Vous écoutez le troisième et dernier épisode de SOEURS, une mini-série Décalés créée en partenariat avec la fondation OCIRP.

Regard des autres, luttes intérieures, isolement. Leonora parle de sa quête d'identité, une individualité qui peut sembler compromise par ses responsabilités familiales.

Cet épisode marque la suite et fin du plongeon au cœur de la réalité des jeunes aidants, un sujet méconnu mais essentiel à comprendre, à travers le récit de Leonora, 29 ans, dont la soeur a une infirmité motrice cérébrale (IMC), et les éclairages de Céline, docteure en sociologie et chercheuse, à l'origine de l'enquête Traj'Aid, qui vise à mieux appréhender les enjeux émotionnels et psychologiques de ces piliers invisibles de notre société.

Au fil de la conversation, j'explore avec elles deux des thèmes essentiels tels que l'autonomie, l'inclusion et les aménagements nécessaires pour soutenir les jeunes aidants dans leur quotidien.

Face à un système inadapté, les mentalités doivent évoluer.

Disponible sur toutes les plateformes !

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

Vous écoutez le deuxième épisode de SOEURS, une mini-série Décalés créée en partenariat avec la fondation OCIRP.

Jongler entre ses responsabilités d'aidante et sa propre vie : répercussions émotionnelles et sociales. Cet épisode met en avant la nécessité d'une sensibilisation à la diversité des handicaps et à la valeur humaine des jeunes aidants, qui vont bien au-delà de leur rôle souvent sous-estimé.

À mes côtés : Perrine, 25 ans, dont la soeur porte un handicap mental, et Céline, docteure en sociologie et chercheuse, à l'origine de l'enquête Traj'Aid, qui vise à mieux appréhender les enjeux émotionnels et psychologiques de ces piliers invisibles de notre société,

Cette mini-série est une commande de la fondation d’entreprise OCIRP qui, engagée pour l’autonomie, agit pour que chacun puisse se construire dans un environnement qui s'adapte aux différences. Elle fait suite à l’enquête « Trajectoire et socialisation des jeunes des aidantes », ou TrajAid, menée par Céline Jung Loriente auprès d’aidantes de 18 à 28 ans.

Face à un système inadapté, les mentalités doivent évoluer.

Disponible sur toutes les plateformes !

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

Vous écoutez le premier épisode de SOEURS, une mini-série Décalés créée en partenariat avec la fondation OCIRP.

Plongeon au cœur de la réalité des jeunes aidants, un sujet méconnu mais essentiel à comprendre, à travers le récit d'Inès, 23 ans, dont la soeur est polyhandicapée, et les éclairages de Céline, docteure en sociologie et chercheuse, à l'origine de la recherche Traj'Aid, qui vise à mieux appréhender les enjeux émotionnels et psychologiques de ces piliers invisibles de notre société.

Apprendre à naviguer entre ses propres besoins et ceux de sa famille. Accepter ses luttes internes, notamment la difficulté d'exprimer ses propres sentiments dans un contexte où l'attention est souvent focalisée sur le membre de la famille en situation de handicap.

Vous l'aurez compris, ce premier épisode est une conversation à la fois émouvante et éclairante, qui incite à réfléchir sur la place des jeunes aidants dans notre société.

Disponible sur toutes les plateformes !

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

🎙️When I asked Grace what is was like to be a single mom raising a toddler in a teepee with no running water or electricity, she laughed and said she was lucky because Ian didn’t toddle very much. In fact, babies with Down syndrome tend to take it slower than most kids and as Ian grew, Grace made a point at taking everything slowly but seriously and to focus on life skills.

As an educator, she had worked with many kids before advocating for her own to get what he needed educationally. Looking back, she couldn’t stress enough the power of community and common sense.

If you check our instagram you will see that Ian may have begun his life in slow motion, but he surely turned into one serious showman.🎙️

I hope you enjoy every bit of this wild ride with Grace. Let us know what you think !

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld.

The website : https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine , Zeno Mountain Farm and Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

Today, on the sixth episode of Décalés Out of Sync, Ila and I talk about the school of life like you’ve never heard of it before. Ila is an occupational therapist and the co-founder of Zeno Mountain Farm, a camp for people with and without disabilities based in Vermont. As an occupational therapist, she helps people live independently. As a camp director and founder she offers a place for community to people for which it can be hard to come by.

