DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance

DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance

By Kathleen KingHealth & Fitness
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DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance episodes

  • Dr Caoimhe Hartley, Menopause Health, Hormones, Endometriosis, HRT and Beyond.

    Summary
    Dr. Caoimhe Hartley discusses perimenopause, menopause, and the symptoms women may experience during this time. She explains the impact of hormonal fluctuations on endometriosis and the importance of managing symptoms during perimenopause. Dr. Hartley also explores various treatment options for perimenopause and postmenopause, including hormone replacement therapy (HRT) and the use of testosterone. She emphasises the need for individualised care and risk assessment when considering HRT. Additionally, Dr. Hartley highlights the importance of lifestyle factors in managing menopausal symptoms and reducing overall health risks. This conversation covers various topics related to hormone replacement therapy (HRT) and the management of menopausal symptoms. It explores individualised approaches to HRT, the importance of long consultations and patient advocacy, options for managing menopausal bleeding, non-hormonal medications for heavy bleeding, different hormonal options for bleeding control, the use of Tibolone as an alternative hormone therapy, the safety of vaginal oestrogens in breast cancer patients, and the myth of hormone balancing.
    Takeaways
    Hormone replacement therapy (HRT) should be individualised based on a person's symptoms, risk factors, and preferences. It is not a one-size-fits-all approach.
    Long consultations and patient advocacy are crucial in providing comprehensive care for menopausal patients. Patients should be well-informed and actively involved in their treatment decisions.
    There are various options for managing pre and perimenopausal bleeding, including non-hormonal medications like tranexamic acid, as well as hormonal options.
    Tibolone is a synthetic steroid that can be used as an alternative hormone therapy. It has similar benefits to other forms of HRT and is considered safe for most women. It was studied as addback HRT for use with GnRHa like Zoladex.
    Aromatase inhibitors are commonly used in post-breast cancer treatments and infertility. They can be effective but may cause significant side effects. Some patients with endometriosis have used them for symptom control.
    Vaginal oestrogens are safe and effective for managing vaginal dryness and other genitourinary symptoms in women. They do not increase the risk of breast cancer.
    Resources
    Dr Caoimhe Hartley - Menopause Health https://www.menopausehealth.ie/
    Chapters
    00:00 Introduction and Background
    03:32 Perimenopause and Menopause
    06:50 Perimenopausal Symptoms and Endometriosis
    15:06 Treatment Options for Perimenopause and Postmenopause
    20:17 Managing Symptoms in Hysterectomy Patients
    22:48 The Use of Testosterone in Menopause
    27:44 Alternative Options for Women Not Taking HRT
    34:51 Risks and Side Effects of HRT
    40:23 Individualised Risk Assessment
    41:13 Individualised Hormone Replacement Therapy (HRT)
    42:02 Long Consultations and Patient Advocacy
    43:14 Managing Menopausal Bleeding
    44:19 Non-Hormonal Medications for Heavy Bleeding
    44:49 Hormonal Options for Bleeding Control
    45:46 Tibolone as an Alternative Hormone Therapy
    48:36 Aromatase Inhibitors in Endometriosis Treatment
    50:53 Vaginal Oestrogens and Breast Cancer
    54:46 The Myth of Hormone Balancing

    1 hr 5 min
  • Helena Tubridy, RGN RM Fertility Coach

    Summary


    In this conversation, Kathleen King and Helena Tubridy discuss various aspects of fertility, pregnancy, and the emotional toll of fertility trauma. They explore the role of fertility coaching and the importance of mindset in the fertility journey. They also discuss the challenges of navigating pregnancy with endometriosis and the need for support and rest during this time. The conversation highlights the need for informed decision-making and the importance of finding a supportive team. They also touch on the impact of limited IVF availability and the experience of living without children. Overall, the conversation emphasises the need for compassion, understanding, and self-care in the fertility journey. This conversation explores the topics of appropriate care, dealing with loss and lost opportunities, premature grieving and bullying, tools and techniques for dealing with grief, validating grief and maintaining relationships, developing resilience and emotional strength, living fully and engaging in life, the risk of isolation and the importance of connection, shared responsibility and communication in relationships, recognising interconnectedness and letting go of negativity, the power of positive relationships and communication, and breaking down barriers and developing trust.


