The latest in PWSA | USA events and PWS news in research, family support, and advocacy.  

24 Hour Crisis Line: 941-312-0400 

Make-A-Will Month 

Your PWS Story Matters—And the Legacy You Leave Can Echo Far into the Future - Prader-Willi Syndrome Association | USA 

Planned Giving | PWSA USA 

PWSA Memory 

PWSA Memory: PWSA Conference Held with Prader-Willi California Foundation in 1999 - Prader-Willi Syndrome Association | USA 

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA 

Events  

PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign 

Fundraisers 

2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA 

Contact email: [email protected]

16th Annual Hunter Lens Golf Tournament - Prader-Willi Syndrome Association | USA

PWSA Fundraising Pages - Campaign 

Spotlight on Hope 

Volunteer Spotlight: Melissa Rivas - Spreading Joy, Creativity, and Hope - Prader-Willi Syndrome Association | USA 

Share Your Story - Prader-Willi Syndrome Association | USA 

Advocacy 

Exciting News! PWS Included in FY26 Department of Defense Appropriations Bill for Medical Research

Medicaid-Fact-Sheet-1.pdf 

Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA 

Family Support 

Understanding Gastric Motility and Gastroparesis in PWS - Prader-Willi Syndrome Association | USA 

Building Our Social Skills (BOSS) Program Begins Again - Prader-Willi Syndrome Association | USA  

Ask Nurse Lynn: Leptin and Hyperphagia

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA  

Research 

Harmony Biosciences TEMPO Trial Webinar: Webinar Registration - Zoom 

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA 

www.heroforpws.com 

Announcements/Resource Spotlight 

Qualifying for Social Security Disability with PWS 

Intro Music: https://www.bensound.com/; License certificate #2242442