She explains « Zeno is not just a philosophical space, we make original plays and movies to take concrete steps to have better exposure for disability in the media, because people grow with culture. » and I couldn’t be more aligned with this thought.

Think of this podcast as a toolbox and enjoy the ride! 🎙️

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld.

The website : https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine , Zeno Mountain Farm and Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

*listen to Isabelle’s mother Krista in episode 1 and to sister Hannah in episode 3*

🎙️Today on Décalés - Out of Sync, Isabelle talks about siblings relationships and the feeling of a parallel evolution with their twin Hannah who has cerebral palsy. It’s an interesting balance to find, they say, to know what we are responsible for, if we are supposed to stand up for the other and how to. Between love and guilt she questions how siblings should respond to their feelings when they are - from a societal point of view - the ones who are supposed to be okay.

Accessibility is what parted them in the playground - as they think of college next year, this question remains central and they remain very close. 🎙️

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld.

The website : https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine , Zeno Mountain Farm and Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

🎙Today on Décalés - Out of Sync, Kate describes herself as so friendly and extroverted that social boundaries can be difficult to process. People with Williams Syndrome all share that outgoingness.

She reflects on independence and the importance of taking the same steps as her peers. There have been obstacles but she feels lucky to have grown up in a time where “people with disabilities are finally seen as capable”.

As a swimmer, she won gold at the 2019 Special Olympics World Games in Abu Dhabi - among many other awards throughout her career - and she has a special relationship to music.

🎙️

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld.

The website : https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine , Zeno Mountain Farm and Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

*Listen to Hannah's mother in episode #1* 

🎙Today on Décalés - Out of Sync, Hannah talks about embracing her full identity through theater, community and learning how to ask for help. 

The theater is where she feels most at home. “Nothing can be erased or edited on stage. I can come as I am, my mobility aids are just a part of my character and I am a part of the story, just like everyone else”.

She and her twin were born 27 weeks premature and Hannah was diagnosed with cerebral palsy after having a brain injury at birth. Not so many kids shared their experience in rural Vermont where they live, making it hard for her to embrace her full identity... Until she discovered Zeno Mountain Farm and later on a women’s empowerment program where people with disabilities were expected to help each other. For the first time, it wasn’t the able bodied’s job.

As she thinks about college applications next year, her top priority is to find a fully accessible campus.🎙️

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld, 

The website : https://www.decalespodcast.com">https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/  ">https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine , Zeno Mountain Farm and Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

🎙️Today on Décalés - Out of Sync... what Will Halby and his family envisioned many years ago exists today as an alternate reality: Zeno Mountain Farm.

The dream was for adults with and without disabilities to meet around theater and film projects. What started as a small non-profit in California became a year round camp community in Vermont that ensures all bodies and minds are represented on stage and on screen, participating in life to the fullest of their abilities.

It is free, secular, grounded in friendship and common sense: we all have needs that must be met, let’s see if we can take it to another level.

Zeno creations tell original, whimsical, quirky stories that are not about disability, shifting the narrative and blurring the invisible boundaries between disabled and non-disabled.🎙️

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld, 

The website : https://www.decalespodcast.com/soutenir">https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/  ">https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine">Villa Albertine , Zeno Mountain Farm">Zeno Mountain Farm and Unapei">Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

🎙️Today on Décalés - Out of Sync, Krista talks about the art of letting go. Becoming a mother of twins at 35 inevitably rocks your world, and even more so when one of them suffers a brain injury at birth. As she entered the realities of parenting and disability, she sought for balance between problem solving mode and grief, leaning on her husband and standing up together, trusting schools and professionals when she knew how to help them at home. Current situation: the twins are leaving for college, and number three is in full adolescence.

As the neighbor of Zeno Mountain Farm">Zeno Mountain Farm, she shares how this community broadened her perspective on possibles.🎙️

💭 Décalés is a French word that embraces the feeling of being out of sync, individuality, acceptance, perspective, quirkiness – all in all: marching to the sound of your own drum.

Décalés, Out of Sync is an independent show created by Léa Hirschfeld, 

The website : https://www.decalespodcast.com/soutenir">https://www.decalespodcast.com

Instagram : https://www.instagram.com/decales_podcast/ ">https://www.instagram.com/decales_podcast/   

💙 Thank you Villa Albertine">Villa Albertine , Zeno Mountain Farm">Zeno Mountain Farm and Unapei">Unapei  for your support.

Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.