    Takeaways


    Seek appropriate care for reproductive health issues.

    Grief and loss can be complex and require tools and techniques to navigate.

    Maintaining relationships and finding meaning are important for emotional well-being.

    Develop resilience and emotional strength to cope with challenges.

    Connection and communication are vital for support and understanding.

    Recognise interconnectedness and let go of negativity for personal growth.

    Positive relationships and communication can have a profound impact on well-being.

    Breaking down barriers and developing trust can lead to better support and understanding.


    Chapters


    00:00 Introduction and Background

    05:50 The Role of Fertility Coaching

    07:03 Starting the Fertility Journey

    13:56 The Emotional Toll of Fertility Trauma

    18:06 Navigating Pregnancy with Endometriosis

    25:41 Visualising Positive Outcomes

    34:19 The Importance of Rest and Support

    37:34 The Impact of Limited IVF Availability

    45:08 Living Well Without Children

    48:02 Acknowledging Loss and Trauma

    49:24 The Importance of Appropriate Care

    50:33 Dealing with Loss and Lost Opportunities

    52:01 Premature Grieving and Bullying

    53:00 Tools and Techniques for Dealing with Grief

    54:27 Validating Grief and Maintaining Relationships

    55:32 Developing Resilience and Emotional Strength

    56:58 Living Fully and Engaging in Life

    59:27 The Risk of Isolation and the Importance of Connection

    01:00:27 Shared Responsibility and Communication in Relationships

    01:01:31 Recognising Interconnectedness and Letting Go of Negativity

    01:02:55 The Power of Positive Relationships and Communication

    01:05:06 Breaking Down Barriers and Developing Trust

    01:06:27 Connecting with Helena Tubridy


    Links

    Helena's Website https://helenatubridy.com/

    Helena's Instagram https://www.instagram.com/helenatubridy/

    Future Fertility Show https://www.futurefertilityshow.com/

    1 hr 8 min
  • Catherine O'Keefe Wellness Warrior, Menopause Coach and Consultant

    Summary


    Catherine O'Keeffe, Founder of Wellness Warrior, creator of Menopause Success Summit, and a Menopause Workplace Consultant discusses the importance of understanding perimenopause and menopause, as well as the challenges faced by women in different life stages. She emphasises the need for accurate information and health literacy, particularly in the age of social media. Catherine highlights the psychological symptoms of menopause and the importance of finding the right support from healthcare professionals and therapists. She also encourages an individualised approach to managing menopause symptoms and emphasises the role of lifestyle changes. In this conversation with Kathleen, Catherine discusses various aspects of menopause and provides practical advice for managing symptoms and maintaining overall health. She emphasises the importance of lifestyle choices, including sleep, nutrition, and exercise, in supporting heart, bone, and cognitive health during menopause. She also highlights the need for self-care and regular check-ins with oneself to address the physical and emotional changes that occur during this stage of life. She offers strategies for managing anxiety and panic attacks, including deep breathing and understanding triggers. Additionally, Catherine recommends staying informed through evidence-based resources and organisations like the Women's Health Concern and the British Menopause Society.


    Takeaways

    • Understanding the different stages of menopause, including perimenopause and postmenopause, is crucial for women's health.
    • Access to accurate information and health literacy are essential in navigating menopause.
    • Psychological symptoms, such as anxiety and low mood, are common during perimenopause and menopause.
    • Finding the right healthcare professionals and therapists who understand menopause is important for receiving appropriate support.
    • Taking an individualised approach to managing menopause symptoms, including lifestyle changes, can be effective.
    • Being cautious of misinformation and seeking trusted sources of information is crucial in making informed decisions about menopause treatments. Prioritise lifestyle choices such as sleep, nutrition, and exercise to support heart, bone, and cognitive health during menopause.
    • Regularly check in with yourself and seek support to address the physical and emotional changes that occur during menopause.
    • Practice deep breathing and identify triggers to manage anxiety and panic attacks.
    • Stay informed through evidence-based resources and organisations like the Women's Health Concern and the British Menopause Society.
    • Catherine's book is available on Amazon and all good bookshops.


