English - The Bloodline with Blood Cancer United Podcast

English - The Bloodline with Blood Cancer United Podcast

Download on the App Store

English - The Bloodline with Blood Cancer United Podcast episodes

  • Bridging the Gaps: Striving for Accessible Cancer Care
    Sharon Castellino, MD, MSc

    In this episode, Dr. Sharon Castellino, a pediatric oncologist at Children’s Healthcare of Atlanta, examines the impact of healthcare equity and barriers to care for patients and caregivers dealing with blood cancer.

    Dr. Castellino sheds light on how groundbreaking treatments have transformed the landscape of cancer care, emphasizing the crucial role that LLS, patient advocates and government entities can play in ensuring accessible and quality care for all.

    DOWNLOAD TRANSCRIPT
    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Clinical Trial Support Center
    •  Shared decision making interactive program
    • Advocacy and Public Policy
    • American Association for Cancer Research (AACR)
    • Resources for Children and Young Adults
    • Acute lymphoblastic leukemia
    • Hodgkin lymphoma
    • Additional LLS Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Financial support
      • Free telephone/web patient programs 
      • Free booklets 
      • Young Adult Resources
      • Caregiver support 
      • Caregiver Workbook
      • Survivorship Workbook
      • Online chats 
      • LLS Community 
      • Support groups 
      • Patti Robinson Kaufmann First Connection Program 
      • Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

        The post Bridging the Gaps: Striving for Accessible Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

        39 min
      • Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL)
        Teresa Altemeyer

        Join us on a heartfelt journey woven by support and education, as we speak to Teresa Altemeyer, who was diagnosed with chronic lymphocytic leukemia in 2009. In this episode, Teresa shares her experience with CLL from diagnosis through long-term survivorship. On the advice of her doctor, she went out to live her life, and found herself supporting other blood cancer patients and survivors in doing the same. Despite her own physical and mental health struggles with this disease, she shares beautiful advice learned along the way.

        DOWNLOAD TRANSCRIPT
        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Chronic lymphocytic leukemia
        • Mental health resources
        • Minimal/Measurable Residual Disease
        • Clinical Trial Support Center
        • Financial support
        • Finances podcast
        • Shared decision making interactive program
        • Shared decision making for CLL podcast
        • Light The Night
        • Advocacy
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Free Nutrition Consultations
          • Free telephone/web patient programs 
          • Free booklets 
          • Young Adult Resources
          • Caregiver support 
          • Caregiver Workbook
          • Survivorship Workbook
          • Online chats 
          • LLS Community 
          • Support groups 
          • Patti Robinson Kaufmann First Connection Program
          • Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

            The post Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

            44 min
          • Visions of Hope: Continuing to Beat AML
            Elie Traer, MD
            Karin Rodland, PhD
            Lee Greenberger, PhD

            The fight to effectively treat and cure the complex disease of acute myeloid leukemia (AML) continues.

            In this episode, we speak to Dr. Elie Traer, Dr. Karin Rodland and Dr. Lee Greenberger about an exciting new study for AML. The doctors share about a longtime collaboration between Oregon Health & Science University (OHSU) and Pacific Northwest National Laboratory (PNNL) using patient samples from LLS’s Beat AML Master Clinical Trial to further understand the proteins on the cancer cells, resulting in the development of more targeted treatments for AML patients.  

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Acute Myeloid Leukemia
            • Beat AML Master Clinical Trial
            • Beat AML Documentary
            • Stem Cell Transplant
            • Mapping The Proteogenomic Landscape Enables Prediction of Drug Response in Acute Myeloid Leukemia
            • Additional LLS Support Resources: 

              • Information Specialists 
              • Free Nutrition Consultations
              • Financial support
              • Free telephone/web patient programs 
              • Free booklets 
              • Clinical Trial Support Center
              • Young Adult Resources
              • Caregiver support 
              • Caregiver Workbook
              • Survivorship Workbook
              • Online chats 
              • LLS Community 
              • Support groups Patti Robinson Kaufmann First Connection Program
              • Support for this episode provided by: Abbvie Inc. and Genentech, Inc. & Biogen.

                The post Visions of Hope: Continuing to Beat AML first appeared on The Bloodline with Blood Cancer United Podcast.

                38 min
              • You Aren’t Alone: Navigating The Financial Impact of Cancer
                Monica Fawzy Bryant, Esq.

                Dealing with cancer extends beyond physical health, often bringing financial challenges that can overwhelm patients and their loved ones.  

