Digital Activism

This episode is a compelling call to listen, learn, and challenge our assumptions about intelligence and communication. Brady’s story demonstrates that with the right tools and persistence, barriers can be dismantled, revealing the profound potential within us all. Brady and his mom, Darcy, talk with us about how Brady began expressing himself at 18 and hasn’t slowed down since! 

Thank you again Brady and Darcy!

I hope you enjoy this episode!

Resources:

SpellerZona - Brady's spelling journey and advocacy platform

Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠

Follow Caden!:

Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠

Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠

Email Caden: ⁠[email protected]

⁠

Follow the Pod!:

YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠

Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/

Love y’all<3

Want to be a guest on Digital Activism? Send Caden Nelms a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/1777852969056733ae9bff9bd

In this episode, Daniel Hodges, co-founder of Peaces of Me Foundation, shares his powerful journey navigating the healthcare system, disability discrimination, and advocacy for inclusive communities. Daniel has great insights as someone who was born with multiple disabilities, father of three (two of which survived childhood cancer), holds multiple degrees, and cofounded a non-profit to help people with disabilities, Peaces of Me Foundation!

Everyone, please go support Daniel and Peaces of Me!

Thanks again to Daniel for joining me for this discussion!

I hope you enjoy this episode! 

Resources:

Peaces of Me: https://www.peacesofme.org/ 

Bilateral retina blastoma: https://www.childrenshospital.org/conditions-treatments/retinoblastoma

Adenoid cystic carcinoma: https://my.clevelandclinic.org/health/diseases/22212-adenoid-cystic-carcinoma 

Ehlors danlos: https://www.ehlers-danlos.com/what-is-eds/ 

Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠ 

Connect with Daniel Hodges!:

Daniel LinkedIn: https://www.linkedin.com/in/daniel-hodges-jd/ Peaces of Me Foundation: https://www.peacesofme.org/ 

Follow Caden!:

Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠

Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠

Email Caden: ⁠[email protected]⁠

Follow the Pod!:

YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠

Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/

Love y’all<3

Want to be a guest on Digital Activism? Send Caden Nelms a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/1777852969056733ae9bff9bd 

Hello beautiful people! The last few days have been filled with phone calls, appointments, research, confusion, and anger at the government…. shocker! In today’s episode, I share my recent experiences with the Social Security Administration, the challenges and frustrations of navigating disability benefits, and provide insights into the process and implications for others in similar situations.

Resources:

Social Security Administration - https://www.ssa.gov/

Understanding Social Security Disability Benefits - https://www.ssa.gov/benefits/disability/

Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠ 

Follow Caden!:

Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠

Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠

Email Caden: ⁠[email protected]⁠  

Follow the Pod!:

YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠

Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/

Love y’all! <3

Want to be a guest on Digital Activism? Send Caden Nelms a message on PodMatch, here: https://www.podmatch.com/hostdetailpreview/1777852969056733ae9bff9bd

Keywords:

Social Security, disability benefits, government bureaucracy, personal story, social security process, disability insurance, financial management, government assistance, social security review, disability advocacy

Key Topics:

Social Security process and challenges

Impact of income reporting on disability benefits

Navigating government bureaucracy and communication issues

Caden Nelms recently switched medications for Spinal Muscular Atrophy. He took a lot of information into consideration and realized that he could no longer handle the injection. Caden shares his personal journey switching from Spinraza to Evrysdi for treatment for Spinal Muscular Atrophy, including the medical processes, challenges, and benefits of each medication. 

Chapters

00:00 Understanding Spinal Muscular Atrophy (SMA)

00:43 The Transition from Spinraza to Everesty

05:52 Challenges Faced with Spinraza

12:07 The Benefits of Evrysdi and Future Outlook

Resources

Spinraza (Nusinersen) - https://www.spinraza.com/

Evrysdi (Risdiplam) - https://www.evrysdi.com/

Spinal Muscular Atrophy (SMA) - NIH - https://www.ninds.nih.gov/health-information/disorders/spinal-muscular-atrophy

Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠

Follow Caden!:

Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠

Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠

Email Caden: ⁠[email protected]⁠

Follow the Pod!:

YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠

Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/

keywords

SMA, Spinraza, Evrysdi, medication switch, spinal muscular atrophy, medical treatment, insurance approval, nerve pain, medication side effects, patient experience

Hello beautiful people!