      • Chapters

      00:00 Introduction and Personal Journey

      03:31 Understanding Perimenopause and Menopause

      10:40 Menopause in Different Life Stages

      16:25 Challenges of Health Literacy and Access to Information

      21:36 Symptoms of Perimenopause and Menopause

      32:48 Challenges in Seeking Support and Treatment

      38:34 Finding What Works for You

      41:52 Lifestyle for Menopause Health

      45:15 Taking Care of Yourself

      48:00 Managing Anxiety and Panic Attacks

      51:20 Cognitive Behavioral Therapy (CBT)

      55:16 Staying Informed with Evidence-Based Medicine

      57:59 Resources and Support


      Catherine's Website Wellness Warrior https://www.wellnesswarrior.ie/

      Catherine's Wellness Warrior Instagram https://www.instagram.com/wellnesswarrior.ie/

      All You Need To Know About Menopause (Book) https://amzn.eu/d/7dMuBC7

      Women's Health Concern https://www.womens-health-concern.org/

      British Menopause Society https://thebms.org.uk/

      1 hr 1 min
    • Noelle Corrigan, Endometriosis Nutrition Care, Registered Dietician

      Excellence in Nutrition Care for Endometriosis
      Noelle Corrigan is a CORU registered Dietitian who specialises in Endometriosis.
      Summary
      In this episode, Noelle Corrigan, a registered dietitian with a personal and professional interest in endometriosis, discusses the role of nutrition in managing endometriosis symptoms. She shares her own journey with endometriosis and highlights the importance of education and awareness. Noelle explains how nutrition can impact gut health, inflammation, and hormonal issues in individuals with endometriosis. She emphasises the need for personalised nutrition advice and the importance of working with a registered dietitian. Noelle also discusses the importance of professional registration and informed consent in the field of nutrition. She provides tips for post-surgery recovery and rebuilding a healthy relationship with food.
      In this conversation, Noelle discusses the challenges of finding reliable nutrition information and highlights the importance of consulting registered dietitians. She also mentions her plans to provide more information on her website in the future. Noelle's website is https://corrigannoelle.wixsite.com/mysite and Instagram https://www.instagram.com/noellecorrigan/
      Takeaways
      Education and awareness are crucial in understanding and managing endometriosis.
      Nutrition plays a role in managing symptoms related to gut dysfunction, inflammation, and hormonal issues in endometriosis.
      Working with a registered dietitian can provide personalised nutrition advice and support.
      Informed consent and professional registration are important in ensuring reliable and evidence-based nutrition advice.
      Post-surgery recovery involves rebuilding a healthy relationship with food and addressing any nutritional deficiencies.
      Chapters
      00:00 Introduction and Personal Experience with Endometriosis
      06:30 The Importance of Education and Awareness
      08:22 The Role of Nutrition in Endometriosis
      17:47 The Impact of Endometriosis on Gut Health
      23:31 Addressing Disordered Eating and Nutritional Deficiencies
      25:36 The Importance of Professional Registration and Informed Consent
      29:38 The Need for More Research on Endometriosis and Nutrition
      33:59 Taking Steps Towards Better Nutrition
      36:29 The Importance of Calcium and Vitamin D for Bone Health
      39:30 Utilizing Pharmacists and Informed Consent
      41:20 Post-Surgery Tips and Rebuilding a Healthy Relationship with Food
      43:04 Additional Resources and Support
      43:31 Finding Reliable Information
      44:20 The Future of Nutrition Education

      46 min
    • TELL - Physician Led Social Media for Health Dr Alan Gaffney

      Dr Alan Gaffney is a doctor. He's an anaesthetist and an Intensive care physician working in Beaumont Hospital in Dublin. He's also the co-founder and Chief Medical Director of Tell Health. Tell is an exciting new social media platform. Authentic, verified clinicians post content for the world to see and interact with.SummaryIn this episode, Dr. Alan Gaffney discusses the TELL Health app, a social media platform designed for clinicians and patients to communicate and share accurate medical information. The app aims to address the issue of medical misinformation on social media and provide a trusted platform for healthcare professionals to lead conversations. The verification process ensures that clinicians are licensed and affiliated with reputable institutions. The app also allows users to interact, comment, and ask questions, fostering a community of trust and knowledge sharing. The app is text-based but supports various media formats, and users can follow specific topics and clinicians. The initial focus is on women's health, starting with endometriosis, and the goal is to expand globally and become the go-to platform for medical information.
      More Information on:
      https://www.linkedin.com/in/alan-gaffney-intensivist
      https://tell.health
      https://www.facebook.com/tellhealthapp
      https://www.instagram.com/tell_health/
      https://www.linkedin.com/company/tellhealth/

      28 min
    • DEARG Wrapped 2023 - Thank you!