                In this episode, we offer a beacon of support as we speak to Monica Bryant, Esq., a cancer rights attorney and Co-founder/Chief Operating Officer of Triage Cancer. She reviews the financial hurdles that may arise during treatment and provides practical strategies to help with economic hardships. She also highlights a wealth of resources designed to aid patients, covering everything from financial grants to transportation, Social Security benefits and navigating the complex world of health insurance.  

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Financial support
                • Triage Cancer
                • Continuation of Health Coverage (COBRA)
                • State Health Insurance Marketplace
                • Health Insurance Appeals Guide
                • Family and Medical Leave Act (FMLA)
                • Social Security Disability (SSDI)
                • Social Security Return To Work program
                • Road to Recovery – transportation
                • Be Informed: Beneficial Medicare Changes – podcast episode
                • Inflation Reduction Act and Medicare
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Free Nutrition Consultations
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Clinical Trial Support Center
                  • Young Adult Resources
                  • Caregiver support 
                  • Caregiver Workbook
                  • Survivorship Workbook
                  • Online chats 
                  • LLS Community 
                  • Support groups 
                  • Patti Robinson Kaufmann First Connection Program 
                  • Support for this episode provided by: Genentech, Inc. & Biogen.

                    The post You Aren’t Alone: Navigating The Financial Impact of Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

                    49 min
                  • Hope for a Rare Disease: Myelofibrosis
                    Naveen Pemmaraju, MD

                    “If you have a rare disease, it’s not rare to you.”

                    In this episode, Dr. Naveen Pemmaraju of MD Anderson Cancer Center in Houston, TX, sheds light on the latest treatment advancements for myelofibrosis. The pace of scientific discovery for rare diseases is moving at a fast rate, resulting in better outcomes for myelofibrosis patients.

                    *This episode was recorded on Rare Disease Day, February 29, 2024

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Myelofibrosis
                    • Myeloproliferative Neoplasms (MPNs)
                    • Acute Myeloid Leukemia
                    • CAR T-cell Therapy
                    • Immunotherapy Fact Sheet (Bispecific Antibodies)
                    • Stem Cell Transplant
                    • TRANSFORM-1 trial
                    • American Society of Hematology (ASH)
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Financial support
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Clinical Trial Support Center
                      • Young Adult Resources
                      • Caregiver support 
                      • Caregiver Workbook
                      • Survivorship Workbook
                      • Online chats 
                      • LLS Community 
                      • Support groups 
                      • Patti Robinson Kaufmann First Connection Program 
                      • Free Nutrition Consultations
                      • Support for this episode provided by: GSK plc.

                        The post Hope for a Rare Disease: Myelofibrosis first appeared on The Bloodline with Blood Cancer United Podcast.

                        39 min
                      • How New Therapies Are Changing The Future of Myeloma
                        Nishi Shah, MD, MBBS

                        Remarkable progress has been made in the treatment of myeloma over the past decade, giving patients and families much hope for the future. In this episode, we speak to Dr. Nishi Shah of Montefiore Einstein Comprehensive Cancer Center in New York City. While the wide variety of therapies available to patients are discussed, this episode also focuses on the newest, cutting-edge therapies for myeloma, such as CAR T-cell therapy and bispecific antibodies.  

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Multiple Myeloma
                        • CAR T-cell Therapy
                        • Bispecific Antibodies – Immunotherapy Booklet
                        • Stem Cell Transplant
                        • Multiple Myeloma and Agent Orange
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Financial support
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Clinical Trial Support Center
                          • Young Adult Resources
                          • Caregiver support 
                          • Caregiver Workbook
                          • Survivorship Workbook
                          • Online chats 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program 
                          • Free Nutrition Consultations
                          • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

                            The post How New Therapies Are Changing The Future of Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

                            32 min
                          • Living with Myeloproliferative Neoplasms (MPNs)

                            In the episode, we explore the family of diseases called myeloproliferative neoplasms (MPNs). Dr. Anand Patel and Dr. Olatoyosi Odenike of The University of Chicago Medicine share the latest advances in treatments for MPNs, including myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET). We also highlight how treatment teams prioritize the improvement of patients’ quality of life as a key aspect of care.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Myeloproliferative Neoplasms (MPN)
                            • MPN Booklet
                            • Chronic Myeloid Leukemia
                            • Acute Myeloid Leukemia
                            • Hopeful Advancements for Chronic Myeloid Leukemia (CML) – podcast episode
                            • Stem Cell Transplant
                            • American Society of Hematology (ASH)
                            • Additional LLS Support Resources: 

                              • Information Specialists 
                              • Financial support
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Clinical Trial Support Center
                              • Young Adult Resources
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Online chats 
                              • LLS Community 
                              • Support groups 
                              • Patti Robinson Kaufmann First Connection Program 
                              • Free Nutrition Consultations
                              • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                                The post Living with Myeloproliferative Neoplasms (MPNs) first appeared on The Bloodline with Blood Cancer United Podcast.

