February 25, 2025

EP 90: Surviving Locked In Syndrome: The Jake Haendel Story- Part 2

1 hour 15 minutes

Part 2

Jake Haendel, the only known survivor of stage four Locked-In Syndrome, joins the Nurses Uncorked Podcast to share an unbelievable story of survival, addiction, and a miracle recovery. Acute Toxic Progressive Leukoencephalopathy (ATPL) is a complex rare neurological condition that attacks the white matter of the brain. Sometimes referred to as a pseudo-coma, it has been described as your body becoming a prison. Jake discusses the awkward moments he overheard while in a locked-in state, the significance of nurses' interactions, and his journey to regaining communication. The conversation emphasizes the need for healthcare professionals to maintain awareness of their patients' potential perceptions and the impact of their words and actions. In this conversation, he shares his profound experiences with isolation, trauma, and recovery, emphasizing the importance of humor, positivity, and resilience. Additionally, Jake introduces his accessibility app, Ahoi, designed to help disabled individuals navigate public accessibility. The discussion concludes with insights into his podcast, Blink, where he plans to share his full story and the challenges he faces during his recovery.

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Chapters:

03:07 Jake Haendel Introduction

04:40 Understanding Locked-In Syndrome

06:15 A Pivotal Moment in Recovery

10:30 Learning to Blink

11:47 First Message Communicated

14:45 The Journey of Recovery

17:20 The Power of Humor in Recovery

22:12 Future Recovery and Uncertainty

24:50 Pain Tolerance and Coping Mechanisms

25:35 Driving Towards Independence

29:20 Reflections on Addiction and Recovery

36:15 The Impact of Choices on Life's Path

41:30 Creating Accessibility Solutions with Ahoi

48:45 Witnessing Trauma While Locked-In

59:30 Navigating Recovery and Support Systems

1:00:20 The Complexities of Hospice Care

1:07:45 Reflections on Life and Mortality

1:13:20 The Enema Award

1:16:17 Follow Jake's Journey

Help support Jake Haendel's recovery:

https://www.gofundme.com/f/jacob-haendels-recovery-fund

Connect with Jake Haendel:

Instagram: @miraclman31. https://www.instagram.com/miraclman31/#

Tiktok: @miraclman31. https://www.tiktok.com/@miraclman31

YouTube: @miraclman31. https://www.youtube.com/@miraclman31

Blink | Jake Haendel Story Podcast:

https://www.blinkthepodcast.com/

https://podcasts.apple.com/us/podcast/blink-jake-haendels-story/id1779813806

https://open.spotify.com/episode/1f8xqkipaynS2uqYJp1lUM?si=J9Cxj91_SJ6tZ06FQBKplQ

Instagram: @blinkthepodcast https://www.instagram.com/blinkthepodcast/?igsh=MW11dGRoeXhjamozbw%3D%3D&utm_source=qr#

Ahoi App:

https://apps.apple.com/us/app/ahoi/id1629306597

Sources:

CBS Sunday Morning Interview: https://www.youtube.com/watch?v=tFVpFyj0570

https://www.sciencedirect.com/science/article/abs/pii/S0022510X22002829

https://pmc.ncbi.nlm.nih.gov/articles/PMC7028629/

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