In this episode, Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee and Paediatric Nurse in Thrombosis and Haemostasis, discusses how the Neria™ Guard infusion set may help reduce pain and distress for children receiving emicizumab. Drawing on real-world experience, she highlights why even small innovations can make a big difference in paediatric care.

📰 ​ Read the article: ⁠⁠⁠https://sciendo.com/article/10.2478/jhp-2024-0019

In this episode of "Meet the Author", Daniel C. Ogrezeanu discusses his recent paper on "Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study". Learn more about the safety and effects of blood flow restriction exercise in people with severe haemophilia.

Read the full article: https://onlinelibrary.wiley.com/doi/10.1111/hae.15084

Contact the author: [email protected]

This episode features Paul Mclaughlin and Paula Loughnane interviewing him about his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study".📰 ​ Read the article: ⁠⁠https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-024-01550-z

This episode features Johan Blokzijl and Paula Loughnane interviewing him about his recent paper "A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia".

Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud,

Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud,

This episode features Sébastien Lobet who is currently a Physiotherapist and Researcher at the Haemostasis and Thrombosis Unit at the Cliniques Universitaires Saint-Luc at Université Catholique de Louvain in Brussels, Belgium. He was also chair of the EAHAD Physiotherapists Committee.
Paul Mclaughlin will interview him about his recent paper titled "ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia".

Welcome to our podcast series, today we interview Prof. Thierry VandenDriessche to discuss how to enhance the efficacy and safety of gene therapy for haemophilia A and B. Despite achieving multiyear therapeutic levels of factor VIII and factor IX in patients, challenges remain. Variability in expression, gradual decline of factor VIII levels, and frequent incidence of transaminitis present ongoing hurdles.

In this episode, we delve into these challenges and discuss strategies to overcome them, with a focus on the use of adeno-associated viral vectors (AAV). We also examine the advancements and limitations of integrating vector systems, such as lentiviral vectors and CRISPR-based gene editing, in preclinical studies. These strategies aim to maintain sustained clotting factor expression, even amidst target cell division.

🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-12-how-can-we-improve-the-efficacy-and-saf/419034

Dive deep into understanding the Clinical Experience in Haemophilia Gene Therapy with Johnny Mahlangu.

🎥 Watch the full module on the EAHAD Academy: ⁠https://academy.eahad.org/eahad/2024/module-11-clinical-experience-in-haemophilia-gene/417335⁠

This new episode on the Basic Science of Haemophilia Gene Therapy with Paul Batty introduces the science underlying this new therapy. Itprovides an overview of different gene therapy approaches, focussing on adeno-associated viral (AAV) vectors that are used for the treatment of haemophilia.

🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-10-basic-science-of-haemophilia-gene-thera/411461