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  • Trump Calls On Congress To Pass The “Take It Down” Act—So He Can Censor His Critics

    We've opposed the Take It Down Act because it could be easily manipulated to take down lawful content that powerful people simply don't like. Last night, President Trump demonstrated he has a similar view on the bill. He wants to sign the bill into law, then use it to remove content about — him. And he won't be the only powerful person to do so. 

    Here’s what Trump said to a joint session of Congress:    

    The Senate just passed the Take It Down Act…. Once it passes the House, I look forward to signing that bill into law. And I’m going to use that bill for myself too if you don’t mind, because nobody gets treated worse than I do online, nobody. 

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    Video courtesy C-SPAN.

    The Take It Down Act is an overbroad, poorly drafted bill that would create a powerful system to pressure removal of internet posts, with essentially no safeguards. While the bill is meant to address a serious problem—the distribution of non-consensual intimate imagery (NCII)—the notice-and-takedown system it creates is an open invitation for powerful people to pressure websites into removing content they dislike. There are no penalties for applying very broad, or even farcical definitions of what constitutes NCII, and then demanding that it be removed.  

    take action

    TELL CONGRESS: "Take It Down" Has No real Safeguards  

    This Bill Will Punish Critics, and The President Wants It Passed Right Now 

    Congress should believe Trump when he says he would use the Take It Down Act simply because he's "treated badly," despite the fact that this is not the intention of the bill. There is nothing in the law, as written, to stop anyone—especially those with significant resources—from misusing the notice-and-takedown system to remove speech that criticizes them or that they disagree with.  

    Trump has frequently targeted platforms carrying content and speakers of entirely legal speech that is critical of him, both as an elected official and as a private citizen.  He has filed frivolous lawsuits against media defendants which threaten to silence critics and draw scarce resources away from important reporting work.   

    Now that Trump issued a call to action for the bill in his remarks, there is a possibility that House Republicans will fast track the bill into a spending package as soon as next week. Non-consensual intimate imagery is a serious problem that deserves serious consideration, not a hastily drafted, overbroad bill that sweeps in legal, protected speech. 

    How The Take It Down Act Could Silence People 

    A few weeks ago, a "deepfake" video of President Trump and Elon Musk was displayed across various monitors in the Housing and Urban Development office. The video was subsequently shared on various platforms. While most people wouldn't consider this video, which displayed faked footage of Trump kissing Elon Musk's feet, "nonconsensual intimate imagery," the takedown provision of the bill applies to an “identifiable individual” engaged in “sexually explicit conduct.” This definition leaves much room for interpretation, and nudity or graphic displays are not necessarily required.  

    Moreover, there are no penalties whatsoever to dissuade a requester from simply insisting that content is NCII. Apps and websites only have 48 hours to remove content once they receive a request, which means they won’t be able to verify claims. Especially if the requester is an elected official with the power to start an investigation or prosecution, what website would stand up to such a request?  

    The House Must Not Pass This Dangerous Bill 

    Congress should focus on enforcing and improving the many existing civil and criminal laws that address NCII, rather than opting for a broad takedown regime that is bound to be abused. Take It Down would likely lead to the use of often-inaccurate automated filters that are infamous for flagging legal content, from fair-use commentary to news reporting. It will threaten encrypted services, which may respond by abandoning encryption entirely in order to be able to monitor content—turning private conversations into surveilled spaces.   

    Protecting victims of NCII is a legitimate goal. But good intentions alone are not enough to make good policy. Tell your Member of Congress to oppose censorship and to oppose H.R.633. 

    take action

    Tell the house to stop "Take it down" 

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  • Meet Rayhunter: A New Open Source Tool from EFF to Detect Cellular Spying

    At EFF we spend a lot of time thinking about Street Level Surveillance technologies—the technologies used by police and other authorities to spy on you while you are going about your everyday life—such as automated license plate readers, facial recognition, surveillance camera networks, and cell-site simulators (CSS). Rayhunter is a new open source tool we’ve created that runs off an affordable mobile hotspot that we hope empowers everyone, regardless of technical skill, to help search out CSS around the world. 

