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Do ambulant people with spinal cord injury benefit from a specific support group?
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- Helen Smith (Ms) Consultant Clinical Psychologist
- Joe Robinson, Group member and co-facilitator, freelance artist and co-author of "The Very Alternative Guide to Spinal Cord Injury"
SCI is a rare condition, not well-understood outside specialist centres. Those who walk again are seen as "lucky" and not "disabled". In fact they have invisible disabilities, which take a heavy toll. Spending time with others with similar experiences, can help with their frustration and isolation. The literature has tended to focus on physical and surgical considerations, not lived experience.
A group was created in 2010 at our SCI Centre, providing Peer Support and information (invited speakers). It has been evaluated with positive results, and not required significant resources. Members derive benfit from contributing as well as receiving. It was presented at SCI conferences, but so far has not been replicated, except for two recent versions in the voluntary sector.
Not all ambuplegic people suit a group approach, but members report feeling better-informed to manage their unique challenges, better in mood, and supported by others who understand.
If you have any questions regarding this podcast, please contact Helen Smith at [email protected]
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
Contact us directly with any questions or comments at [email protected]
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By International Spinal Cord Society (ISCoS)Send us a text
- Helen Smith (Ms) Consultant Clinical Psychologist
- Joe Robinson, Group member and co-facilitator, freelance artist and co-author of "The Very Alternative Guide to Spinal Cord Injury"
SCI is a rare condition, not well-understood outside specialist centres. Those who walk again are seen as "lucky" and not "disabled". In fact they have invisible disabilities, which take a heavy toll. Spending time with others with similar experiences, can help with their frustration and isolation. The literature has tended to focus on physical and surgical considerations, not lived experience.
A group was created in 2010 at our SCI Centre, providing Peer Support and information (invited speakers). It has been evaluated with positive results, and not required significant resources. Members derive benfit from contributing as well as receiving. It was presented at SCI conferences, but so far has not been replicated, except for two recent versions in the voluntary sector.
Not all ambuplegic people suit a group approach, but members report feeling better-informed to manage their unique challenges, better in mood, and supported by others who understand.
If you have any questions regarding this podcast, please contact Helen Smith at [email protected]
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
Contact us directly with any questions or comments at [email protected]