This month on The BloodStream Podcast, we discuss how one executive director in China has creatively given hope, dignity and income to her patients, we take you through how to stay fit and healthy while travelling, and we introduce a brand new game here on the BSpod. Plus, Hannah Lutz shares her story of life with Type 3 Von Willebrand Disease and Michael Hargett- the hemophiliac who lost 280 pounds and became the first person with hemophilia to undergo a heart transplant- joins us as today’s interview guest to discuss his remarkable journey. All that and more on Episode 21 of The BloodStream Podcast!

 

Exclusive Sponsor: Shire

Remembering Barry Haarde: Powering Through HFA 2016

Like Segment: How to Fit in Exercise While You Travel

 

Share Segment: Hannah Lutz - Type Three Girl 

 

Comment Segment: How Paper and Scissors Gave Back Dignity to Hemophilia Patients

 

Interview Segment: Michael Hargett’s NewHeart4Mike.com website

 

Community News in 60 Seconds:

• Registration for NHF’s Washington Days
• Registration for NHF’s Bleeding Disorders Conference
• Patient Access Network Foundation Opens Hemophilia Patient Assistance Fund
• Hemophilia Puts Damper on Patient’s Sex Life and Health Status, Study Reports
• My Life, Our Future to be Featured in CDC Public Health Webinar
• NORD Launches 7,000 Mile Rare Movement
• Rebinyn Now Available for the Treatment of Hemophilia B
• Sanofi, Facing Threat From Generics, Moves to Buy Hemophilia Drug Makers (Bioverativ)
• Europe’s CHMP Recommends Approval of Hemlibra to Treat Hemophilia A (with Inhibitors)
• Shire Granted European Union Marketing Authorization for Adynovi

 

Parting Shots:

#EAHAD2018 on Twitter

 

Other Links of Interest

• Project CALLS from Hemophilia Federation of America

• HTCtour.org- Stop The Bleeding’s Guided Tour of a Hemophilia Treatment Center
• BloodStreamMedia.com

• Powering Through Podcast
• Ask The Expert Podcast

 

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