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Ep35: PWS and Sibling Support
On the podcast today is our beloved Parent Support Coordinator Kristi Rickenbach, along with Board members Denise Servais and Lisa Lamb, and Marketing and Communications Coordinator, Anne Fricke. They are all parents of multiple children, including a child with Prader-Willi syndrome.
In their conversation, they discussed feelings of getting it wrong - of over-managing social situations and lives, letting siblings take on perhaps too much responsibility, over-compensating for the challenges of PWS and time spent with the child with PWS, and other feelings of inadequacies.
They discuss the importance of quality time, making sure the sibling is heard, how to validate their feelings, and be vulnerable, fairness and the difference between equality and equity, and why PWS parents should be talking honestly with their children.
We want you all to know that you are not alone, that feeling inadequate or that you’re not getting it quite right, is absolutely normal and these moms can relate. We also want to know how we, as an organization and as parents, can better support siblings in our community. Please feel free to email Anne at [email protected] and let us know the kind of support you need or share with us your tips for supporting your sibling.
Join our bi-weekly Pulse email newsletter at Join our Newsletter - Prader-Willi Syndrome Association | USA
Intro Music: https://www.bensound.com/; License certificate #2242442
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By PWSA | USA
5
1919 ratings
On the podcast today is our beloved Parent Support Coordinator Kristi Rickenbach, along with Board members Denise Servais and Lisa Lamb, and Marketing and Communications Coordinator, Anne Fricke. They are all parents of multiple children, including a child with Prader-Willi syndrome.
In their conversation, they discussed feelings of getting it wrong - of over-managing social situations and lives, letting siblings take on perhaps too much responsibility, over-compensating for the challenges of PWS and time spent with the child with PWS, and other feelings of inadequacies.
They discuss the importance of quality time, making sure the sibling is heard, how to validate their feelings, and be vulnerable, fairness and the difference between equality and equity, and why PWS parents should be talking honestly with their children.
We want you all to know that you are not alone, that feeling inadequate or that you’re not getting it quite right, is absolutely normal and these moms can relate. We also want to know how we, as an organization and as parents, can better support siblings in our community. Please feel free to email Anne at [email protected] and let us know the kind of support you need or share with us your tips for supporting your sibling.
Join our bi-weekly Pulse email newsletter at Join our Newsletter - Prader-Willi Syndrome Association | USA
Intro Music: https://www.bensound.com/; License certificate #2242442
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