Episodes - Fading Memories Podcast

Dementia Caregiving Guide for Kids & Teens

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When a family gets a diagnosis of a dementia causing disease, it's normal to want to shield kids and even teens from the news. However, with the right support, they can be an invaluable supportive caregiver to their loved one. Here are some tips on how to help them navigate that role.

Open Communication:

  • Talk Honestly: Explain dementia in an age-appropriate way. Address their fears and frustrations openly.
  • Listen Actively: Validate their feelings. Let them know it's okay to feel sad, angry, or confused.

    • Supportive Caregiving:

    • Find Age-Appropriate Tasks: Let them help with simple tasks like setting reminders or engaging in familiar activities with their loved one.
    • Focus on Strengths: Highlight their unique ability to connect with their loved one through shared interests or hobbies.

      • Maintaining Balance:

      • Set Boundaries: Acknowledge their need for social time and hobbies. Schedule respite care or involve other family members.
      • Support Groups: Connect them with online or in-person groups for young caregivers. They'll find others facing similar situations.

        • By involving them in care while respecting their needs, teens can be amazing caregivers while still chasing their dreams.

        Our Guest: Alex Schumacher

        Alex was a tween when his family learned his grandmother had Alzheimer's. As an adult, he is now the author of the graphic novel "The Effects of Pickled Herring". This novel is a warm and funny, coming of age story. It's a story that reminds s that life pulls us in many directions yet the one thing that can ground us is the ones we love.

        Grab the book here!

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        CHAPTERS:


        00:00 - Intro
        00:22 - The Pickled Herring
        05:24 - Alex's Caregiving Experience
        10:00 - You Need Your Grandma
        12:44 - Talking to Kids about Alzheimer's
        18:39 - Education and Training for Caregivers
        22:58 - Caregiver Advice for Families
        27:58 - Encouraging Kids to Share Joys
        31:05 - Kids' Impact on Dementia Care
        34:43 - Importance of Communication
        38:57 - Adult Day Programs for Families
        45:55 - Sequel

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        Related Episodes:

        Kids as Alzheimer’s Caregivers

        My Grandma Has Dementia – Helping Kids Understand

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          Episodes - Fading Memories PodcastBy Jennifer Fink