Welcome to episode 40 (I can’t quite believe it!)

I’m sorry I’ve been a bit MIA lately, I’ve had a few personal things to manage - but I’m back now and can’t wait to get back into the swing of filming 🤍

First up, is this episode featuring Ross Hovey! You may know Ross from LinkedIn as he is a powerful voice in the world of workplace inclusion and disabled advocacy.

Ross has Spinal Muscular Atrophy and discusses what has inspired his career and how he balances disability admin and a full time job!

If you enjoy this episode, please like and subscribe and maybe even have a little natter in the comments with me 🥰!

#accessibility #awareness #disability #disabilitypodcast #musculardystrophy #podcast #chronicillness #cardiomyopathy #SMA #spinalmuscularatrophy #workplacewellness #linkedin #disabledadvocate

What an episode to share!

Meet Hannah, you may know her from her social media page ‪@heartcharged‬ that she created with her sister Bethany!

Hannah and Bethany both have cardiomyopathy, with Hannah having suffered a cardiac arrest at age 17. They created HeartCharged, a nonprofit that helps to advocate and support for the cardiomyopathy community!

I had such a lovely chat with Hannah and felt so grateful to connect with someone so passionate and someone who I could relate to. I hope you learn more about life with cardiomyopathy from this episode and enjoy hearing more about Hannah’s journey!

#disability #disabilitypodcast #musculardystrophy #podcast #cardiomyopathy #accessibility #awareness #chronicillness #heart #cardiology #cardiacwellness #cardiac #medicaleducation #medical

Over the summer, Alex joined me on my podcast to chat about his neurodivergent journey and what advice he would give to people about how best to support people like himself!

Welcome Emma Partlow - disability advocate and a powerhouse in the world of disabled travel!

This is a special episode to chat about LGMD awareness day and also muscular dystrophy awareness month.

If you enjoy this episode - please like and subscribe xx

This episode features Sam and Alex, twins who have Type 2 spinal muscular atrophy and are media students with bold aspirations.

Sam and Alex are pursuing their passion to enter the media world while also making it accessible to the disabled community. They have their sights set on knocking Ant & Dec off the top presenting spot!

They have recently created a documentary titled “Disabled or not” to highlight the various issues around navigating the media world alongside their disability.

As always, I hope you enjoy this episode! Please give this episode a thumbs up and subscribe if you haven’t already 🥰 thank you for your continued support!

If you would like to watch Sam and Alex’s documentary, it is available on YouTube under “Disabled or not”

#accessibility #awareness #disability #musculardystrophy #wheelchair #podcast #disabledpodcast #media #filming

Welcome back to a new episode of Dystrophy Diaries!

This episode features Georgie, who has Cerebral Palsy and has completed a first class law degree.

Georgie chats about her condition and how it impacts her while also discussing what inspired her to gain a degree in law!

Georgie wants to use her degree to help those who may have faced discrimination.

We also chat about the journey to accepting using a wheelchair and navigating a disability at a young age!

This episode features Alyssa who I met via the PINNT charity. We both recieve parenteral nutrition and have had similar journeys with feeding!

We wanted to chat about navigating life on #TPN and try to raise awareness that there is a community of young people recieving this treatment!

I hope you enjoy 🩷

#disabilitypodcast #accessibility #awareness #cardiomyopathy #disability #musculardystrophy #podcast #wheelchair #nutrition #feeding #tubefeeding #piccline #ehlersdanlossyndromeawareness #chronicillness

I am joined by Dana Halliwell (AKA DyslexicDayna) for episode 32 where we talk all about Dana's social media rise, her disabilities and how society could be more inclusive for all access needs.

Dana is part of my husbands family and so it was really interesting to get to know more about her health journey in recent years.

This episode is all about the NMC in Winsford and the incredible work they do.

Ben has Muscular Dystrophy and has also worked at the NMC for many years now. Listen to all the exciting things on offer at the NMC and how you can be referred!