The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Gala Live Auction

PWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION

50th-Gala-How-to-Bid-on-the-Silent-Auction.pdf

PWSA Memory

1982_Vol-VIII-N5-Sept-Oct-1982.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

PWSA | USA's 50th Anniversary: Journey of Hope Gala - Campaign

Fundraisers

2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA

Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign

Answers for Audrey - Campaign

Prader-Silly: A Night of Rare Laughs - Prader-Willi Syndrome Association | USA

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Rising Star in the PWS Community and Beyond - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

2024-Rare-Roadmap_Rare-Research.pdf

Global PWS Registry - Prader-Willi Syndrome Association | USA

TREND Community - Prader-Willi Syndrome Association | USA

Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA

Family Support

Adults with PWS: Living a Happy, Healthy Life - Prader-Willi Syndrome Association | USA

C15 Foundation – Where Unlimited Potential Can Grow and Thrive

Affecting Sleep with PWS - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Parent perceptions of genetic diagnosis in the inpatient setting in the neonatal intensive care unit (NICU), pediatric intensive care unit (PICU), and cardiac care unit (CCU)

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA

Seattle, Washington

www.heroforpws.com

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications

Announcements/Resource Spotlight

NICU-Booklet-Rebranded-2022.pdf

Intro Music: https://www.bensound.com/  License certificate #2242442