Listener discretion is advised. This episode contains a personal account of a traumatic parenting journey, including a brief mention of self-harm. If this conversation brings anything up for you, help is available. You can contact Lifeline anytime on 13 11 14.

In this powerful episode, Fi is joined by Amy, who shares the deeply personal and challenging story of her son, Thomas. Amy recounts how a negative experience at a residential stay led to an oral aversion, dehydration, and ultimately, an NG tube.

Amy speaks with raw honesty about the isolation that followed, the lack of resources in New South Wales, and the emotional toll it took on her and her family. She details her fight within a fractured health system, facing rejections from multiple paediatricians and navigating the conflict between public and private care. This is a story about a mother’s desperation, resilience, and the profound impact of finally finding a supportive medical team that helped Thomas become tube-free.

A massive thanks to our sponsor Blended Tube Feeding.

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We’re building a community here – one story at a time – and I’m so glad you’re along for the ride. Please feel free to reach out!

Instagram: @beyond.the.tube.podcast 

Email: [email protected]

This is a Podvan Media production.