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Dementia Research Charity Chatathon episodes
- How is research making a visit to the hospital better for people living with dementia
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Courtney Genge, Program Adviser for the federal ageing research program, National Research Council CanadaI have spent the last few years researching Dementia in the emergency department using a human factors framework to understand the safety implications of receiving care in this setting. My work is grounded in participatory research approaches and utilises co-production and collaborative research partnerships with people living with dementia - @courtneyjshaw1Dr Emily Jones, Senior Matron for Medicine at Portsmouth Hospital University NHS Trust. In my clinical academic doctorate I explored how the work system of an acute hospital impacted nursing staff's capacity to care for people with dementia. The findings indicated that nurses are driven by the priorities of the organisation, which unfortunately is not high quality dementia care but patient flow and patient safety initiatives. Nurses struggle with feelings of guilt and fear with regards to their work, guilt for not providing good care but fear of not completing the task "visible" to the organisation. The research raises questions about nursing autonomy and decision making, particularly with regards to the organisation of their work and also how we make dementia care tangible. @emilyjonesmed26 min - Making care homes great places, providing great care and great homes - Part 2
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Claire Surr, Professor of Dementia Studies, Director of the Centre for Dementia Research, Leeds Beckett University. Claire works in dementia care and services research. She recently completed the DCM EPIC Study, What Works Study (components of effective dementia training) and CanDem Study (experiences of cancer treatment and care by people with dementia) - @clairesurrDr Laura Booi, Research Associate, Newcastle University. Laura's research brings together international dementia advocacy, and patient-public-involvement, engaging both the next generation of dementia focused leaders as well as marginalized, often unheard voices affected by dementia. As a trained social gerontologist, she has spent the last dozen years working towards understanding and making long-term residential care for dementia better for those working and living in this sector - @DementiaHealthDr Victoria Shepherd, Research Associate, Cardiff University. Victoria is involved in the design and conduct of clinical trials, with a particular interest in the methodological aspects of care home research. Her research primarily focuses on addressing the ethical and practical challenges of involving adults who lack capacity to consent in research, and developing interventions to support decision-making by consultees/legal representatives - @VickyLShepherd27 min - Risky Alzheimer's Genes and Unlocking CellsOn the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Hazel Hall-Roberts, Postdoctoral Researcher, University of Oxford (Now UK Dementia Research Institute, Cardiff University). I work on risk genes for Alzheimer's disease that are expressed highly in microglia, and I study them in a dish using human induced pluripotent stem cell models of microglia - @HazelLRobertsDr Mark Dallas, Associate Professor Neuroscience, University of Reading. My work looks at non neuronal cells and their potential to combat Alzheimer's. Cellular work looking a ion channels on glial cells and changes in their function long before clinical presentation. In addition, we are looking at the ability of carbon monoxide to suppress amyloid toxicity and be a neuroprotectant - @drmarkdallas28 min - The Science - Researching what causes Alzheimer's
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Sam Moxon, Research Associate, The University of Manchester (now Birmingham) - I am a biomaterials scientist seeking to apply biomedical engineering principals to the study of dementia. I work in Prof Nigel Hooper's research group generating 3D culture platforms for probing the underlying mechanisms of Alzheimer's Disease and Vascular Dementia - @DrSamMoxon
Louise Serpell, Professor of Biochemistry, University of Sussex - I lead a team of researchers, investigating the causes of dementia, protein misfolding mechanisms, structure and toxicity. With a particular interest in Neuronal damage and the APOE genes - @Serpell1
27 min - NHS Dementia Care & A Blood Test for Dementia
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Amanda Heslegrave, Senior Research Fellow, UK Dementia Research Institute at UCL. I collaborate with clinical researchers to measure biomarkers of neurodegeneration in a variety of biofluids, most topical right now are blood biomarkers which we are able to measure with the use of super sensitive assay technology - @ajh1269
Dr Josie Jenkinson, Consultant Psychiatrist for Older People, Surrey & Borders Partnership NHS Foundation Trust. I am an NHS doctor and researcher, focusing on long-term specialist continuing care and health services research. I am particularly interested in deliberate self harm in older adults, delirium and dementia care pathways.