    CSS (also known as Stingrays or IMSI catchers) are devices that masquerade as legitimate cell-phone towers, tricking phones within a certain radius into connecting to the device rather than a tower. 

    CSS operate by conducting a general search of all cell phones within the device’s radius. Law enforcement use CSS to pinpoint the location of phones often with greater accuracy than other techniques such as cell site location information (CSLI)  and without needing to involve the phone company at all. CSS can also log International Mobile Subscriber Identifiers (IMSI numbers) unique to each SIM card, or hardware serial numbers (IMEIs) of all of the mobile devices within a given area. Some CSS may have advanced features allowing law enforcement to intercept communications in some circumstances.

    What makes CSS especially interesting, as compared to other street level surveillance, is that so little is known about how commercial CSS work. We don’t fully know what capabilities they have or what exploits in the phone network they take advantage of to ensnare and spy on our phones, though we have some ideas. 

    We also know very little about how cell-site simulators are deployed in the US and around the world. There is no strong evidence either way about whether CSS are commonly being used in the US to spy on First Amendment protected activities such as protests, communication between journalists and sources, or religious gatherings. There is some evidence—much of it circumstantial—that CSS have been used in the US to spy on protests. There is also evidence that CSS are used somewhat extensively by US law enforcement, spyware operators, and scammers. We know even less about how CSS are being used in other countries, though it's a safe bet that in other countries CSS are also used by law enforcement.

    Much of these gaps in our knowledge are due to a lack of solid, empirical evidence about the function and usage of these devices. Police departments are resistant to releasing logs of their use, even when they are kept. The companies that manufacture CSS are unwilling to divulge details of how they work. 

    Until now, to detect the presence of CSS, researchers and users have had to either rely on Android apps on rooted phones, or sophisticated and expensive software-defined radio rigs. Previous solutions have also focused on attacks on the legacy 2G cellular network, which is almost entirely shut down in the U.S. Seeking to learn from and improve on previous techniques for CSS detection we have developed a better, cheaper alternative that works natively on the modern 4G network.

    Introducing Rayhunter

    To fill these gaps in our knowledge, we have created an open source project called Rayhunter.1 It is developed to run on an Orbic mobile hotspot (Amazon, Ebay) which is available for $20 or less at the time of this writing. We have tried to make Rayhunter as easy as possible to install and use, regardless of your level of technical knowledge. We hope that activists, journalists, and others will run these devices all over the world and help us collect data about the usage and capabilities of cell-site simulators (please see our legal disclaimer.) 

    Rayhunter works by intercepting, storing, and analyzing the control traffic (but not user traffic, such as web requests) between the mobile hotspot Rayhunter runs on and the cell tower to which it’s connected. Rayhunter analyzes the traffic in real-time and looks for suspicious events, which could include unusual requests like the base station (cell tower) trying to downgrade your connection to 2G which is vulnerable to further attacks, or the base station requesting your IMSI under suspicious circumstances. 

    Rayhunter notifies the user when something suspicious happens and makes it easy to access those logs for further review, allowing users to take appropriate action to protect themselves, such as turning off their phone and advising other people in the area to do the same. The user can also download the logs (in PCAP format) to send to an expert for further review. 

    The default Rayhunter user interface is very simple: a green (or blue in colorblind mode) line at the top of the screen lets the user know that Rayhunter is running and nothing suspicious has occurred. If that line turns red, it means that Rayhunter has logged a suspicious event. When that happens the user can connect to the device's WiFi access point and check a web interface to find out more information or download the logs. 


    Rayhunter in action

    Installing Rayhunter is relatively simple. After buying the necessary hardware, you’ll need to download the latest release package, unzip the file, plug the device into your computer, and then run an install script for either Mac or Linux (we do not support Windows as an installation platform at this time.)

    We have a few different goals with this project. An overarching goal is to determine conclusively if CSS are used to surveil free expression such as protests or religious gatherings, and if so, how often it’s occurring. We’d like to collect empirical data (through network traffic captures, i.e. PCAPs) about what exploits CSS are actually using in the wild so the community of cellular security researchers can build better defenses. We also hope to get a clearer picture of the extent of CSS usage outside of the U.S., especially in countries that do not have legally enshrined free speech protections.

