By International Spinal Cord Society (ISCoS)
The podcast currently has 76 episodes available.
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In this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care for those with spina bifida, from early intervention to adolescent transition. Dr Alyami explains the importance of bladder management from birth, the challenges families face in daily care routines, and the crucial role of multidisciplinary healthcare teams.
The conversation addresses key aspects of paediatric care, particularly the transition from childhood to adult healthcare services. Dr Alyami emphasises the significance of specialised spina bifida clinics where multiple specialists can coordinate care under one roof, highlighting the development of transitional urology as a subspecialty to bridge the gap between paediatric and adult care. The discussion concludes with inspiring success stories of individuals with spina bifida who have gone on to lead fulfilling lives, including having families of their own, demonstrating how proper medical care and support can positively impact life outcomes.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
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In this episode, released to coincide with World Spina Bifida Day, host Anders Tennby (Wellspect) explores the challenges and opportunities in improving life quality for those with spina bifida. Joined by experts Hanna Gabrielsson from Sweden and Pierre Mertens from Belgium, the discussion delves into the complexities of this congenital disorder. Gabrielsson, a registered nurse with a thesis on adults with spina bifida, explains the condition's medical aspects and the challenges individuals face, including the need for consistent self-care and the impact of cognitive impairments. Mertens, president of Child-Help International and father to a daughter with spina bifida, brings a personal perspective, highlighting global disparities in care and support.
Resources Mentioned
Note on Prevalence Rates: During the podcast, there was a discussion about the prevalence of spina bifida. It's important to clarify that prevalence rates can vary significantly between regions and depending on whether prenatal diagnoses are included. In Sweden, for example, the estimated prevalence before prenatal screening is approximately 5 per 10,000, but the actual number of children born with spina bifida is considerably lower, at about 5-10 children per year (or 1 per 100,000 newborns). Globally, reliable incidence studies are lacking, especially in the Global South where many cases may not reach hospitals. Reported figures vary widely, from as high as 14 neural tube defects per 1,000 births in some areas to as low as 1 in 10,000 in others. This wi
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
As anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie.
Our hosts invite the spinal cord community to this unique event, located in a charming and inspiring venue: A Room with a Zoo at Flanders Meeting & Convention Center, Antwerp.
This 3 day event unites leading experts in spinal cord injury care and research to share groundbreaking advancements and innovative solutions in the pursuit of bettering the lives of individuals living with, or caring for those with a spinal cord injury.
To learn more about our interactive programme and to register your place, please visit: https://iscosmeetings2024.org
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcasts, educational support for the ISCoS International Regional Symposia.
In this webinar, the 2nd ISCoS International Regional Symposium - Sharing world knowledge for practical advancements will be discussed by the panel:
Dr. Ronald Reeves, MD , Chair of the ISCoS Education Committee,
Dr. Francois Theron, MBChB, MMed, Chair of the ISCoS Affiliated Societies and Networks Committee
Professor Moon Suk Bang, MD, Phd, Seoul National University College of Medicine and Chair of the Local Organising Committee.
The panel highlight the work of the Korean Spinal Cord Society and spinal cord Injury care in Korea and discuss the work of the ISCoS Regional Symposia Initiative to promote multi-disciplinary, integrated care and training, the comprehensive care for which ISCoS is well known, within affiliated societies and regional networks.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
Welcome to the future of Spinal Cord.
In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord.
Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights and support those within the SCI community.
Appearing monthly, both online and in print, Spinal Cord invites contributions on spinal cord anatomy, physiology, injury and associated disease management, and importantly, improving the quality of life for those living with a spinal cord injury.
As this unique, interdisciplinary journal progresses into its next chapter, Dr. Fehlings and Professor Anthony S. Burns have initiated an open call for Associate Editors to join their team of esteemed doctors, researchers and practitioners in bringing this journal to life.
To apply for this role, please visit: Call for Application: Associate Editors of Spinal Cord | Spinal Cord (nature.com)
Or to learn more about Spinal Cord, please visit: Journal Information | Spinal Cord (nature.com)
SCI Care Guidelines
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
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This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn
The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.
We invite you to:
ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024
Contact us directly with any questions or comments at [email protected]
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
Managing bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI).
In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spinal cord injury department Umeå, Sweden and Maria Moschovou, a specialist rehabilitation nurse at the Linköping University Hospital Rehabilitation department. They discuss and explore factors important for being compliant with the therapy and long-term compliance, the possible barriers that arise, how to overcome these, and the importance of a healthy bladder and bowel.
The initial phase of rehabilitation for newly injured SCI patients can be overwhelming. The sudden influx of information, coupled with the intimate nature of bladder and bowel care, often leaves patients feeling vulnerable. Josefin emphasises the need for educational materials that are not only concise but personalised to the individual's needs. A key factor in successful management is establishing a routine that is as close to the patient's pre-injury habits as possible, adapting techniques to their unique situations.
