The latest in PWSA events and PWS news in research, family support, and advocacy. Get a brief introduction to International 15Q Day and how you can help support PWSA | USA for our 2024 Angel Drive fundraiser. Other topics include the 2025 International PWS conference and FPWRs travel scholarship, Rare Aware Art Share birthday theme, our Hope in Action video series, a PWS Christmas party in the Pacific Northwest, PWS conference in Texas, Dorothea Lant's new appointment on RDLA advisory committee, Kristi and Justice Rickenbach's' feature in Soleno video, one family's story of how PWSA | USA helped them through a medical emergency, Ask Nurse Lynn's anesthesia response, upcoming webinar for Babysitter and Care Provider training, journaling and story sharing circle, Trend's new report on PWS and pain, a new site for Harmony TEMPO trial, study to measure hyperphagia, calls for Abstracts, upcoming ECHO 4 PWS webinar on Orthopedics and PWS, and our Holiday Gift Guide - Sensory Edition. Anne also shares what she has learned and appreciates about her first year of working with PWSA | USA. 

LINKS

Donate to our Angel Drive: Angel Drive 2024 - Prader-Willi Syndrome Association | USA

International 15q Day - Prader-Willi Syndrome Association | USA

Share your Spotlight on Hope: Share Your Story - Prader-Willi Syndrome Association | USA

FPWR Travel Awards 2025 - IPWSO

2025 United in Hope Conference - Prader-Willi Syndrome Association | USA

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Hope in Action - YouTube

PWSA of Washington and Oregon Christmas Party: vsheadel@gmail.​comor 360-609-5197

Texas Prader-Willi Association Conference: 713-253-9032

Soleno Therapeutics "Our Stories": A Journey into Adulthood with Prader-Willi Syndrome (PWS) | Kristi & Justice's Experience

PWSA | USA Hope in Action: A Lifeline for Families in Crisis - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn Blog: Ask Nurse Lynn: Anesthesia Concerns and Dental Procedure - Prader-Willi Syndrome Association | USA

Submit your question for Nurse Lynn: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Babysitter and Care Provider Training Webinar: Webinar Registration - Zoom

TREND Webinar PWSA

Journal and Story Sharing Workshop: [email protected]

TREND Pulse Report: PWS and Pain - Prader-Willi Syndrome Association | USA

Harmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USA

Hyperphagia Study: Parent Consent Form

Call for Abstracts: Conference 2025 - IPWSO

ECHO 4 PWS Orthopedics and PWS webinar: Meeting Registration - Zoom

Project Echo - Prader-Willi Syndrome Association | USA

Holiday Gift Ideas: Sensory Edition - Prader-Willi Syndrome Association | USA

Intro Music: https://www.bensound.com/; License certificate #2242442