The Phelan-McDermid Podcast: Sharing Research, Progress, and Hope

Dr. Kristy Johnson - 2024 Grant Awardee for the PMSF Innovation Grant - Part 2

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We are back with Part 2 of our interview with Dr. Kristy Johnson, winner of our 2024 PMSF Innovation Award!


In this episode, you will hear about the specifics about her project titled "ROSCO: A Novel Virtual Natural Communication Paradigm for Individuals with PMS". After detailing all the challenges associated with available measures of language and communication in Part 1, Dr. Lauren dives in to learn how Dr. Kristy is using a novel tool to capture communication in individuals with Phelan-McDermid syndrome! This novel tool is ALL home-based and hones in the unique ways each individual communicates.


And if you haven't tuned into Part 1 yet, we HIGHLY recommend starting there!


Interested in participating in ROSCO?

Email [email protected] to learn more about the study.


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The Phelan-McDermid Podcast: Sharing Research, Progress, and HopeBy Phelan-McDermid Syndrome Foundation
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