refuge. You can spend time at a B & B or at a hotel to recharge and refill. You are given the tools to help cope the rest of the year.
Throughout the year, David’s Refuge also has a Wellness Initiative that has offerings both in-person and virtual that is an important part of caregivers’ overall health. It offers things like Virtual and in-person yoga and fitness classes; 1:1 nutrition counseling; Caregiver Support Groups and so much more!
To build Community, David’s Refuge offers events for the whole family, some events are just for the caregivers and the children with special needs and some events are just for caregivers – something for everyone!
To become a part of David’s Refuge there is an application process. You can find it at DavidsRefuge.Org or on David's Refuge Facebook Page.
David’s Refuge is a 501(c)(3) non-profit organization with strong financial health and is well regarded in the non-profit community. It works with organizations like Autism Up and The Golisano Center.
Be on the lookout for more details on ROC for Caregivers, Sept 24th at The Carlson.
“The mission of David’s Refuge is to provide respite, resource and support to parents and guardians of children with special needs or life threatening medical conditions where they will be refreshed, restored and renewed in their role as caregivers.”
If you’d like to donate to, volunteer at or contact David’s Refuge, you can do that at Davids Refuge.org.
Please email your questions about today's episode or any questions you have about real estate, or buying or selling a home to [email protected]. We will be answering these questions in our future podcast episodes.
Marcia Glenn is a licensed Associate Real Estate Broker with has worked tirelessly since 1992 for her clients, whether they are buying or selling a home. Her team of agents brings with them experience, innovation, perspective and drive to make them part of the top 10% of all REALTORS in the Rochester NY area.
Join us next time for "On the Go with the Glenn Advantage Team". Search for "On the Go with the Glenn Advantage Team wherever you get your podcasts. Subscribe to our YouTube channel @glennadvantage, or follow us on Instagram and Facebook.
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By Marcia GlennToday we are talking with Daidra Hamlin from David’s Refuge. David’s Refuge has been helping families in the Syracuse area since 2011 but has recently branched out into Rochester.
David’s Refuge was started by Warren and Brenda Pfohl after their son, David, died of Batten’s Disease, a rare, progressive disease that took his life just shy of his 21st birthday.
Instead of turning inward with their grief, the Pfohl’s decided to take the strength they saw and received from their son and turn it outward to help other parents and guardians of children with special needs and life-threatening illnesses.
David’s Refuge was created as a place where caregivers can spend a complimentary weekend in the company of others who understand their unique struggles.
Daidra was asked to talk to us today because she can speak both as a caregiver and a recipient of the benefits of Respite Weekends. Daidra and her husband have 3 wonderful boys: a set of 16 year old twins and a 5 year old. One of the twins and their youngest son have a genetic diagnosis of Ponto Cerebellar Hypoplasia (PCH) which is a neurogenetic disorder. They are non-verbal and in wheelchairs. The other twin is neuro typical.
When parents find themselves in such a challenging environment, sometimes we forget to find time for ourselves. But if we don’t take care of ourselves, we are less prepared to care for those who need us.
The Respite Weekend is the heartbeat of David’s Refuge. You can spend time at a B & B or at a hotel to recharge and refill. You are given the tools to help cope the rest of the year.
Throughout the year, David’s Refuge also has a Wellness Initiative that has offerings both in-person and virtual that is an important part of caregivers’ overall health. It offers things like Virtual and in-person yoga and fitness classes; 1:1 nutrition counseling; Caregiver Support Groups and so much more!
To build Community, David’s Refuge offers events for the whole family, some events are just for the caregivers and the children with special needs and some events are just for caregivers – something for everyone!
To become a part of David’s Refuge there is an application process. You can find it at DavidsRefuge.Org or on David's Refuge Facebook Page.
David’s Refuge is a 501(c)(3) non-profit organization with strong financial health and is well regarded in the non-profit community. It works with organizations like Autism Up and The Golisano Center.
Be on the lookout for more details on ROC for Caregivers, Sept 24th at The Carlson.
“The mission of David’s Refuge is to provide respite, resource and support to parents and guardians of children with special needs or life threatening medical conditions where they will be refreshed, restored and renewed in their role as caregivers.”
If you’d like to donate to, volunteer at or contact David’s Refuge, you can do that at Davids Refuge.org.
Please email your questions about today's episode or any questions you have about real estate, or buying or selling a home to [email protected]. We will be answering these questions in our future podcast episodes.
Marcia Glenn is a licensed Associate Real Estate Broker with has worked tirelessly since 1992 for her clients, whether they are buying or selling a home. Her team of agents brings with them experience, innovation, perspective and drive to make them part of the top 10% of all REALTORS in the Rochester NY area.
Join us next time for "On the Go with the Glenn Advantage Team". Search for "On the Go with the Glenn Advantage Team wherever you get your podcasts. Subscribe to our YouTube channel @glennadvantage, or follow us on Instagram and Facebook.