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Sue Rees returns to share the revolutionary donor protections offered by the Alliance for Paired Kidney Donation (APKD) that are making kidney donation more accessible and equitable for everyone. As Chief Operating Officer with over 25 years of transplant experience, Sue walks us through the comprehensive "Donor Protect" program designed to eliminate financial barriers while safeguarding donors' futures.

We explore how the Alliance reimburses lost wages (up to $10,000), covers travel expenses for both donors and their support persons, and even provides dependent and pet care assistance. Sue explains their innovative "Home Advantage" program, which allows donors to recover locally while their kidneys are shipped to recipients across the country. Most fascinating are the various pledge programs that protect donors and their loved ones: the Advanced Donation Pledge, the Family Pledge, the Friend Pledge, and the Kidney Promise.

The conversation takes a global turn as Sue reveals how APKD's international initiatives are creating life-saving matches across borders. "Our differences can save our lives," she explains, sharing the remarkable story of a Mexican poet with 94% antibodies who found her match in Wisconsin. This global kidney exchange program demonstrates how genetic diversity across populations can be the key to finding matches for highly sensitized patients.

Sue's personal journey into transplant care adds emotional depth to the discussion. After losing her father to glioblastoma, she was profoundly moved by his nurse's compassion: "I want to be that for somebody," she decided. Today, through her work with the Alliance, Sue helps give second chances to patients and families facing medical crises.

Whether you're considering donation or simply curious about advances in transplant care, this episode offers invaluable insights into the protections that make kidney donation safer and more accessible than ever before.

SHOW LINKS:

Alliance for Paired Kidney Donation
Donor Protect
Mexican Kidney Exchange Story

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What happens when a transplant surgeon, a Nobel Prize-winning economist, and a willingness to trust strangers come together? A revolution in kidney donation that has saved 20,000 lives and counting.

Meet Dr. Michael Rees and Sue Rees, the power couple behind the Alliance for Paired Kidney Donation. In this captivating first installment of our two-part season finale, we journey back to 2007 when kidney paired exchange was in its infancy and most surgeons believed all transplant surgeries had to happen simultaneously to prevent donors from backing out.

Dr. Rees takes us behind the scenes of his radical experiment: what if we trusted donors to follow through on their promises even after their loved ones received kidneys? The medical establishment warned this trust-based approach could collapse the entire system. Undeterred, Mike vetted the first chain participant over a steak dinner, separated surgeries by weeks instead of performing them simultaneously, and created what would become what is now a common practice- Non‑Simultaneous Extended Altruistic-Donor chains.

Sue shares the heartbreaking reality that confronted her as a transplant coordinator: watching patients remain on dialysis despite having willing but incompatible donors.

Through their pioneering work with the Alliance's sophisticated matching algorithm, the Rees’ have transformed how we think about organ donation, proving that human goodness and trust can overcome medical skepticism and logistical challenges.

Whether you're curious about organ donation, inspired by medical innovation, or simply love stories of human connection, this episode reminds us that our differences—even incompatible blood types—can ultimately save each other's lives.

SHOW LINKS:

Alliance for Paired Kidney Donation
New England Journal of Medicine Article
People Magazine Article

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A spiritual calling, a kidney voucher, and two pastors reconnecting after decades apart—this is no ordinary transplant story.

When Jim Pearl was diagnosed with Fabry's disease in 2004, he had no idea his journey would lead him back to Jeff Barker, a seminary friend from the '90s. After five years on dialysis, Jim clung to his mantra: "In the waiting, God is working." Meanwhile, Jeff saw Jim's Facebook post and felt a spiritual nudge to step forward, despite knowing little about kidney donation.

Though not a direct match, Jeff became a voucher donor donating at NYU Langone. His kidney went to someone in the NKR system, and Jim received a kidney voucher due to Jeff’s donation. Just three months later, Jim received his transplant at University of Utah Health.

For both pastors, the experience was deeply spiritual. Jim named his kidney "Gigi" (God’s Gift). Jeff sees the donation as part of Christian incarnational theology—"We often think about giving money, but we can give our very selves."

GiftWorks supported them throughout the journey, helping Jim share his story widely and guiding Jeff through the donation process. Their experience shows how organ donation not only saves lives, but also renews connections, deepens faith, and transforms both donor and recipient.

Jim’s advice for recipients: "Share your story as broadly as possible. It only takes one set of eyes." Jeff encourages potential donors to remember: "Your first yes is not your final yes. Each step requires thought, and each decision matters."