                                48 min
                              • Bite By Bite: Supporting Cancer Patients Through Nutrition

                                Nutrition is a crucial part of cancer care. Many patients and caregivers play an active role in managing their nutrition during and after treatment. In this episode, we discuss nutrition after a cancer diagnosis with Luz Chavez and Susanne Massarani, Registered Dietitians from The University of Chicago. Learn the basics of oncology nutrition and how a good diet can help combat treatment-related weight loss and side effects. Caregivers will also benefit from tips on how to care for their loved ones when they experience appetite changes or other gastrointestinal symptoms.

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • LLS Nutrition Resources and Free Consults
                                • New American Plate
                                • Graft-vs-host disease (GVHD)
                                • CAR T-cell Therapy
                                • Stem Cell Transplant
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Financial support
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Clinical Trial Support Center
                                  • Young Adult Resources
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Survivorship Workbook
                                  • Online chats 
                                  • LLS Community 
                                  • Support groups 
                                  • Patti Robinson Kaufmann First Connection Program 
                                  • Free Nutrition Consultations
                                  • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                                    The post Bite By Bite: Supporting Cancer Patients Through Nutrition first appeared on The Bloodline with Blood Cancer United Podcast.

                                    42 min
                                  • Exploring Hairy Cell Leukemia
                                    Caner Saygin, MD

                                    A diagnosis of cancer can cause significant emotional distress to a patient.  A diagnosis of a rare leukemia can leave patients and caregivers feeling unsure and nervous about the future.  In this episode, we speak to Dr. Caner Saygin of University of Chicago Medicine about hairy cell leukemia, a rare, but treatable cancer.  Dr. Saygin delves into this disease, highlighting the need for an accurate diagnosis, as well as current and emerging treatments.  Patients will be given hope for a good quality of life while managing this disease.

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Hairy Cell Leukemia
                                    • Flow Cytometry and Next Generation Sequencing Tests
                                    • MRD (Minimal/Measurable Residual Disease)
                                    • Hairy Cell Leukemia Foundation
                                    • Additional LLS Support Resources: 

                                      • Information Specialists 
                                      • Financial support
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Clinical Trial Support Center
                                      • Young Adult Resources
                                      • Caregiver support 
                                      • Caregiver Workbook
                                      • Survivorship Workbook
                                      • Online chats 
                                      • LLS Community 
                                      • Support groups 
                                      • Patti Robinson Kaufmann First Connection Program 
                                      • Free Nutrition Consultations
                                      • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                                        The post Exploring Hairy Cell Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

                                        31 min
                                      • Improving Quality of Care for Myelodysplastic Syndromes (MDS)
                                        Colin Vale, MD

                                        Myelodysplastic Syndromes (MDS) is a group of diseases that have a variety of different treatments and outcomes. In this episode, we speak to Dr. Colin Vale of Emory University in Atlanta, GA, about the treatments for MDS, the potential for transforming into acute myeloid leukemia (AML), and new strategies to give patients the quality of care that they deserve.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Myelodysplastic Syndromes (MDS)
                                        • IMerge Phase 3 Study (Imetelstat)
                                        • Classification Systems
                                        • Germline Predisposition Article
                                        • Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) | The Bloodline with LLS
                                        • International Prognostic Scoring System
                                        • Allogeneic Stem Cell Transplantation
                                        • Additional LLS Support Resources: 

                                          • Information Specialists 
                                          • Financial support
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • Clinical Trial Support Center
                                          • Young Adult Resources
                                          • Caregiver support 
                                          • Caregiver Workbook
                                          • Survivorship Workbook
                                          • Online chats 
                                          • LLS Community 
                                          • Support groups 
                                          • Patti Robinson Kaufmann First Connection Program 
                                          • Free Nutrition Consultations
                                          • Support for this episode provided by: Taiho Oncology, Inc.

                                            The post Improving Quality of Care for Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

                                            24 min

                                          About English - The Bloodline with Blood Cancer United Podcast

                                          From the publisher's feed

                                          A podcast for patients and caregivers