    Once we have gathered this data, we hope we can help folks more accurately engage in threat modeling about the risks of cell-site simulators, and avoid the fear, uncertainty, and doubt that comes from a lack of knowledge. We hope that any data we do find will be useful to those who are fighting through legal process or legislative policy to rein in CSS use where they live. 

    If you’re interested in running Rayhunter for yourself, pick up an Orbic hotspot (Amazon, Ebay), install Rayhunter, check out the project's Frequently Asked Questions, and help us collect data about how IMSI catchers operate! Together we can find out how cell site simulators are being used, and protect ourselves and our communities from this form of surveillance.

    —

    Legal disclaimer: Use Rayhunter at your own risk. We believe running this program does not currently violate any laws or regulations in the United States. However, we are not responsible for civil or criminal liability resulting from the use of this software. If you are located outside of the US please consult with an attorney in your country to help you assess the legal risks of running this program

    • 1. A note on the name: Rayhunter is named such because Stingray is a brand name for cell-site simulators which has become a common term for the technology. One of the only natural predators of the stingray in the wild is the orca, some of which hunt stingrays for pleasure using a technique called wavehunting. Because we like Orcas, we don’t like stingray technology (though the animals are great!), and because it was the only name not already trademarked, we chose Rayhunter.
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  • Ninth Circuit Correctly Rules That Dating App Isn’t Liable for Matching Users

    The U.S. Court of Appeals for the Ninth Circuit correctly held that Grindr, a popular dating app, can’t be held responsible for matching users and enabling them to exchange messages that led to real-world harm. EFF and the Woodhull Freedom Foundation filed an amicus brief in the Ninth Circuit in support of Grindr.

    Grindr and other dating apps are possible thanks to strong Section 230 immunity. Without this protection, dating apps—and other platforms that host user-generated content—would have more incentive to censor people online. While real-world harms do happen when people connect online, these can be directly redressed by holding perpetrators who did the harm accountable.

    The case, Doe v. Grindr, was brought by a plaintiff who was 15 years old when he signed up for Grindr but claimed to be over 18 years old to use the app. He was matched with other users and exchanged messages with them. This led to four in-person meetings that resulted in three out of four adult men being prosecuted and sentenced for rape.

    The plaintiff brought various state law claims against Grindr centering around the idea that the app was defectively designed, enabling him to be matched with and to communicate with the adults. The plaintiff also brought a federal civil sex trafficking claim.

    Grindr invoked Section 230, the federal statute that has ensured a free and open internet for nearly 30 years. Section 230(c)(1) specifically provides that online services are generally not responsible for “publishing” harmful user-generated content. Section 230 protects users’ online speech by protecting the intermediaries we all rely on to communicate via dating apps, social media, blogs, email, and other internet platforms.

    The Ninth Circuit rightly affirmed the district court’s dismissal of all of the plaintiff’s claims. The court held that Section 230 bars nearly all of plaintiff’s claims (except the sex trafficking claim, which is exempted from Section 230). The court stated:

    Each of Doe’s state law claims necessarily implicates Grindr’s role as a publisher of third-party content. The theory underpinning Doe’s claims for defective design, defective manufacturing, and negligence faults Grindr for facilitating communication among users for illegal activity….

    The Ninth Circuit’s holding is important because many plaintiffs have tried in recent years to plead around Section 230 by framing their cases as seeking to hold internet platforms responsible for their own “defective designs,” rather than third-party content. Yet, a closer look at a plaintiff’s allegations often reveals that the plaintiff’s harm is indeed premised on third-party content—that’s true in this case, where the plaintiff exchanged messages with the adult men. As we argued in our brief:

    Plaintiff’s claim here is based not on mere access to the app, but on the actions of a third party once John Doe logged in—messages exchanged between a third party and Doe, and ultimately, on unlawful acts occurring between them because of those communications.

