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In a world of burnout, Marilyn Raichle made a unique discovery: her relationship with her mom could not function as caregiver and care recipient, but as mutual care partners.
Marilyn is a former care partner alongside her mom Jean, who lived with Alzheimer’s disease. While she was originally forced into this role, Marilyn’s perspective changed when Jean enrolled in art classes. Marilyn later wrote a memoir about Jean and her painting journey, called Don’t Walk Away—an homage to the advice that Jean had given her as a child. In this episode:
Transcript available here: [full link]
Episode 2: Don't Walk Away [date]
Our website: demystifyingdementia.org
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Meet Ellen Sue Moses and Mark Gould, ambassadors for what they call “adventures in unimaginable lands.” Married for over 50 years, they describe Ellen Sue’s experiences with dementia as a journey in which two people love and mutually care for each other. They see living with dementia as being on an island, of which it is important to invite those of the mainland onto. Their story highlights how dementia doesn’t have to be a caregiver-and-cared-for relationship, but a two-way street of care partners. In this episode:
Transcript available here: [full link]
Episode 1: The Island of Dementia [date]
Our website: demystifyingdementia.org
Follow us on TikTok, LinkedIn, Instagram, and Facebook!
From the publisher's feed
The Demystifying Dementia mission is to create space for dialogue where everyone, regardless of their experience with dementia, becomes more comfortable talking about the full…
Right now, dementia is too often kept in the shadows — whispered about, or avoided entirely. Our goal is to make talking about dementia as normal and unremarkable as talking about any other part of life.
Dementia can feel mysterious, frightening, or hard to talk about. We believe that sharing real experiences can reduce stigma, build understanding, and help people feel more prepared for the ways dementia may touch their families, friendships, and communities.