26 min - The Economics of Dementia and finding New Treatments in Old Drugs
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Danielle Newby, Post Doctoral Researcher, Department of Psychiatry, University of Oxford. My research is focused on using existing data such as GP records to find drugs used to treat other diseases such as hypertension that could be used for dementia prevention and the possibility of dementia prevention using repurposed drugs - @Danielle_Newby
Martin Knapp, Professor of Health and Social Care Policy, London School of Economics. I am Professor of Health and Social Care Policy & Professorial Research Fellow in the Care Policy and Evaluation Centre (CPEC; formerly PSSRU). Since 2009, I have also been Director of the School for Social Care Research, part of the NIHR. My main research interests are in the areas of social care, child and adult mental health, dementia and autism. Much of my work uses economic arguments and evidence to inform policy discussion and influence practice development. My research has wide-ranging impacts on policy and practice in a number of fields - @Knappem
30 min - Making Care Homes great places, providing great care & great homes
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Leah Hewer-Richards, PhD Student, University of Southampton - I am researching the impact of the COVID-19 pandemic on the provision of continence care in residential care homes for people with a dementia. I will be looking at how fears around contamination may have changed continence care practices, particularly in relation to restricted access to PPE. I will also be looking at stigma associated with continence care and working within a care home during the pandemic - @leahlearns_
Dr Rachel Daly, Professional and Practice Development Facilitator, Dementia UK - I am leading an Appreciative Inquiry study to understand the everyday decisions that people living with dementia and communication difficulties make and share in care homes. Also how and with whom they share those decisions. Participants (people living with dementia and staff and family care partners) designed and implemented interventions to maintain and improve shared everyday decision-making practice - @dementiaventure
Dr Alys Griffiths, Senior Research Fellow, Leeds Beckett University (now at University of Liverpool) I do care homes research, including a secondment as an embedded researcher in a care home one day per week. I'm interested in outcome measures, from the perspective of their development and validation, and ensuring their appropriate use, allowing people with dementia the chance to participate in research wherever possible - @alysgriffiths_
23 min - All about Frontotemporal dementia
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Imogen Swift Research Assistant, UK Dementia Research Institute at UCL. Imogen is involved in developing novel fluid biomarkers for frontotemporal dementia (FTD). With a particular focus on developing CSF and blood-based markers for genetic FTD caused by GRN mutations. Imogen works within the Fluid Biomarker team at the Dementia Research Institute with Dr Amanda Heslegrave and the FTD UCL team at the Dementia Research Centre with Jon Rohrer. She is also involved in managing the biobank for a number of dementia studies including GENFI which involves coordinating sample collection from 27 sites across the world - @immy_swift
Dr Lucy Russell Research Fellow, Dementia Research Centre, University College London. Lucy works with Dr Rohrer on a project called GENFI that aims to follow individuals with a genetic form of FTD. Her current role is to act as the FTD Prevention Initiative (FPI) co-ordinator, working with GENFI and other large cohort studies across the world as well as pharmaceutical companies and consortium groups to get as many clinical trials up and running as soon as possible. Additionally Lucy is involved in recruiting individuals to the one (and only) FTD trial currently running in the UK. Her specific interests and PhD looked at social interactions with individuals with Dementia, as well as trying to developing novel eye-tracking tasks that are more sensitive to change earlier in the disease course than what current assessments currently are able to do.
Dr Martina Bocchetta Senior Research Fellow, Dementia Research Centre, UCL. With funding from Alzheimer's Society, Martina investigates the changes that occur in the brain in the genetic forms of FTD. Using different neuroimaging techniques to measure these changes on MRIs, hoping to identify markers of disease onset and progression to be used in clinical trials - @bocchettaM
Mica Clarke PhD Candidate, University College London. Mica is investigating new ways to track the progression of disease in FTD. She is using a type of brain imaging to do this called PET imaging (positron emission tomography), which allows us to look at certain proteins in the brain via brain scans that might be involved in the disease process - @mtmclarke
Dr Aitana Sogorb Esteve Postdoctoral Research Fellow, UK Dementia Research Institute at UCL Atina is looking for novel biomarkers and biomarker panels to diagnose the different aspects of FTD - @aitanasogorb
48 min - Living at Home Independently and making Technology Help People Living with Dementia
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at http://www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Clarissa Giebel Research Fellow, University of Liverpool. Clarissa's research is looks at how people with dementia can be supported to live independently at home, and how we can address inequalities that might hinder them from getting the care they need. She has also recently been researching the impact of the Coronavirus pandemic on people living with dementia, and issues with social care - @clarissagiebel
Sarah Wallcook PhD Student, Karolinska Institutet, Sweden. Sarah's research focuses on how everyday technology shapes, facilitates and hinders the everyday life of people with dementia, with a particular interest in rural contexts. Her patient and pubic involvement activities work in partnership with the Focus on Dementia Network group in Cumbria and are aimed at complementing and supporting the wider participatory ecosystem of the rural area in which they take place - @sarah_wallcock ( Updated Jan 2023 - Now Dr Sarah Wallcook ).
Monica Leverton PhD Student, Division of Psychiatry, University College London. Monica's PhD research uses an ethnographic approach to explore the role of homecare workers in supporting independence at home in people living with dementia. Her work has also looks at the training and support needs of homecare workers who provide care to people living with dementia, to inform a training intervention for the homecare sector - @monicaleverton (Updated Jan 2023 - Now Dr Monica Leverton at Kin's College London)
26 min - Neuropeptides, Cells and Dipeptides - Water Parks & Messaging in the Brain
On the 7th September 2020, Adam Smith hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at www.chatathon.uk.
In a way that everyone can understand, this video features Adam talking with:
Dr Emily Maguire, Research Associate, UK Dementia Research Institute at Cardiff University. Emily researches the use of human stem cells which she differentiates into brain cells to understand the pathology of Alzheimer's disease.
Dr Sarah Ryan, Alzheimer's Society Research Fellow, University of Manchester. Sarah is investigating mechanisms of neurodegeneration in C9orf72 FTD, particularly those caused by the dipeptides arising from the C9 expansion - @geekazoid.
Dr James Quinn, Neurology Research Fellow, Massachusetts General Hospital, USA (moved since recording). James studies neuropeptides in neurodegenerative and psychiatric diseases to unravel disease mechanisms, working to identify new diagnostic biomarkers (something that indicated someone had dementia, and the type), and novel therapeutic targets - @tweetwithquin.
28 min
About Dementia Research Charity Chatathon
From the publisher's feed
The Dementia Research Charity Chatathon a bi-annual event last held in December 2022.
This podcast shares the recordings from the 12.5 hour marathon livestreams. Listen or watch, as Adam Smith interviews researchers working across all areas of discovery to beat Alzheimer's disease and all forms of dementia.
http://www.chatathon.uk