      Summary


      The DEARG podcast has gained a significant following and has provided a platform for people to share their experiences with endometriosis and adenomyosis. The podcast's name, DEARG, is derived from the Irish word for red, symbolizing the physical reality and emotional struggles faced by those living with these conditions. Red also represents strength, passion, and community. The podcast emphasizes the importance of accurate information and the need to combine personal experiences with professional insights. The vision for DEARG is to showcase services and support available in Ireland while also providing education and awareness worldwide. Kathleen expresses gratitude for the support and looks forward to future growth and community events.


      Takeaways


      The DEARG podcast provides a platform for people to share their experiences with endometriosis and adenomyosis.

      Red symbolizes the physical reality, struggles, strength, and community associated with these conditions.

      Accurate information is crucial in raising awareness and advocating for better support and services.

      The podcast aims to combine personal experiences with professional insights and showcase available resources.


      Chapters


      00:00 Introduction and Gratitude

      00:58 The Symbolism of Red

      01:56 The Importance of Accurate Information

      02:48 Strength and Hope in the Community

      03:15 Breaking the Silence

      04:15 Combining Personal Experience and Professional Insight

      05:13 The Vision for DEARG

      06:07 Looking Forward and Expressing Gratitude

      7 min
    • Zoe and Marion, Living with Endometriosis, Surgery and advocating for young people with symptoms.

      In this DEARG podcast episode, we delve into the crucial topic of endometriosis diagnosis and treatment in teens with the insights of Marion and Zoe. Marion underscores the significance of recognising symptoms and genuinely listening to young people, emphasizing the need to not overlook any signs of distress or discomfort they may exhibit.

      Both Marion and Zoe share their personal journeys with endometriosis (Marion is Zoe's mum, Zoe lives with endometriosis), shedding light on the challenges they faced in obtaining a diagnosis and treatment. They discuss the profound impact of endometriosis on school and education, recounting their experiences seeking treatment in Romania. Marion stresses the importance of advocacy and education in raising awareness about endometriosis.
      Additionally, the podcast explores the benefits of pelvic physiotherapy and dietary changes in managing endometriosis symptoms. Marion and Zoe are actively involved in endometriosis awareness aimed at educating others about the condition. The episode concludes with valuable advice for parents and caregivers who suspect their loved ones may have endometriosis, along with shared hopes for a more informed future.
      Takeaways
      Endometriosis can have a significant impact on school attendance and education, requiring support and accommodations.
      Seeking a diagnosis and treatment for endometriosis can be a challenging and frustrating process, often involving multiple doctors and tests.
      Advocacy and education are crucial in raising awareness about endometriosis and improving understanding among medical professionals.
      Pelvic physiotherapy and dietary changes can be beneficial in managing endometriosis symptoms.
      It is important for parents and caregivers to educate themselves and their children about what a normal period should look like and to persist in seeking medical help if symptoms are present.
      Chapters
      00:00 Introduction and Background
      01:10 Symptoms and Diagnosis
      02:28 Impact on School and Education
      03:13 Journey to Diagnosis and Treatment
      07:08 Seeking Treatment in Romania
      08:35 The Importance of Advocacy and Education
      10:24 Challenges and Beliefs Surrounding Endometriosis
      13:59 Recovery and Post-Surgery Care
      17:30 Pelvic Physiotherapy and Diet
      19:28 Impact on Daily Life and Activities
      22:21 Endometriosis Awareness Project
      25:47 Advice for Parents and Caregivers
      29:36 Challenges with Medical Professionals
      34:12 Future Plans and Outlook
      34:39 Conclusion and Thank You


























      36 min
    • Aimee Brown, Endometriosis and Medicinal Cannabis Advocate

      Aimee Brown became the first documented individual in Ireland to receive a ministerial license allowing the use of cannabis for the treatment of chronic pain associated with her endometriosis. Her journey to reach this point was challenging and she met many frustrations on the way. Aimee, faced hospitalisation for symptoms at the age of eight, three years before the onset of her menstrual cycle. Throughout her experience, she confronted medical gaslighting, highlighting the obstacles she encountered in seeking treatment for this condition. She has taken her lived experience and has become a strong advocate for others, empowering people to seek expert surgery and appropriate pain relief.

