The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Gala

Journey of Hope Gala Recap: Celebrating 50 Years of PWSA | USA - Prader-Willi Syndrome Association | USA

Tribute Video: Celebrating 50 Years of PWSA | USA!

PWSA | USA's Journey of Hope Gala Photo Gallery

PWSA Memory

1987_Vol-XIII-N4-Jul-Aug-1987.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events | Fundraisers

2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

Calling Missouri PWS Families! - Prader-Willi Syndrome Association | USA

Calling Indiana PWS Families! - Prader-Willi Syndrome Association | USA

Understanding P&T Committees and DUR Boards - Prader-Willi Syndrome Association | USA

Family Support

Intervening with a Bully, One Family’s Experience - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Stretch Marks with Estradiol - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

TREND Community - Prader-Willi Syndrome Association | USA

2025-Whats-TRENDing-Birth-Stories-and-PWS.pdf

Acadia Shares Results of Phase 3 Carbetocin Trial: Primary Endpoint Not Met - Prader-Willi Syndrome Association | USA

Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA

www.heroforpws.com

HERO Informational Webinar Registration: Webinar Registration - Zoom

HERO Clinical Trial for ARD-101 Now Enrolling Open-Label Extension (OLE) - Prader-Willi Syndrome Association | USA

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications

Announcements/Resource Spotlight

Therapeutic-Interventions-2011.pdf

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