Dementia & Families: A Balancing Act

In this episode, Kelly explores why repetition develops in a brain affected by dementia, what it reveals about your loved one's inner experience, and how shifting your perspective can transform frustration into insight. Because understanding the why behind these behaviors is the first step to responding with more confidence and less stress.

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Resources

Behavior Management Strategies – Understanding Dementia Behaviors: Repetitive Speech or Actions (Perseveration)

https://www.caregivercalifornia.org/2023/04/21/behavior-management-strategies-understanding-dementia-behaviors-repetitive-speech-or-actions-perseveration/

Managing Repetition in Alzheimer’s Behavior: Caregiver Tips

https://www.alzra.org/alzheimers-behavior-issues/repetition/

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

Don't wait for a crisis. If someone you love is showing early signs of memory loss, the time to plan is now. In this episode, Kelly walks you through how to build a simple, realistic three-year care roadmap before urgency makes the decisions for you.

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

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Please consider donating to support A BALANCING ACT!

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Resources

https://www.alzheimers.gov/life-with-dementia/planning-after-diagnosis#tips-for-planning

https://www.alzheimers.gov/life-with-dementia/planning-after-diagnosis#tips-for-planning

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

This episode explores dementia-related hoarding, why it happens, what it means, and how families can respond with compassion. Kelly reframes hoarding not as stubbornness or manipulation, but as the brain's way of coping with memory loss. As dementia progresses, people anchor their sense of identity, security, and memory to physical objects, making removal feel threatening and distressing.

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

Resources

https://www.agingcare.com/articles/how-to-handle-hoarding-behaviors-in-dementia-patients-133679.htm

https://www.alzheimers.org.uk/about-dementia/stages-and-symptoms/dementia-symptoms/hiding-hoarding-losing

https://alzfdn.org/alzheimers-today-volume-17-number-3/hoarding-and-dementia/

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

This episode explores why people with dementia often experience significant weight loss and changes in eating and drinking habits. Kelly explains how aging can affect eat and drinking, as well as how dementia can disrupt hunger and thirst signals, sensory processing, and the brain's ability to complete the steps involved in eating. She includes practical strategies to simplify mealtimes, prevent dehydration, and reduce caregiver stress.

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

Resources

https://www.dementia.org.au/living-dementia/home-life/eating-and-dementia

https://www.alzheimers.org.uk/get-support/living-with-dementia/changes-eating-habits-food-preference

https://www.alz.org/help-support/caregiving/daily-care/food-eating?utm_source=google-grant&utm_medium=paidsearch&utm_campaign=google_grant&gad_source=1&gad_campaignid=90372426&gbraid=0AAAAAD14_NhWnrr-bvx0B-bwux9JRzUaF&gclid=Cj0KCQjw_IXQBhCkARIsADqELbJElVmccAgy8omnYc4mqN8eYv6EEpVG6CDSPovQC4NZPdFyNcBQEisaAsHQEALw_wcB

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

When a loved one with dementia refuses their medications, it can feel like an emergency. The risks are real, the pressure is immediate, and the instinct to push for compliance is strong. But in many cases, that resistance is not about defiance—it’s communication. In this episode, Kelly breaks down what’s really behind medication refusal in memory loss, and guides us through methods focusing on protecting both safety and dignity, offering a more effective way to navigate these moments without escalating conflict or damaging trust.

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

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Resources:

https://www.aarp.org/caregiving/medical/parent-refusing-medication/

https://www.goodrx.com/health-topic/senior-health/elderly-parent-wont-take-medication?srsltid=AfmBOoqVi7cqZ_fmYk3NlUY5Ebcup3fZfdLOlpzP1V9NC7NT18G5-8ap

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

In this episode, Kelly challenges the idea that cognitive activities like puzzles and card games are always beneficial for loved ones with dementia. She explains that as the disease progresses, these activities can create feelings of being tested rather than included, leading to withdrawal and disconnect. Kelly offers practical strategies for adapting activities and communication so loved ones feel valued, contributing, and connected rather than measured.

