Andy Slavitt, the former head of Medicare, Medicaid, and the Affordable Care Act (ACA) under President Obama, joins us for a very special interview segment on the importance of the ACA for people with hemophilia. UK-based community advocate Laurence Woollard provides insight into the UK bleeding disorders community and his personal journey in hemophilia advocacy. Natalie leads a New York Times story on the debate surrounding how to price gene therapy treatments, and Patrick provides an overview of the recent, terrible news of a patient death during the Fitusrian clinical trial - what happened, what it means, and what happens next? Listen now on Episode 16 of The BloodStream Podcast.

 

Exclusive Sponsor for Episode 16: Shire

 

Like Share Comment Segments

Like: NYT: New Gene-Therapy Treatments Will Carry Whopping Price Tags

 

Share: Laurence Woollard’s “The Endeavour to Progress” 

 

Comment: Alnylam Suspends All Trials of Fitusiran After Hemophilia A Patient Dies in Phase 2 Study // Story from RareDr.com // Story from FierceBiotech

 

Andy Slavitt Interview

• JAMA Forum: Reforming Medicaid
• USA Today Column: Spare America a do-over on health care. Seize the bipartisan moment.

 

Other Links of Interest

• Clinical Trials 101 from HemAware
• Clinical Trials from the Hemophilia Federation of America

• Powering Through Podcast
• Ask The Expert Podcast
• Making-Of Bombardier Blood Video
• Stop The Bleeding! Season 7 - Behind The Story Videos
• Hope For Hemophilia

 

BloodFeed:

https://www.bloodfeed.com

Powering Through Podcast

http://poweringthrough.org/podcast

Ask The Expert Podcast

http://bloodstreamexpert.com