The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

50th Anniversary

PWSA Memory: Volume33-Number4.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign

2025 United in Hope International PWS Conference Recap-General

2025 United in Hope International PWS Conference Video

Fundraisers

No Gimmes for Jimmy - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Volunteer Spotlight: Pillar of Strength, Support, and Hope - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWSA | USA Helps Usher in New Era of Rare Disease Research with Launch of Florida’s Sunshine Genetics Act - Prader-Willi Syndrome Association | USA

Family Support

Building Our Social Skills (BOSS) Program Begins Again - Prader-Willi Syndrome Association | USA

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Ocular Issues and Eye Patching - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Study Invitation email: [email protected]

Recognizing and Addressing Hyperphagia Early in Prader-Willi Syndrome: Strategies and Insights for Pediatric Endocrinologists and Their Care Team

Peer-to-Peer Challenge: Interactive Case Studies in Prader–Willi Syndrome

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA

www.heroforpws.com

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Prader-Willi Syndrome Glossary - PWSA | USA

Intro Music: https://www.bensound.com/; License certificate #2242442