    Additionally, courts generally have concluded that an internet platform’s features that relate to how users can engage with the app and how third-party content is displayed and organized, are also “publishing” activities protected by Section 230.

    As for the federal civil sex trafficking claim, the Ninth Circuit held that the plaintiff’s allegations failed to meet the statutory requirements. The court stated:

    Doe must plausibly allege that Grindr ‘knowingly’ sex trafficked a person by a list of specified means. But the [complaint] merely shows that Grindr provided a platform that facilitated sharing of messages between users.

    While the facts of this case are no doubt difficult, the Ninth Circuit reached the correct conclusion. Our modern communications are mediated by private companies, and any weakening of Section 230 immunity for internet platforms would stifle everyone’s ability to communicate, as companies would be incentivized to engage in greater censorship of users to mitigate their legal exposure.

    This does not leave victims without redress—they may seek to hold perpetrators responsible directly. Importantly in this case, three of the perpetrators were held criminally liable. And should facts show that an online service participated in criminal conduct, Section 230 would not block a federal prosecution. The court’s ruling demonstrates that Section 230 is working as Congress intended.

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  • EFF In Conversation With Ron Deibert on Chasing Shadows

    Join EFF's Cindy Cohn and Eva Galperin in conversation with Ron Deibert of the University of Toronto’s Citizen Lab, to discuss Ron’s latest book: Chasing Shadows: Cyber Espionage, Subversion and the Global Fight for Democracy. Chasing Shadows provides a front-row seat to a dark underworld of digital espionage, dark PR, and subversion. The book provides a gripping account of how the Citizen Lab, the world’s foremost digital watchdog, has uncovered dozens of cyber espionage cases and protects people in countries around the world. Called “essential reading” by Margaret Atwood, it’s a chilling reminder of the invisible invasions happening on smartphones and computers around the world.

    LEARN MORE


    When:

    Monday, March 10, 2025 
    7:oo pm - 9:o0 pm (PT)

    Where:

    In-person:
    City Lights Bookstore
    261 Columbus Avenue
    San Francisco, CA 94133

    Virtual:
    Zoom

    About the Author:

    Ronald J. Deibert is the founder and director of the Citizen Lab, a world-renowned digital security research center at the University of Toronto. The bestselling author of Reset: Reclaiming the Internet for Civil Society and Black Code: Surveillance, Privacy, and the Dark Side of the Internet, he has also written many landmark articles and reports on espionage operations that infiltrated government and NGO computer networks. His team’s exposés of the spyware that attacks journalists and anti-corruption advocates around the world have been featured in The New York Times, The Washington Post, Financial Times, and other media. Deibert has received multiple honors for his cutting-edge work, and in 2022 he was appointed an Officer of the Order of Canada—the country’s second-highest honor of merit.

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  • Fresh Threats to Privacy Around the Globe | EFFector 37.2

    EFF is here to keep you up-to-date with the latest news in the world of civil liberties and human rights online with our EFFector newsletter!

    This edition of the newsletter covers Apple's recent decision to turn off Advanced Data Protection for users in the U.K., our how-to guide for limiting Meta's ability to collect and monetize your personal data, and our recent victory against the government's use of Section 702 to spy on Americans.

    You can read the full newsletter here, and even get future editions directly to your inbox when you subscribe! Additionally, we've got an audio edition of EFFector on the Internet Archive, or you can view it by clicking the button below:

    LISTEN ON YouTube

    EFFECTOR 37.2 - Fresh Threats to Privacy Around the Globe

    Since 1990 EFF has published EFFector to help keep readers on the bleeding edge of their digital rights. We know that the intersection of technology, civil liberties, human rights, and the law can be complicated, so EFFector is a great way to stay on top of things. The newsletter is chock full of links to updates, announcements, blog posts, and other stories to help keep readers—and listeners—up to date on the movement to protect online privacy and free expression. 

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  • EFF to California's Supreme Court: Protect the Privacy of Internet Users' Communications

    EFF asked the California Supreme Court not to weaken the Stored Communications Act, a 1986 federal law that restricts how providers can disclose the content of your communications to the government or private parties.

