In episode 07, the Flow team talk Endometriosis (part 1 - because Endo is Complex!)

BloodStream Podcast host.Amy Board joins hosts Jessica and Christie to unpack complex experiences of endometriosis. 

The Flow team speak to Lauren from Endo Black about her journey as a patient and advocate (rallying for patient led research and for accurate representation), and to Alison about her patient journey of coping with pain and dismissal for 7 years before finding treatment - AND the team talks about what it means to be on such journeys of seeking medical support for the extreme experience of “endo”.

PLUS, as always, a reminder that You’re Not Crazy (ie: in instances of medical gaslighting...) 

Program Notes:

Our patient interviews discuss their respective journeys with endometriosis - including instances of ruptured cysts, fibroids, adenomyosis, extreme pain - and the arduous task of continuing to seek adequate medical support. Our Flow team is looking forward to sharing part 2 next month... Learn more about the advocacy organizations mentioned in this episode below: 

PROGRAM NOTES / LINKS:

• ENDO BLACK

WEBSITE | INSTAGRAM | FACEBOOK | TWITTER

YouTube

• Lauren: YOUR FAVORITE ENDOMETRIOSIS COACH

WEBSITE | INSTAGRAM

Book

• The White Dress Project

WEBSITE | INSTAGRAM | FACEBOOK | TWITTER

 

• Article on “Womens’ Healthcare Gaslighting”: https://www.theatlantic.com/family/archive/2018/08/womens-health-care-gaslighting/567149/

 

• Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth

 

FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/dC2H

 

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

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BloodStream on Twitter 

 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org