Learn more at yourgiftworks.com and consider how making yourself available to others can be a part of something greater.

Links:
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GiftWorks

Donor Diaries Website
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What if a casual Sunday scroll through Facebook could save a life? In this heartfelt episode of Donor Diaries, Rich and Cali share the extraordinary story of how a social media post led to a life-saving kidney transplant and an unexpected lifelong connection.

Rich, living with polycystic kidney disease, feared the wait for a deceased donor and the possibility of having to go on dialysis, and took a leap of faith by sharing his story online. Cali, grieving the loss of her brother to the same disease, stumbled upon Rich’s post and felt an unshakable pull to help. Neither could have predicted the twist of fate that would link them even closer—Rich had once been her brother’s boss.

Their journey is one of vulnerability, determination, and the incredible power of human connection. From meticulously tracking spreadsheets to navigating emotions and medical evaluations, both Rich and Cali approached the process with equal heart and grit. In the end, their story reminds us that sharing our struggles can spark unexpected miracles—and that even the smallest connections can change lives.

Rich and Cali represent a major milestone; they were the first successful kidney transplant to come out of the GiftWorks Program pilot. The GiftWorks Program is built on three core pillars that support both transplant recipients and those who step forward as living donors: Education, Support, and Advocacy.  

To learn more about the GiftWorks program that helped make this match possible, visit yourgiftworks.com and check out our show notes.

Donor Diaries Website
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Join us on Donor Diaries as we welcome Dr. Harry Wilkins, CEO of Gift of Hope, who transitioned from a 36-year career as a trauma surgeon to leading an organ procurement organization in 2020. With his unique perspective as both a physician and an industry leader, Dr. Wilkins offers a rare behind-the-scenes look at the complex and deeply personal world of deceased organ donation. From the moment of injury to the life-changing decisions families face, he sheds light on the critical role OPOs play in guiding and supporting donor families through the process.

A Chicago native, Dr. Wilkins shares how his childhood fascination with car mechanics unexpectedly led him to a career in surgery, a path shaped by his family's strong values of faith and service. Now, he is driven by a bold vision: a future where no one dies waiting for an organ. He discusses the transformative potential of xenotransplantation, 3D-printed organs, living donation, and emerging advancements in organ preservation—what he calls a growing set of tools in the transplant toolbox.

Throughout our conversation, Dr. Wilkins highlights the dedication of his team at Gift of Hope and their relentless work to save lives every day. He also explores the importance of dispelling myths about organ donation, increasing public awareness, and fostering a culture where donation is the norm.

This episode is an eye-opening look at the challenges and breakthroughs shaping the future of deceased organ transplantation—and the innovative solutions that could one day eliminate transplant waitlists. Tune in for an inspiring and informative discussion with one of the field’s most passionate advocates.

Gift of Hope
National Organ Donor Registry Sign-up
Harry Wilkins Bio
The Art of Effective Physician Education (Book)
Donor Diaries Website
Donor Diaries on Facebook
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GiftWorks

Donor Diaries Website
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Join us as we welcome the extraordinary Mike Lollo, a former NYPD detective whose journey led him to become a passionate advocate for kidney donation. Mike's life took an inspiring turn in 2018 when he donated his kidney  to a stranger.  He shares his remarkable story with us, reflecting on how chance encounters with people like Ned Brooks shaped his mission to transform lives through the power of living donation. This episode highlights Mike's dedication and the profound impact his advocacy has had on individuals like Tommy Alexander and Mark Weiner.

We also explore Mike's career transition from the beat of New York City streets to the intricate logistics of organ transport. His role as chief strategy officer at the National Kidney Registry and his current position with Mobile Network 24 underscore his commitment to the safe and efficient transport of organs. Mike provides an insider's perspective on the complex layers of planning and coordination required to ensure successful transplants, especially when time is of the essence. His insights shed light on the critical importance of reliable transport systems in saving lives.

Mike Lollo is also the host of a new podcast called “Let’s Talk Transplant!”  Mike was formerly co-host of the podcast “One is Enough,” an NKR podcast.  You can find both podcast wherever you listen to podcasts!

Links:

Mobile Network 24
Let’s Talk Transplant Website
Let’s Talk Transplant on Facebook
One is Enough Podcast
Donor Diaries Website
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GiftWorks

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Join us as we sit down with Marilyn Day, a founding member of Transplant Village and a two-time kidney recipient who has dedicated over a decade to guiding others through the transplant journey.