    The law is built on the principle that you have a reasonable expectation of privacy that providers like Snap and Meta will not disclose your communications to third parties, even though the providers have access to those communications as they are stored on their systems. In an amicus brief, we urged the court to uphold these privacy protections, as they have for the past 40 years. EFF filed the brief along with the Center for Democracy & Technology and the Mozilla Corporation.

    A lower court decision got it wrong. And we are urging the California Supreme Court to overrule that decision. If the lower court's ruling is affirmed, Meta, Snap, and other providers would be permitted to voluntarily disclose the content of their users' communications to any other corporation, the government, or any individual for any reason.

    We previously helped successfully urge the California Supreme Court to hear this case. 

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  • Anti-Surveillance Mapmaker Refuses Flock Safety's Cease and Desist Demand

    Flock Safety loves to crow about the thousands of local law enforcement agencies around the United States that have adopted its avian-themed automated license plate readers (ALPRs). But when a privacy activist launched a website to map out the exact locations of these pole-mounted devices, the company tried to clip his wings.  

    The company sent DeFlock.me and its creator Will Freeman a cease-and-desist letter, claiming that the project dilutes its trademark. Suffice it to say, and to lean into ornithological wordplay, the letter is birdcage liner.  

    Representing Freeman, EFF sent Flock Safety a letter rejecting the demand, pointing out that the grassroots project is well within its First Amendment rights.  

    Flock Safety’s car-tracking cameras have been spreading across the United States like an invasive species, preying on public safety fears and gobbling up massive amounts of sensitive driver data. The technology not only tracks vehicles by their license plates, but also creates “fingerprints” of each vehicle, including the make, model, color and other distinguishing features. This is a mass surveillance technology that collects information on everyone, regardless of whether they are connected to a crime. It has been misused by police to spy on their ex-partners and could be used to target people engaged in First Amendment activities or seeking medical care.  

    Through crowdsourcing and open-source research, DeFlock.me aims to “shine a light on the widespread use of ALPR technology, raise awareness about the threats it poses to personal privacy and civil liberties, and empower the public to take action.”  While EFF’s Atlas of Surveillance project has identified more than 1,700 agencies using ALPRs, DeFlock has mapped out more than 16,000 individual camera locations, more than a third of which are Flock Safety devices.  

    Flock Safety is so integrated into law enforcement, it’s not uncommon to see law enforcement agencies actually promoting the company by name on their websites. The Sussex County Sheriff’s website in Virginia has only two items in its menu bar: Accident Reports and Flock Safety. The name “DeFlock,” EFF told the vendor, represents the project’s goal of “ending ALPR usage and Flock’s status as one of the most widely used ALPR providers.” It’s accurate, appropriate, effective, and most importantly, legally protected.  

     We wrote:  

    Your claims of dilution by blurring and/or tarnishment fail at the threshold, without even needing to address why dilution is unlikely. Federal anti-dilution law includes express carve-outs for any noncommercial use of a mark and for any use in connection with criticizing or commenting on the mark owner or its products. Mr. Freeman’s use of the name “DeFlock” is both.

    Flock Safety’s cease and desist later is just the latest in a long list of groups turning to bogus intellectual property claims to silence their critics. Frequently, these have no legal basis and are designed to frighten under-resourced activists and advocacy groups with high-powered law firm letterheads. EFF is here to stand up against these trademark bullies, and in the case of Flock Safety, flip them the bird.  

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  • EFF to UK PM Starmer: Call Sisi to Free Alaa and Save Laila

    UK Prime Minister Keir Starmer made a public commitment on February 14 to Laila Soueif, the mother of Alaa Abd El Fattah, stating “I will do all that I can to secure the release of her son Alaa Abd el-Fattah and reunite him with his family.” While that commitment was welcomed by the family, it is imperative that it now be followed up with concrete action.

    Laila has called on PM Starmer to speak directly to President Sisi of Egypt. Starmer has written to Sisi twice, in December and January, and his National Security Adviser, Jonathan Powell, discussed Alaa with Egyptian authorities in Cairo on January 2. UK authorities have not made public any further contact with Egypt since.

