By DystoniaUK
5
11 ratings
The podcast currently has 20 episodes available.
Having met Mark at many Dystonia UK events, Dayna could't wait to have him on the podcast. Tune in to hear about Mark's experiences with his local group and how he came to educate Nicky Campbell on dystonia and how much he loves Sara (without an H) all live on national radio.
If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: [email protected]
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on X, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather’s Media Hub Ltd.
After a few months of trying to get together Dayna and Jason finally got to sit down and record the podcast. Jason reflects on the challenges of living with a chronic condition and how he is finding hope through alternative treatment solutions. By speaking with Dayna, Jason also experiences a transformative breakthrough towards his attitude to dystonia.
If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: [email protected]
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on X, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather’s Media Hub Ltd.
Parents Emma and Gareth share the story of their incredible eight-year-old daughter, Hayley, who has become the first in the world to undergo a new form of advanced deep brain stimulation.
If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: [email protected]
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on X, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather’s Media Hub Ltd.
For the first episode of Season Four, Dayna is joined by the wonderful Rebecca!
Rebecca discusses her life's unexpected shift from an active student midwife to life full-time in a wheelchair. Amidst this transition, she created a new path as an accomplished author, creating a range of children’s books and young adult titles. She also opens up about the heartfelt encounter that led to meeting her husband and offers insights into the perspective her children hold of her.
In October 2023, Rebecca released a poetry collection, 'Freefall Dysfunctionally Me', with all royalties from the collection being donated to Dystonia UK.
Tune in to explore Rebecca's extraordinary story of resilience and perseverance.
If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: [email protected]
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on X, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather’s Media Hub Ltd.
In our latest episode we were joined by the super talented Paralympic Boccia champion - Claire Taggart.
Hear Claire talk about inclusion in sport and how she's using her voice to raise awareness of dystonia.
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you may have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on Twitter, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather's Media Hub Ltd
In this episode Katie joins Dayna to chat about having an incredibly busy home life! How dystonia has changed her life beyond measure affecting her confidence and friendship groups, Life in a wheelchair, meeting people with the condition for the 1st time at Dystonia Matters Live 2023 and how much of a relief that was and how she is taking control of her future.
If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: [email protected]
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you may have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on Twitter, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather's Media Hub Ltd
In episode 2 of the 3rd season of the podcast, Dayna is joined by the fabulous Beccy!
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you may have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on Twitter, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather's Media Hub Ltd
For the first episode of Season Three, Dayna chats with Tajana about her dystonia story; from her experiences having deep brain stimulation (DBS) as a child and what that was like at school and the hospital, to some of her employment highs and lows, to talking about awareness.
Contact Information
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you may have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on Twitter, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather's Media Hub Ltd
In this episode of the Dystonia Matters podcast, Dayna and Luca got to sit down and have a chat about how it was growing up with dystonia, having deep brain stimulation surgery, and what it is like now being 15, taking exams and having a long term condition. We have watched Luca grow up and have heard his story through his mum's eyes. It was a pleasure to hear it in his own words and see how much raising awareness means to him.
Please note the sound quality in some parts of the recording are not perfect.
Contact Information
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you may have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on Twitter, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather's Media Hub Ltd
Dystonia Superstar Award winner, Kimberley, stopped by the podcast to chat to Dayna about her dystonia story.
They talked about about Kimberley's surprise at winning one of the Dystonia UK awards after a nomination from her mum (which she forgot doing!), her journey to getting a diagnosis, meeting her husband and becoming a mum.
Contact Information
Visit www.dystonia.org.uk for further information and details on becoming a Dystonia UK member.
Email: [email protected] for any questions or topic suggestions you may have for future episodes.
This show is brought to you by Dystonia UK.
Follow us on Twitter, Facebook, Linkedin and Instagram @DystoniaUK.
Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications
Post Production: Heather Pownall of Heather's Media Hub Ltd
The podcast currently has 20 episodes available.