This episode is audio only (sorry!)

After I yap for a few minutes, I answer questions that I found online that relate to disability! I talk about dark humor, weird questions that people have asked me, and how I answer the “are you disabled question’ on a job application.

We will be back to video next week!

Episode show notes & transcripts can be found here: ⁠⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠⁠ ⁠⁠

Follow Caden!:

Caden IG:⁠⁠ ⁠⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠⁠

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠⁠

Caden Threads⁠:⁠ ⁠⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠⁠

Email Caden: ⁠[email protected]⁠

Follow the Pod!:

YouTube:⁠⁠⁠ ⁠⁠⁠⁠⁠   / @digitalactivismproject  ⁠

Pod IG: ⁠⁠⁠instagram.com/digitalactivismpod/

Love y’all! <3

Hello beautiful people!

in today's episode, Caden had the opportunity to speak with Alfonso Reyes, a.k.a @musculardystrophywarrior on social media! We discuss whis Muscular Dystrophy diagnoses, navigating public school and college, favorite video games, best friends, and what shoes Caden should by next!

Learn more about Muscular Dystrophy here: www.mda.org/disease/duchenne-muscular-dystrophy

Follow Alfonso on socials:

Instagram: instagram.com/musculerdystrophywarrior/

YouTube: youtube.com/@mdw1999

TikTok: tiktok.com/@musculerdystrophywarrior

Threads: threads.com/@musculerdystrophywarrior

Episode show notes & transcripts can be found here: ⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠ ⁠⁠Follow Caden!:Caden IG:⁠⁠ ⁠⁠⁠⁠⁠instagram.com/obviously_its_caden/⁠⁠⁠⁠Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠⁠tiktok.com/@wheelchair_king⁠⁠ ⁠⁠⁠⁠Caden Threads⁠:⁠ ⁠⁠⁠⁠threads.com/@obviously_its_caden⁠⁠Email Caden: ⁠[email protected]⁠Follow the Pod!:YouTube:⁠⁠⁠ ⁠⁠⁠⁠   / @digitalactivismproject  Pod IG: ⁠⁠instagram.com/digitalactivismpod/⁠⁠

We are back (for real this time)! We are in a new studio, we have a producer, and we are uploading episodes on Fridays!

We have also created a new website for the podcast, check it out! Episode show notes & transcripts can be found here: ⁠⁠⁠⁠www.digitalactivismpod.com/⁠⁠ ⁠⁠

Follow Caden!:

Caden IG:⁠⁠ ⁠⁠www.instagram.com/obviously_its_caden/⁠⁠⁠ ⁠

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠⁠www.tiktok.com/@wheelchair_king ⁠⁠⁠

Caden Threads:⁠ ⁠⁠www.threads.com/@obviously_its_caden⁠

Email Caden: [email protected]

Follow the Pod!:

YouTube:⁠⁠ ⁠⁠www.youtube.com/@digitalactivismproject⁠⁠⁠⁠

Pod IG: ⁠www.instagram.com/digitalactivismpod/⁠

Love y'all! <3

Hello beautiful people! For this episode, I talked with Mikey Stone, a social media advocate for ALS awareness and disabilities. Mikey shares his journey from a casual social media user to a prominent figure raising awareness for ALS after his own diagnosis in February 2025. We chat about the therapeutic role of music in our lives and Mikey producing his first project post-diagnosis. Mikey emphasizes the need for community support across social media! We discuss the challenges and triumphs of living with disabilities, the importance of raising awareness for ALS, and the significance of collaboration in creative projects. Mikey shares his excitement about his upcoming music release and a recent song he created and debuted alongside Frankie Torres at this year's ALS Conference!