    “all she wants is for [Alaa] to be free now that he served the full five year sentence, and after they stole 11 years of his and [his son] Khaled’s life.”

    Laila, who has been on hunger strike since Alaa’s intended release date in September, was hospitalized on Monday night after her blood sugar dropped to worrying new levels. A letter published today from her NHS doctor states that there is now immediate risk to her life including further deterioration or death. Nevertheless, Laila remains steadfast in her commitment to refrain from eating until her son is freed.

    In the words of Alaa’s sister Mona Seif: “all she wants is for [Alaa] to be free now that he served the full five year sentence, and after they stole 11 years of his and [his son] Khaled’s life.”

    Alaa is a British citizen, and as such his government owes him more than mere lip service. The UK government can and must use every tactic available to them, including:

    • Changing travel advice on the Foreign Office’s website to reflect the fact that citizens arrested in Egypt cannot be guaranteed consular access
    • Convening a joint meeting of ministers and officials of the Foreign, Commonwealth and Development Office; Ministry of Defence; and Department of Business and Trade to discuss a unified strategy toward Alaa’s case
    • Summoning the Egyptian ambassador in London and restricting his access to Whitehall if Alaa is not released and returned to the UK
    • Announcing a moratorium on any governmental assistance or promotion of new Foreign Direct Investments into Egypt, as called for by 15 NGOs in November.
    • EFF once again calls on Prime Minister Starmer to pick up the phone and call Egyptian President Sisi to free Alaa and save Laila—before it’s too late.

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    • The Senate Passed The TAKE IT DOWN Act, Threatening Free Expression and Due Process

      Earlier this month, the Senate passed the TAKE IT DOWN Act (S. 146), by a voice vote. The bill is meant to speed up the removal of non-consensual intimate imagery, or NCII, including videos that imitate real people, a technology sometimes called “deepfakes.” 

      Protecting victims of these heinous privacy invasions is a legitimate goal. But good intentions alone are not enough to make good policy. As currently drafted, the TAKE IT DOWN Act mandates a notice-and-takedown system that threatens free expression, user privacy, and due process, without addressing the problem it claims to solve. 

      This misguided bill can still be stopped in the House of Representatives. Help us speak out against it now. 

      take action

      "Take It Down" Has No real Safeguards  

      Before this vote, EFF, along with the Center for Democracy & Technology (CDT), Authors Guild, Demand Progress Action, Fight for the Future, Freedom of the Press Foundation, New America’s Open Technology Institute, Public Knowledge, Restore The Fourth, SIECUS: Sex Ed for Social Change, TechFreedom, and Woodhull Freedom Foundation, sent a letter to the Senate, asking them to change this legislation to protect legitimate speech that is not NCII. Changes are also needed to protect users who rely on encrypted services.

      The letter explains that the bill’s “takedown” provision applies to a much broader category of content—potentially any images involving intimate or sexual content at all—than the narrower NCII definitions found elsewhere in the bill. The bill contains no protections against frivolous or bad-faith takedown requests. Lawful content—including satire, journalism, and political speech—could be wrongly censored. The legislation requires that apps and websites remove content within 48 hours, meaning that online service providers, particularly smaller ones, will have to comply so quickly to avoid legal risk that they won’t be able to verify claims

      This would likely lead to the use of often-inaccurate automated filters that are infamous for flagging legal content, from fair-use commentary to news reporting. Communications providers that offer users end-to-end encrypted messaging, meanwhile, may be served with notices they simply cannot comply with, given the fact that these providers cannot view the contents of messages on their platforms. Platforms may respond by abandoning encryption entirely in order to be able to monitor content—turning private conversations into surveilled spaces. 

      Congress should focus on enforcing and improving the many existing civil and criminal laws that address NCII, rather than opting for a broad takedown regime that is bound to be abused. Tell your Member of Congress to oppose censorship and to oppose S. 146. 

      take action

      Tell the house to stop "Take it down" 



      Further reading:

      • EFF and allies letter opposing S. 146, the TAKE IT DOWN Act. 
      • 0 min
      • New Yorkers Deserve Stronger Health Data Protections Now—Governor Hochul Can Make It Happen

        With the rise of digital surveillance, securing our health data is no longer just a privacy issue—it's a matter of personal safety. In the wake of the Supreme Court's reversal of Roe v. Wade and the growing restrictions on abortion and gender-affirming care, protecting our personal health data has never been more important. And in a world where nearly half of U.S. states have either banned or are on the brink of banning abortion, unfettered access to personal health data is an even more dangerous threat.

