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Intro:
In this episode of Embracing Diabetes, hosts Amy Stockwell and Dr. Liz Stevens talk with Dr. Stacey Simon, an associate professor of pediatrics and director of behavioral sleep medicine. Dr. Simon discusses her extensive research on the impact of insufficient sleep on health outcomes, particularly in adolescents with type 1 diabetes. The conversation delves into the challenges of managing diabetes-related sleep disruptions, the role of diabetes technology and practical strategies to improve sleep health. Dr. Simon emphasizes the importance of sleep for overall well-being and offers insights into how families can manage overnight diabetes care while ensuring better sleep. The episode is a valuable resource for understanding the critical relationship between sleep and diabetes, applicable to both teens and adults.

Bio:
Stacey L. Simon, PhD, DBSM, studied psychology and music performance at Case Western Reserve University in Cleveland, Ohio, and received her master's and PhD in clinical and health psychology from the University of Florida. Her research in women’s health was inspired by the fact that females have historically been understudied in sleep research. Women have higher rates of insomnia than men while obstructive sleep apnea is less often diagnosed in females, perhaps due in part to poor recognition of their unique symptoms. These differences begin to emerge in adolescence, motivating Dr. Simon’s research with the intention to increase awareness around women’s sleep and promote good sleep health for women and girls.  

Dr. Simon currently sees patients in the sleep clinic at Children’s Hospital Colorado where she serves as the associate director of Behavioral Sleep Medicine in the division of Pediatric Pulmonary and Sleep Medicine. She sees children from infancy to young adulthood with behavioral sleep concerns, such as insomnia and circadian rhythm sleep disorders.   

Her current research is focused broadly on the mechanisms underlying the negative physical and mental health consequences of insufficient sleep and circadian misalignment in adolescents. With a number of evidence-based behavioral interventions for sleep problems, Dr. Simon finds it very rewarding to see how the entire family benefits when children are sleeping well.

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In this episode we talk to clinical pharmacist Brianna Patacini. Brianna shares her personal diagnosis journey with type 1 diabetes, her role on the endocrine team, and discusses the evolving landscape of insulin options and their insurance implications. The conversation covers the importance of clinical pharmacists, practical advice for managing diabetes while traveling and emerging diabetes technologies. Brianna emphasizes the significance of patient advocacy and the complexities of insurance formularies in diabetes management.

Featured on this episode:
Brianna Patacini, PharmD, BCACP, CDCES, MBA, is a clinical pharmacy specialist with Providence Medical Group. Dr. Patacini received her Doctor of Pharmacy and Master of Business Administration degrees from the University of Montana. She completed a PGY1 Pharmacy Practice Residency at Providence Portland Medical Center followed by a PGY2 Ambulatory Care Pharmacy Residency with Providence Medical Group. Dr. Patacini’ s practice interests include diabetes, with a special interest in Type 1 diabetes and diabetes technology.

Resources from this episode:
https://www.jdrf.org/t1d-resources/living-with-t1d/insurance/

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• DiabetesSangha website - Information on our free, weekly events and practices can be found under the 'Events & Schedule' tab.
• DiabetesSangha Youtube channel - Access free, guided meditations and talks on mindfulness and diabetes from DiabetesSangha.

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In this episode of Embracing Diabetes Liz and Amy catch up (and commiserate;)) about recent challenges, focusing particularly on hypoglycemia and its impacts. 

Despite setbacks like malfunctioning Dexcom sensors and stressful low blood sugar episodes, they share insights into diabetes management, highlighting the importance of self-advocacy, accessing medical supplies, and navigating the healthcare system. The conversation also touches on the emotional and physical toll of diabetes, workplace challenges, and the importance of programs like meditation for managing anxiety and diabetes. The episode serves as a candid reflection on living with diabetes, offering both personal experiences and practical advice.

As aways, please remember that the podcast is not medical advice. 

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On this episode we talk to Dr. Anne Marie McDonald, national research manager for the JDRF in Toronto, mother of two, and Ironman athlete who has lived with type 1 diabetes since the age of four. We had a great conversation and got to hear about her presentations on T1D and pregnancy, and women with T1D and aging, at the 2024 Connected In Motion virtual slipstream.