Mikey Stone’s Links!:

IG: www.instagram.com/mikeystonemusic/ 

TikTok: www.tiktok.com/@mikeystonemusic

People Exclusive Article: people.com/26-year-old-goes-viral-sharing-als-diagnosis-exclusive-11790769 

“Mikey’s House” Podcast: bio.link/mikeyshouse 

“The Midnight Report” Podcast: bio.link/themidnightreport 

Losing to the Letters: www.als.org/losing-letters 

Patreon: patreon.com/rarewithmikey?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=creatorshare_fan&utm_content=join_link 

Website: /www.rarewithmikey.com/ 

ALL THE LINKS:

YouTube:⁠⁠ ⁠www.youtube.com/@digitalactivismproject⁠⁠⁠ 

Caden IG:⁠⁠ ⁠www.instagram.com/obviously_its_caden/⁠⁠⁠ 

Caden TikTok:⁠⁠ ⁠⁠⁠⁠⁠www.tiktok.com/@wheelchair_king ⁠⁠⁠
Caden Bluesky:⁠ ⁠bsky.app/profile/cadennelms.bsky.social⁠⁠

Please go support Mikey & show him some love! Love you all! <3

Hello beautiful people!

Let’s talk about new jobs, my TikTok getting hacked, SMA Conference, and THE Ferris wheel video!🎡

ALL THE LINKS:

YouTube:⁠ ⁠https://www.youtube.com/@digitalactivismproject⁠⁠

Pod IG:⁠ ⁠https://www.instagram.com/digitalactivismproject/⁠⁠

Caden IG:⁠ ⁠https://www.instagram.com/obviously_its_caden/⁠⁠

Caden TikTok:⁠ ⁠⁠⁠https://www.tiktok.com/@wheelchair_king⁠⁠
Caden Bluesky: ⁠https://bsky.app/profile/cadennelms.bsky.social⁠

Hello beautiful people! This episode is likely the most important podcast episode I have ever done! Please listen and share it with others, as disabled Americans are at risk of losing their protections and rights. Use the resources below to learn about Section 504 and how you can help keep disabled people safe.

Thanks Britt (@myelasticheart) for joining me to discuss what is happening in the fight for disability rights!

SECTION 504 RESOURCES:

Lawsuit (Texas Attorneys General Website): https://www.texasattorneygeneral.gov/sites/default/files/images/press/HHS%20Rehabilitation%20Act%20Complaint%20Filestamped.pdf 

Call Scripts: https://callurreps.carrd.co/#section07 

Find your Attorneys General: https://www.naag.org/find-my-ag/ 

Disability Rights Education and Defense Fund (DREDF) Information: https://dredf.org/protect-504/ 

U.S. Depart of Education: https://www.ed.gov/laws-and-policy/individuals-disabilities/section-504 

Health and Human Services Fact Sheet: https://www.hhs.gov/sites/default/files/ocr/civilrights/resources/factsheets/504.pdf 

FOLLOW BRITT ON SOCIAL MEDIA:

Instagram: https://www.instagram.com/myelasticheart/ 

TikTok; https://www.tiktok.com/@myelasticheart 

Bluesky: https://bsky.app/profile/myelasticheart.bsky.social 

YouTube: https://www.youtube.com/channel/UCO5VAXCFZ1KbswsnM-6nLUw 

ALL THE LINKS:

YouTube: ⁠https://www.youtube.com/@digitalactivismproject⁠

Pod IG: ⁠https://www.instagram.com/digitalactivismproject/⁠

Caden IG: ⁠https://www.instagram.com/obviously_its_caden/⁠

Caden TikTok: ⁠https://www.tiktok.com/@wheelchair_king⁠

Caden Bluesky: https://bsky.app/profile/cadennelms.bsky.social