Dystonia Matters Podcast

Dystonia Matters: Lola's Story


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After hearing about Lola's brilliant football stadium fundraiser, Dayna couldn't wait to chat to her for the last episode of season four. Lola talks about her grandad's experiences of living with dystonia and how this has affected her, as well as the difficulties of going out and about in society when living with dystonia and her determination to raise awareness about the condition to help her grandad and others like him.

If you enjoy listening to this episode and would like to share your story on our Dystonia Matters podcast, get in touch: ⁠⁠⁠[email protected]⁠⁠⁠

Visit ⁠www.dystonia.org.uk⁠  for further information and details on becoming a Dystonia UK member.

Email: ⁠⁠⁠[email protected]⁠⁠⁠ for any questions or topic suggestions you have for future episodes.

This show is brought to you by Dystonia UK.

Follow us on X, Facebook, LinkedIn, Instagram and TikTok @DystoniaUK.

Hosted by: Dayna Ferdinandi, Director of Fundraising and Communications

Post Production: Heather Pownall of Heather’s Media Hub Ltd.  

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Dystonia Matters PodcastBy DystoniaUK

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