        That’s why EFF joins the New York Civil Liberties Union (NYCLU) in urging Governor Hochul to sign the New York Health Information Privacy Act (A.2141/S.929). This legislation is a crucial step toward safeguarding the digital privacy of New Yorkers at a time when health data is increasingly vulnerable to misuse.

        Why Health Data Privacy Matters

        When individuals seek reproductive health care or gender-affirming care, they leave behind a digital trail. Whether through search histories, email exchanges, travel itineraries, or data from period-tracker apps and smartwatches, every click, every action, and every step is tracked, often with little or no consent. And this kind of data—however collected—has already been used to criminalize individuals who were simply seeking health care. 

        Unlike HIPAA, which regulates 'covered entities'—providers of treatment, payors/insurers—who are part of the traditional health care system and their ‘business associates,’ this bill would expand its reach to cover a broad range of 'new' entities. These include data brokers, tech companies, and others in the digital ecosystem, who can access and share this sensitive health information. The result is a growing web of entities collecting personal data, far beyond the scope of traditional health care providers.

        For example, in some states, individuals have been investigated or even prosecuted based on their digital data, simply for obtaining abortion care. In a world where our health choices are increasingly monitored, the need for robust privacy protections is clearer than ever. The New York Health Information Privacy Act is the Empire State’s opportunity to lead the nation in protecting its residents.

        What Does the Health Information Privacy Act Do?

        At its core, the New York Health Information Privacy Act would provide vital protections for New Yorkers' electronic health data. Here’s what the bill does:

        • Prohibits the sale of health data: Health data is not a commodity to be bought and sold. This bill ensures that your most personal information is not used for profit by commercial entities without your consent.
        • Requires explicit consent: Before health data is processed, New Yorkers will need to provide clear, informed consent. The bill limits processing (storing, collecting, using) of personal data to “strictly necessary” purposes only, minimizing unnecessary collection.
        • Data deletion rights: Health data will be deleted by default after 60 days, unless the individual requests otherwise. This empowers individuals to control their data, ensuring that unnecessary information doesn’t linger.
        • Non-discrimination protections: Individuals will not face discrimination or higher costs for exercising their privacy rights. No one should be penalized for wanting to protect their personal information.
        • Why New York Needs This Bill Now

          The need for these protections is urgent. As digital surveillance expands, so does the risk of personal health data being used against individuals. In a time when personal health decisions are under attack, it’s crucial that New Yorkers have control over their health information. By signing this bill, Governor Hochul would ensure that out-of-state actors cannot easily access New Yorkers’ health data without due process, protecting individuals from legal actions in states that criminalize reproductive and gender-affirming care.

          However, this bill still faces a critical shortcoming—the absence of a private right of action (PRA). Without it, individuals cannot directly sue companies for privacy violations, leaving them vulnerable. Accountability would fall solely on the Attorney General, who would need the resources to quickly and consistently enforce the new law. Nonetheless, the Attorney General’s role will now be critical in ensuring this bill is upheld, and they must remain steadfast in implementing these protections effectively.

          Governor Hochul: Sign A.2141/S.929

          The importance of this legislation cannot be overstated—it is about protecting people from potential legal actions related to their health care decisions. By signing this bill, Governor Hochul would solidify New York’s position as a leader in health data privacy and take a firm stand against the misuse of personal information.

          New York has the power to protect its residents and set a strong precedent for privacy protections across the nation. Let’s ensure that personal health data remains in the hands of those who own it—the individuals themselves.

          Governor Hochul: This is your chance to make a difference. Let’s take action now to protect what matters most—our health, our data, and our rights. Sign A.2141/ S.929 today.

          0 min

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