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

Resources

https://www.aarp.org/caregiving/basics/dementia-tasks-activities/

https://www.alz.org/help-support/resources/kids/family-activities

https://www.alz.org/help-support/caregiving/daily-care/activities?utm_source=google-grant&utm_medium=paidsearch&utm_campaign=google_grant&gad_source=1&gad_campaignid=90372426&gbraid=0AAAAAD14_NgGjuKB4Dw1mGyJDvnDGMqxl&gclid=CjwKCAjw7vzOBhBxEiwAc7WNrwtO_DChShBVoX_S2UtM2o7ZVpHaXZnPK5aa2Z-AP8NB16rxpOVQNBoCZ84QAvD_BwE

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

In this episode, Kelly explores how a medical crisis, such as a fall or infection, often becomes the unexpected turning point when families first recognize the true extent of a loved one's dementia. From cognitive screening in the hospital to rehabilitation settings where the challenges become even more apparent, these moments, though emotionally overwhelming, can ultimately bring clarity and open the door to more realistic, proactive planning for the road ahead.

Follow this episode with our "After the Diagnosis" episode:

https://rss.com/podcasts/a-balancing-act/1796945/

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

Resources:

https://hign.org/consultgeri/try-this-series/recognition-dementia-hospitalized-older-adults

https://www.ourparents.com/senior-health/avoiding-signs-of-dementia

https://www.tuftsmedicine.org/about-us/news/recognizing-dementia-guide-early-symptoms-signs#

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

In this episode, Kelly tackles the ethical tension caregivers face between keeping loved ones with dementia safe and preserving their independence and sense of self. Through real-life stories, she introduces the concept of the "right to risk" — the idea that autonomy and uncertainty are inseparable, even for vulnerable adults. Kelly encourages "negotiated risk": practical home and communcative adaptations as alternatives to simply eliminating activities. Good caregiving isn't about preventing every mistake, but helping someone continue to live a life that still feels like their own.

FACEBOOK PAGE: Please leave questions for Kelly, or set up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

RESOURCES:

https://www.a24direct.co.uk/blog/balancing-independence-with-safety-in-home-based-care-plans#:~:text=While%20promoting%20autonomy%20is%20essential,Communicating%20Effectively%20with%20Families

https://alzheimer.ca/en/help-support/im-caring-person-living-dementia/providing-day-day-care/decision-making-respecting

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

In this episode, Kelly explores how families often fall into denial when a loved one begins to show signs of dementia. And sometimes, even after the formal diagnosis. Kelly emphasizes this isn't about shame, but understanding the causes of denial and the risks associated with postponing acceptance.

FACEBOOK PAGE: Please leave questions for Kelly, or set-up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

RESOURCES:

https://wellnessstrategiesgroup.com/2025/04/family-denial-of-dementia/

https://www.bridgesbyepoch.com/2019/06/17/dangers-denial-dementia-and-peacefulness-resolution-1560780615/

https://homecareassistancedayton.com/dementia-diagnosis-denial/

MAYO CLINIC SUPPORT GROUP:

https://connect.mayoclinic.org/group/caregivers/

ALZHEIMER'S ASSOCIATION SUPPORT GROUPS:

https://www.alz.org/help-support/community/support-groups

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.

Today's focus is on ways to capitalize on and modify the home environment to support a loved one with Dementia. Kelly walks listeners through thoughtful home modifications that can act as an additional caregiver by reducing cognitive demands on people living with dementia. The results show respect for the person with dementia while reducing frustration for both caregivers and their loved ones. By designing around dementia-related brain changes, homes can help preserve independence and safety while reducing caregiver burden.

FACEBOOK PAGE: Please leave questions for Kelly, or set-up a chat!

https://www.facebook.com/profile.php?id=61573800764103

Please consider donating to support A BALANCING ACT!

https://buymeacoffee.com/navigatingmemoryloss

RESOURCES:

Room-by-Room Guide for Caregivers

https://alzfdn.org/wp-content/uploads/2021/03/The-Apartment-Guide-web.pdf

10 Ways to Home Safety

https://www.alzheimers.org.uk/blog/10-ways-make-your-home-dementia-friendly

The information shared in this podcast is for EDUCATIONAL AND INFORMATIONAL PURPOSES only, and should not be considered a substitute for medical advice. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others, This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Kelly A. Bertenshaw, any guests or contributors to the podcast, or any employees, associates, or affiliates of A Balancing Act: Helping Families Navigate Memory Loss be responsible for damages arising from the use of this podcast.