Featured on this episode:
Anne Marie MacDonald, MD MSc, is a modern health care professional and passionate medical thought leader who advocates for chronic disease self-management, preventive medicine, and healthy active living. She holds an undergraduate degree in Physiology from McGill University (Montreal, Canada), a Medical degree from the Jagiellonian University Collegium Medicum (Krakow, Poland) and a Master of Science degree from the University of Toronto (Toronto, Canada). Her expertise lies in healthy active living, digital health and behavior change, and chronic disease prevention and management. Dr. MacDonald has been living with type 1 diabetes for over 35 years. As an Ironman triathlete and marathon runner she loves helping T1Ds reach their athletic goals. When she's not working out, drinking a coffee or chasing after her 2 young children, she leads the Improving Lives research portfolio at JDRF Canada, the world's largest funder of type 1 diabetes research.

Resources from this episode:
Connected in Motion Slipstream
Twitter: @AM_MacDonaldMD
drannemariemacdonald.com
Dr. Michael Riddell, expert on T1D and exercise

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On this episode we talk to Dr. Michael Fulop, a clinical psychologist in Portland, Oregon who lives with type 1.  Michael's used his perspective in his work with children and adults with diabetes, often with co occurring learning, emotional, or attentional disorders. He's been very involved in research with Type 1 and practices using motivational interviewing. He has been a huge advocate and support for our diabetes community, and I hope you enjoy our conversation.

Featured on this Episode:
As a practicing clinical psychologist, Michael Fulop was attracted to MI because of his work with people struggling to manage or make changes in how they manage chronic illnesses such as Type 1 diabetes, ADHD, learning disorders, obesity, and the issues often accompanying these problems. Dr. Fulop was drawn to MI due to his own personal experiences with medical providers.

Because he lives with T1 diabetes every day, he is often “a patient, too.” He has seen a bevy of health care providers. One thing he has noticed is that he does much better with doctors, nurses, and even medical assistants who treat him with respect and don’t treat him as a “case.”

“I’ve found the best way to engage with my clients is to listen with a deep respect for their plight, their skills, what they are doing well; to get out of the way of their already earnest change efforts. I try to put aside my own needs to appear smart, to warn, cajole, instruct, teach, or confront.”

He thinks the most important efficient manner of learning MI is through focused practice and feedback. He feels there is no magic path or “best way” to train people in MI & motivation enhancement.

Dr. Fulop’s training principles:

• Humility
• Curiosity
• Start where you are
• Stay open

Learn more about Dr. Fulop’s MI Training Journey

What is Motivational Interviewing
[email protected]

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The lovely and talented Jennifer Smith returned for another conversation, this time focusing on  staying physically and emotionally healthy during the holidays.  Jenny is the director of lifestyle and nutrition at integrated diabetes, and also works as a registered dietitian, CDE and pump trainer.

When this podcast was recorded, Christmas and New Year's were right around the corner followed by the season of resolutions. So we wanted to kick off our conversation with a few questions about staying physically and emotionally healthy during the holidays. 


Featured on this Episode:
Jennifer Smith RD, LD, CDCES
Director of Lifestyle and Nutrition
Registered Dietitian, Certified Diabetes Care and Education Specialist
Integrated Diabetes Services

Jennifer Smith, RD, LD, CDCES, Director of Lifestyle and Nutrition, has lived with diabetes since childhood and has first-hand knowledge of diabetes management. She is passionate about achieving healthy nutrition and fitness goals while living with diabetes and in teaching others with diabetes to reach their goals. In 2009 she completed her first 70.3 triathlon, which brought a deeper understanding of athletic training requirements and the importance of nutrition to realize athletic goals. Women's health education is important to her and she works extensively with women to assist them in navigating the ins and outs of managing diabetes before, during and after pregnancy. 

Jennifer holds a Bachelor’s Degree in Human Nutrition and Biology from the University of Wisconsin-Green Bay. She is a Registered (and Licensed) Dietitian, Certified Diabetes Care and Education Specialist, and is an active member of the American Diabetes Association and the Association of Diabetes Care and Education Specialists. She is a contributing author for DiabetesSisters and Diabetes Daily and a contributor to the Juicebox podcasts.

Resources from this Episode

Co-Author: Pregnancy with Type 1 Diabetes: Your Month to Month guide to Blood Sugar Management

https://www.amazon.com/Pregnancy-Type-Diabetes-Month-Month/dp/1544267347/ref=sr_1_4?s=books&ie=UTF8&qid=1490135930&sr=1-4

Podcast: https://www.juiceboxpodcast.com/diabetesprotip

Thinking Like A Pancreas Blog - integrateddiabetes.com/blog/

Facebook:  Integrated Diabetes Services
Twitter: @Integ_Diabetes
www.integrateddiabetes.com

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Featured on this Episode:
Julia Flaherty is the author and illustrator of "Rosie Becomes a Warrior," a children's book series designed to empower children with type 1 diabetes to live their happiest lives. Flaherty has been living with type 1 diabetes since she was ten years old and has been contributing to the diabetes space professionally for almost a decade while working as a marketer in various industries. She loves connecting with others touched by diabetes and discussing its complex impact on life. Through her work, Flaherty strives to be a source of empowerment while recognizing the challenges of life with diabetes. She is committed to affecting positive change in the lanes she devotes herself to. 