Long-term challenges also persist. As Maria notes, methods that were effective during initial rehabilitation may not suffice as time moves on. Patients often return, desperate for solutions to new or evolving issues. This highlights the need for continuous support and follow-up, ensuring that care plans adapt over time. A notable aspect of long-term management is addressing the cultural sensitivities of caring for patients from diverse backgrounds. This requires not only a deep understanding of different cultures but also strategies to introduce and discuss intimate care products in a respectful and effective manner.
Both experts stress the importance of education – for patients and healthcare professionals alike. Using smart, simple solutions over complicated or invasive procedures can prove to be more effective.
Our panel agreed that the management of bladder and bowel health for SCI patients is complex. Healthcare professionals can empower patients to lead healthier, more independent lives through education, patience, and continuous improvement of care plans.
We hope you enjoy listening.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvard Medical School and Director of the spinal cord injury division at Spalding Rehab Hospital, and the director of the Inspire Lab at Spaulding Rehab Hospital.
We also have a participant, Arthur Holt, who will share his experience with Dr Trumbower of the ANEUVO Exostim trial that took place at Spalding Rehabilitation Hospital.
Listen as Arthur shares his first-hand account of his journey at Spaulding Rehab Hospital, where he reclaimed vital hand functions, as well as the importance of having the right mindset when it comes to rehabilitation.
Dr. Trumbower concludes their conversation by sharing how much potential this study, and others like it, have for the spinal cord injury community whilst also emphasising how much more work there is to be done.
We hope you enjoy this enlightening episode of the podcast!
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening.
This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo in discussing such issues, the challenges and risks of becoming a mother with a spinal cord injury and the importance of a good bladder and bowel routine will have on your self-confidence all leading to empowerment and a better quality of life.
To do this, host Ami Kivi, Global Product Manager Urology, Wellspect invites Dr Maria Gyhagen, Associate Professor in Obstetrics and Gynecology at Sahlgrenska University at Gothenburg University and Inge Eriks-Hoogland, head of the outpatient department of the Swiss Paraplegic Centre, to shed light on this pressing women's health issue. Their groundbreaking research and advocacy work reveal the widespread impact of these disorders and pioneer new paths in care and empowerment for affected individuals.
The prevalence of pelvic floor disorders, such as incontinence and genital prolapse, severely impacts quality of life. Dr Gyhagen's research focuses on the functional dynamics of the pelvic floor, especially post-childbirth, emphasising its multifaceted effects, including compromised self-esteem and sexual dysfunction. She stresses the importance of early diagnosis and targeted support, which are often overlooked in healthcare.
Obstetric Anal Sphincter Injury Calculator https://www.sphinctercalc.com/
UR-CHOICE Pelvic Floor Disorders Risk Calculator: https://riskcalc.org/UR_CHOICE/
Dr Eriks-Hoogland's expertise in spinal cord injuries highlights the unique challenges faced by spinal cord-injured women during pregnancy and childbirth. The podcast highlights heightened risks and the necessity for informed choices and collaborative clinical approaches, ensuring active participation in health decisions. Standardised guidelines in gynaecological care play a vital role in empowering patients and improving care protocols, advocating for a more predictive healthcare approach and addressing societal taboos surrounding pelvic floor disorders through greater awareness and dialogue.
SCI Care Guidelines https://register.awmf.org/de/leitlinien/detail/179-014
We hope you will enjoy this episode.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy.
Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury.
From discussing the role of sex toys in enhancing pleasure to emphasising the importance of bladder and bowel management for sexual activity, Drs Alexander and Sampogna offer practical advice and explore misconceptions surrounding sexual function post-injury.
Listeners will gain insights into various aspects, including the impact of accidents during sexual activity, strategies for adolescents navigating sexuality, and fertility considerations for both men and women with spinal cord injuries.
Resources
Everlasting Love: A series is brought to you by Sustain Our Abilities with funding from the Paralyzed Veterans of American Education and Training Foundation.
https://vimeo.com/everlastinglove
https://www.amazon.co.uk/Sexual-Sustainability-having-spinal-disorder/dp/B08L4969TV
Italian Edition
https://www.amazon.co.uk/dp/B0976533N9
Hindi Version
https://www.amazon.co.uk/dp/B099X53TRQ
Spanish Version
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
Send us a text
In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction.
They discuss physical health alongside social health and lifestyle factors that need to be considered, especially when working with children and teenagers. Being a teenager is challenging enough without the disruption of incontinence. Ultimately, the team aims to help their patients achieve a high quality of life and strive for independence as early as possible.
Dr Vogel also highlights the importance of anticipatory guidance, letting patients and their families know what will happen as their child ages and develops.
We hope you enjoy this episode of the podcast.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.
You can follow us on Twitter and LinkedIn
The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".
Contact us directly with any questions or comments at [email protected]
The podcast currently has 76 episodes available.