From tests to treatment, here’s how to take your next steps with POTS.

In Part 2 of our conversation, Dr Marie-Claire Seeley takes us deeper into the journey of postural orthostatic tachycardia syndrome (POTS). We explore what investigations can actually help, practical management strategies that make a difference, and how to start feeling better day to day. Whether you’re newly diagnosed or years into navigating POTS, this episode offers clarity, hope, and real-world tools you can use.

If you find this episode helpful, share it with someone who might need it and follow Endo Untangled for more conversations that bring insight and support.

Unwell in Central Asia. Dismissed as “just anxiety.” Four kids, nursing shifts, and a fight to be believed. Today Dr Marie-Claire Seeley is CEO of the Australian POTS Foundation, using her PhD and lived experience to change care for people with POTS.

Why does endo care feel like a tug-of-war?

Pill pushback • stabbing pains • surgery debates.

Why do so many endo appointments leave patients feeling unheard and doctors feeling stuck? In this episode, GP Dr Alecia Macrow and EP Cherie Noble sit down with Prof Susan Evans and Dr Carmel Reynolds to unpack why care can feel like control, why “they just want to put me on the pill” is such a common refrain in forums, and how sharp “ovary pains” aren’t always what they seem.

We talk about:

• ​The disconnect across the desk and how to rebuild partnership
• ​Why hormonal treatments are offered so often (and how to talk about them without shutting down choice)
• ​Stabbing pains, ovary myths, and what’s really going on
• ​Surgery: when it helps, when it doesn’t, and why it’s not the whole story

This is a constructive, honest conversation for patients, clinicians, and anyone wanting to better navigate endo care.

A/Prof Evans discusses her current clinical trial with Alyra Biotech, you can find more information here:

https://alyrabiotech.com/clinical-trials/

as well as her new book "When Periods Hurt – A guide to periods, pain and endometriosis for Teens" available here:https://www.pelvicpain.org.au/product/whenperiodshurt/

We also discussed some of the great resources available at the Pelvic Pain Foundation, which are available hereLhttps://www.pelvicpain.org.au/find-support/download/

Ep 2: The Pelvic Pain “Super Syndrome” with Dr Sneha Wadhwani

Why the fatigue? Why the headaches? Why the lightning arse?!

In this episode, we dive into the messy overlap of gut issues, pelvic floor dysfunction, heavy periods, and crushing fatigue – and why these symptoms so often show up together. Dr Sneha Wadhwani joins us to explore what we’re calling the Pelvic Pain “Super Syndrome” and how recognising these patterns can completely shift how we approach care.

We talk about:

• ​How pelvic pain can be driven – and kept going – by multiple factors across the body and brain
• ​The difference between endometriosis as a disease and pelvic pain as a condition
• ​Why understanding the links between gut, nerves, hormones, and the pelvic floor is so important
• ​What patients and clinicians can do with this knowledge to get better outcomes

If you’ve ever felt like your symptoms don’t fit neatly into one box, this episode will help you see the bigger picture.

Check out Dr Sne’s podcast, “Everything from A to V” on Spotify here https://open.spotify.com/episode/1snC82WBvSrfWgtmi1v0m8?si=9SZVDO_zRr6QVbKV70t4pA

Exercise Physiologist Cherie Noble and Endo GP Dr Alecia Macrow talk through the 'why' of Endo Untangled, their personal stories, and what they're most looking forward to in the podcast.

Full series dropping soon