Resources from this Episode:

Website: www.RosieTheT1DWarrior.com

Where to Buy the Books—Amazon and other retailers: https://www.amazon.com/dp/B0B1NTLJQP (Available in English & Spanish)

Please let me know if I missed anything. Can't wait to share the episode when it's ready! 

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On today's episode, we talk to Lissie Poyner, an Integrative Diabetes Health Coach and creator of the Needles and Spoons Health & Wellness Coaching Experiences. Lissie helps overwhelmed type one diabetics gain more predictability in their blood sugars so they can finally take their plans off hold and welcome new life experiences. Lissie's signature 360 degree approach to coaching creates a proactive space in taking you from confused to confident in your blood sugar management.

Featured on this Episode:
Lissie Poyner
Founder of Needles and Spoons Health & Wellness
Health Coaching for Type 1 Diabetics

Resources from this Episode:

Book a Free Consultation Call

Watch Our Free Webinar

Purchase the Diabetes Journal

https://needlesandspoons.com/

https://www.instagram.com/needlesandspoons_/

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Today, we had the chance to talk to Scott Ruderman and Rachel Dyer, the filmmakers behind the documentary Pay or Die, which is debuting in Los Angeles and New York City for November National Diabetes Awareness month.

Scott has lived with type one diabetes since he was a college freshman so this is a personal journey. It is an amazing, powerful film, and I like the language that Rachel uses to describe it "By creating a film that focuses on the human beings behind the headlines, we aim to lay bare the reality of life and death for individuals and families dealing with the inequities and injustices of healthcare in the richest country in the world."

Pay or Die will be a call to action to stand up and fight for change, end quote. I hope you enjoy our conversation and go see this film.

Featured on this episode:
Pay or Die 

NOVEMBER 1 | NEW YORK, NY | IFC CENTER
NOVEMBER 10 | LOS ANGELES, CA | LAEMMLE MONICA FILM CENTER
NOVEMBER 14 | STREAMING ON PARAMOUNT+

Director’s Statement

I was a carefree, 19-year-old college freshman when I was diagnosed with type 1 diabetes and my life was forever changed. Since that day, I have walked a life-or-death tightrope each and every day. Living with type 1 diabetes means having to micromanage the insulin I take, the food I eat, and the activities I do, in order to keep my blood sugar from going too high—risking blindness, amputation, and death—or too low, risking seizures and—again—death.

I thought that was hard enough. But then I turned 26, and aged out of my parents’ health insurance plan. That’s when I came face-to-face with the crushing financial reality of living with type 1 diabetes in America.

“Most of my adult life has been defined by one inescapable question: How can I make enough money as a filmmaker to afford the insulin I need to stay alive?” - Director Scott Ruderman

In 2018, my partner Rachael and I went to Vancouver, Canada to visit her family. Rachael encouraged me to see if I could get access to affordable insulin while we were there. We walked into a pharmacy, and the pharmacist showed me all the different types of insulin, ranging in price from $19 to $22 per vial. Right there and then, my eyes welled up with tears. Those exact same insulin vials—the same manufacturers, same chemical compositions—cost upwards of $300 per vial in the United States. How could that be?

I began to dig deeper. I reached out to other Americans living with type 1 diabetes and learned about the extreme measures they were taking simply to stay alive. PAY OR DIE is a deeply personal journey for me, and was born out of a sense of duty, as a filmmaker with type 1 diabetes, to use my filmmaking skills to bring attention to people who are struggling and even dying, senselessly.


ABOUT RACHAEL DYER, DIRECTOR I PRODUCER
As a dual Australian-Canadian citizen living and working in the US as a television and film producer, I've often found myself reeling from the complexity and exorbitant cost of the American healthcare system. But it wasn't until I met Scott that I truly saw and felt firsthand the toll it takes when a human being is forced to not only endure the physical and emotional burdens of living with a disease, but to do so within the harsh confines of a medical-industrial complex that monetizes their body, their life and their humanity.

We've set out to make a film that takes audiences on a journey similar to my own. By creating a film that focuses on the human beings behind the headlines, we aim to lay bare the reality of life — a