Empowered Patient Podcast

Vik Panda, VP Marketing, Adherium talks about their Hailie sensors which allow patients and doctors to track use of inhalers and help manage chronic respiratory illnesses like asthma and COPD. With a smart case for the inhaler and a mobile app, patients get alerts, nudges and data to help them adhere to a plan to keep rescue inhaler use to a minimum. Vik also shares additional insights about human behavior, what drives people to remember to take their medications and how technology can support medication adherence.

@GetHailie

HailieAdherium

Ryan Lanclos, Director of Public Safety Industries, Esri talks about how drone data is changing the way first responders are able to prioritize resources in the event of a hurricane or other disaster. Small drones are allowing safer analysis of damage with the ability to feed the real time data into predictive models that are able to create maps and visualizations that can help public safety officials and citizens to take action and think about options for recovery.

@esri

Esri

Dr. Anish Bhatnagar, CEO of Soleno Therapeutics, discusses Prader-Willi syndrome, a rare genetic disease that among other difficult symptoms, most markedly renders patients perpetually starving because of a dysfunctional neural pathway in the brain. This state, otherwise known as hyperphagia, can bring patients to the brink of severe sickness from overeating despite bring full, or from eating garbage, spoiled food, or sometimes even inedible objects. Anish talks about the hardships that this disease inflicts on its patients and its patients' loved ones raising them, and about DCCR, the experimental treatment his company is developing to address this significantly unmet need for patients struggling with PWS.

#Prader-Willi #PWS #SolenoTx #SLNO #RareDisease #DCCR

Soleno Therapeutics

Dr. Niels Riedemann, Co-founder and CEO of InflaRx, discusses the pervasive problem of inflammation in a host of diseases, and how InflaRx is tackling this problem with their clinical-stage antibody therapy, IFX-1. InflaRx believes that they have found the key to addressing inflammation across a range of diseases, in the form of a molecule in the blood, complement factor C5a. Their main focus is on using IFX-1, a monoclonal antibody, to block C5a and prevent its action in patients with hidradenitis suppurativa (HS), a devastating autoimmune disorder that manifests on the skin, to reduce inflammatory lesions and potentially prove an ability of IFX-1 to work in different inflammatory conditions.

#inflammation #InflaRx #complementsystem #HS #immunology #IFX1

InflaRx.com

Greg Duncan, CEO, Celtaxsys tells us about the work the company is doing to help reduce pulmonary exacerbations in patients with cystic fibrosis. Cystic fibrosis is a rare genetic life-threatening disease that affects over 70,000 people worldwide. Pulmonary exacerbations are sudden, severe respiratory events that ultimately lead to lung function decline. Celtaxsys' lead candidate, once-daily anti-inflammatory acebilustat, which the company is currently progressing to Phase 3 development, has the potential to prevent lung function decline by reducing the frequency of pulmonary exacerbations.

#cysticfibrosis #CFresearch #RareDisease #CFAware #acebilustat

Celtaxsys.com

Suma M. Krishnan, Founder and COO, Krystal Biotech discusses their approach to treating rare genetic skin diseases that lack any truly effective treatments. Krystal is developing the first ever topically applied gene therapy for the rare disease epidermolysis, a genetic condition characterized by extremely fragile skin that leads to devastating physical developments. Krystal is looking to apply their novel gene therapy to treat a wide range of skin conditions for those of all ages.

#RareDisease #EpidermolysisBullosa #Ichthyosis #GeneTherapy #Dermatology #FightEB #IchthyosisAwareness

Krystal Biotech

Christian Wilde, medical author and researcher has been studying the historical and medicinal benefits of turmeric. Evidence from cultures where turmeric is used regularly in cooking points to a wide range of benefits of this spice. Used in a concentrated form, this supplement seems to have a very positive impact on diseases that are related to inflammation and growth of tumors. With no obvious side-effects and little chance for an overdose, this supplement is getting more attention from drug developers and doctors.

MyHeartBook.com

Joel Wishkovsky, Founder and CEO, Simple Contacts shares his passion for changing the healthcare model to provide affordable care using telemedicine particularly to treat low-risk patients. Simple Contacts is an online model that allows those who wear contact lenses to take an online eye exam reviewed by a real doctor, and re-order lenses between visits to an eye doctor's office. With support from ophthalmologists, Joel is providing inexpensive eye healthcare that fits into the busy life of patients.

@SimpleContacts

SimpleContacts.com

Pierre Laurin, B.Sc.Pharm., M.Sc is President and CEO, Prometic Life Sciences, a company working to address varying forms of fibrosis. Pierre points out how much researchers have learned about fibrosis just over the last 10 years and how it is more common than you may think attacking vital organs for a variety of reasons. We also learn about what Prometic is doing to tackle highly progressive fibrotic diseases such as idiopathic pulmonary fibrosis (IPF) and the ultra-rare condition Alström syndrome.

#fibrosis #ipf #alstromsyndrome

Prometic Life Sciences

Crime Analysis Police Officer Adele Gardner is a gang intelligence expert who is working with Randy Raymond, a geographic information specialist in the Detroit public schools community district. They are applying GIS, visualization tools, and sentiment analysis of social media posts to drive rapid response and proactive communication to address guns in schools, gang violence, natural disasters, and threats by kids to harm themselves and others.

#Esri