Behind every policy is a patient, caregiver, or family whose story helped make change possible.
In this episode, we speak with Andrea Sanchez and Becki Chandler, volunteer advocates with Blood Cancer United, about the power of patient voices in shaping public policy. Drawing from their own family experiences with blood cancer, they discuss issues ranging from medical debt and insurance coverage to clinical trial access and research funding and explain how patients and caregivers can make their voices heard.
Learn why sharing your story matters and how personal experiences help lawmakers see that patients are more than numbers on a page. Behind every statistic is a real person, a unique story, and a family impacted by blood cancer.
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Mentioned on this episode:
Blood Cancer United Advocacy and Office of Public Policy – sign up for volunteer advocacy or sharing your voice hereMedical Debt Case Management ProgramFinancial supportAccelerating Kids Access to Care ActDare to DreamBlood Cancer United Scholarship programBlood Cancer Care Close to Home vlog episodeNational Institutes of Health (NIH)Advocating for Yourself: Insurance, Finances, and Your Rights podcast episode Additional Blood Cancer United Support Resources:
Information Specialists Clinical Trial Support CenterYoung Adult ResourcesYoung Adult Online ChatFree Nutrition ConsultationsFree telephone/web patient programs SHARE web seriesOnline videosFree booklets Patient CommunityCaregiver supportCaregiver WorkbookSupport groups Survivorship WorkbookMental Health ResourcesThe post Making Your Voice Count: The Power of Patient Advocacy first appeared on The Bloodline with Blood Cancer United Podcast.