In this episode, Marilyn shares how her personal story highlights the transformative power of sharing your journey to inspire action and find living donors within your social network. Discover how platforms like Facebook and Instagram have become invaluable tools for connecting patients with potential donors—reuniting people with long-lost connections, activating supportive family members who simply didn’t know, and even forging bonds with complete strangers.

Marilyn’s insights remind us that people can’t help if they don’t know how. She offers practical advice on building a supportive community and tapping into your network to create life-changing opportunities. Don’t miss this inspiring conversation about the power of hope, connection, and the courage to ask for help.

Links:
Donor Diaries Website
Donor Diaries on Facebook
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Transplant Village
Northwestern Donor Champion Program
Living Kidney Donors Network
GiftWorks
Marilyn’s Faith Story
The Big Ask the Big Give (NKF)
Johns Hopkins Donor Champion Program
Organ Transplant Support
Tools for Patients at NKR Transplant Centers

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In this episode, Anthony Cernera, a three-time living organ donor, opens up about his transformative journey of giving and personal healing. His story began with a simple Facebook post that sparked a deep desire to help others, leading him to donate a portion of his liver, kidney, and stem cells. These selfless acts not only changed the lives of his recipients but also had a profound impact on Anthony's own mental health, helping him navigate struggles with depression and addiction.

Anthony shares his powerful connections with his recipients, including Lance, his kidney recipient, and a leukemia patient in California, and how these bonds have supported his commitment to sobriety. He emphasizes the role of support systems and the importance of being transparent during the donor evaluation process. This episode highlights how service and connection can be healing, providing a sense of purpose and belonging, which Anthony has found through both organ donation and his involvement in recovery work.

Listen in for an uplifting reminder of how kindness and selflessness can create positive change, not only in the lives of recipients but also for the donors themselves.  This episode is a great source of hope and inspiration for kidney donors who may have to jump through some extra hoops due to their mental health history.

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Three Time Living Donor Hopes to Inspire Others to Donate
Anthony Cernera in Men’s Health
Fairfield Man an Organ Donor Three Times Over

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What would compel an American living in Germany to navigate a labyrinth of legal and cultural barriers to donate a kidney to a stranger? Join us as we uncover the incredible story of Will Johnson, whose altruistic journey sheds light on the stark contrasts between organ donation practices in the US and Germany. In this episode, recorded in a charming house near Munich, we reveal Germany's current regulations surrounding kidney exchange and the low rates of living donations that Will encountered in his quest to give the gift of life.

Embark on a transatlantic journey with us as we explore the emotional and logistical hurdles Will faced, from initial inspiration to the surprising medical discoveries along the way. Hear about the practical steps of coordinating evaluations across borders, and the varied reactions from peers and workplaces in Germany. Through Will's story, we gain a deeper understanding of the personal sacrifices and triumphs that come with kidney donation, highlighting the incredible impact of what happens when we choose to love a stranger.

Will shares: “I’ve been the recipient of much kindness and generosity throughout my life and have been blessed with good health. It felt like the right time to give back. When I learned about altruistic kidney donation, I knew without a doubt this was the perfect opportunity to do something meaningful.”

Living Kidney Donation in Germany
Global Observatory on Donation
From Germany to America: A Living Kidney Donor Story | National Kidney Foundation
Facts and myths about altruistic organ donation | Nephrology Dialysis Transplantation | Oxford Academic
Market Design Blog | Al Roth
Market Design Blog (second article) | Al Roth
Berlin Kidney Exchange Article
Living Organ Donation Donor Rate Statistics
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How old is too old to save a life? At the age of 74, Tom Duncan defied societal norms to become America's oldest non-directed living kidney donor, and his story will change the way you think about aging and altruism. Join us for an intimate conversation from his serene home in Ruidoso, New Mexico, where Tom recounts the journey that began with a friend's struggle with dialysis and led him to a life-altering decision. Discover the rigorous evaluation process, the misconceptions about age limits, and the emotional benefits of donation that go far beyond the physical act.

Tom's inspiring narrative challenges preconceived notions and societal perceptions. We also delve into the Living Kidney Donor Voucher Program, which enables donors to give the gift of life while providing future security for their loved ones. Despite his loved one receiving a kidney from another source, Tom's unwavering commitment to donation shines through. This episode is a heartfelt tribute to the power of giving at any age!  Don't miss this chance to be inspired by stories of love, resilience, and selfless generosity.  This episode is dedicated to Ernie and David.

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