Runnah: Running Cape Cod, Massachusetts, and Beyond!

Doctors & Diagnosis | Starting Your EDS & Hypermobility Journey (BENDY)


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In this episode of the BENDY series, D stands for Doctors & Diagnosis.

I share my personal journey to being diagnosed with Ehlers-Danlos Syndrome (EDS), Ankylosing Spondylitis, hip dysplasia, and dystonia, along with the challenges, frustrations, and relief that came with finally having answers.

We also discuss how to begin pursuing an EDS or hypermobility diagnosis, who to talk to first, the specialists who may be involved, and why your symptoms deserve to be taken seriously. If you've ever felt like you're not being heard or have wondered where to start, this episode is for you.

Remember: a diagnosis doesn't define you. It helps you better understand your body and find the support you need.

⚠️ Disclaimer: This episode is for educational purposes only and should not replace medical advice. Please consult your own healthcare provider regarding any medical concerns or treatment decisions.

The Ehlers-Danlos Society: https://www.ehlers-danlos.com/

2024 hEDS Diagnostic Checklist:
https://www.ehlers-danlos.com/heds-diagnostic-checklist/

Find a Healthcare Professional:
https://www.ehlers-danlos.com/healthcare-professionals-directory/

📧 Contact Runnah:
[email protected]

📸 Follow Runnah:
Instagram: https://www.instagram.com/runnahpodcast

🏃 Follow Julianna:
Instagram: https://www.instagram.com/jellyanna_runs

#EhlersDanlosSyndrome #EDS #HypermobileEDS #Hypermobility #ChronicIllness #InvisibleIllness #BENDY #AdaptiveAthlete #TrailRunning #RunnahPodcast

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Runnah: Running Cape Cod, Massachusetts, and Beyond!By Julianna Coughlin with The Falmouth Running Club and Falmouth Community TV