      1 hr 3 min
    • Dr Conor Kerley, doctor of nutrition, award winning nutrition researcher, leading dietitian.

      Dr. Conor Kerley: Founder of Phytaphix, a leading Irish nutrition company based in Dundalk, Co Louth, Ireland. With a background as a dietitian and in clinical research, including a PhD in nutritional interventions for heart and lung disease, Conor is driven by a commitment to scientific rigour in the creation of health products. His journey took him from prestigious positions in Washington DC to presenting award-winning research in Melbourne. Inspired by his travels, Conor founded Phytaphix to formulate evidence-based nutrition products. The company's range includes Immune Phix, designed to boost immunity, Energy Phix for chronic fatigue, long COVID and fibromyalgia, Joint Phix for osteoarthritis, rheumatoid arthritis and other joint issues, and Nervous System Phix for multiple sclerosis. Phytaphix products are made from premium plant-based ingredients, free from synthetic chemicals. Conor's dedication has garnered national and international recognition, with numerous awards for his impactful research.

      Conor has also developed EndoHormone Phix, a high-strength formula meticulously crafted formula to support various aspects of hormonal health, including the regulation of hormonal activity, normal production and metabolism of steroid hormones (such as estrogen), as well as promoting a normal inflammation response, cell division, and reducing tiredness and fatigue. This comprehensive formula reflects Conor's dedication to addressing the specific needs of those living with endometriosis symptoms.
      https://phytaphix.com/products/endo-hormone-phix-capsules
      With a commitment to science, sustainability, and accessibility, Phytaphix is making waves in the world of evidence-based nutrition.
      https://phytaphix.com/
      https://www.facebook.com/conorkerleyhealth
      https://www.instagram.com/conorkerley.nutrition/
      https://twitter.com/conorkerley

      1 hr 5 min
    • Orlagh Reid, Psychotherapist, Specialist Fertility Counsellor and Clinical Sexology Psychotherapist, Endometriosis

      Join us on DEARG, the podcast dedicated to shedding light on endometriosis and adenomyosis. Today, we have Orlagh Reid, a qualified psychotherapist and relationship therapist based in Naas, County Kildare. Orlagh's extensive training and personal experience with endometriosis offer a unique perspective.

      Orlagh delves into her background, which spans psychotherapy, sexology, and fertility counseling. Her passion for these fields stems from a desire to address the intimate aspects of health. She emphasizes the importance of specialized therapy, especially for conditions like endometriosis, where tailored approaches make a significant difference.
      The podcast emphasizes inclusivity and flexibility in therapy sessions, with the option to involve partners. Orlagh believes in tailoring the duration of sessions to maximize effectiveness.
      DEARG provides a platform for meaningful discussions about endometriosis and adenomyosis, offering valuable insights from experts like Orlagh Reid. Tune in for more enlightening conversations on these vital topics.
      Orlagh's website https://www.orlaghreid.ie/
      Orlagh Reid is a qualified Psychotherapist, Specialist Fertility Counsellor and Clinical Sexology Psychotherapist based in Naas, Co. Kildare, Ireland working primarily online with clients in Ireland and worldwide. She is also trained as a Sexual Health Promotion Facilitator and has Complementary Health Therapist and recently has qualified as a Life Coach. She has been an accredited member of the Irish Association of Counsellors & Psychotherapists (IACP) since 2015. Orlagh's clients are men and women with sexual problems, intimacy and attachment issues, sexual conditions and disorders including those such as endometriosis, vaginismus and sexual pain.

      59 min

    About DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance

    From the publisher's feed

    Welcome to DEARG, the podcast dedicated to providing valuable resources and expert guidance on endometriosis and adenomyosis in Ireland. Join us as we delve deep into the latest research, treatment options, and personal stories from individuals who have faced these conditions head-on.