Dystonia Matters Podcast

Dystonia Matters: Karen's story


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In our first episode of season five, Karen sits down with Dayna to share her story with warmth and humour. She talks about her journey living with dystonia, from being born with the condition due to a possible birth injury and facing a long road to diagnosis in her 30s, to breaking down barriers in her career after receiving her diagnosis. 


View the transcript of Karen's story here.


If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠⁠⁠[email protected]⁠⁠⁠


Visit ⁠www.dystonia.org.uk⁠  for further information and details on becoming a Dystonia UK member.


Email: ⁠⁠⁠[email protected]⁠⁠⁠ for any questions or topic suggestions you have for future episodes.


This show is brought to you by Dystonia UK.


Follow us on X, Facebook, LinkedIn, Instagram and TikTok @DystoniaUK.


Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications


Post Production: Heather Pownall of Heather’s Media Hub Ltd.

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Dystonia Matters PodcastBy DystoniaUK

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