The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Angel Drive

Angel Drive 2025 - Prader-Willi Syndrome Association | USA

Hope in Action: Adults with PWS Advisory Board Members Share the Importance of Self-Advocacy

PWSA Memory

1993_Vol-XVII-N5-Sept-Oct-1993.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events | Fundraisers

Claus for a Cause - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: The Story of George - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

Calling Iowa PWS Families for P&T Committee - Prader-Willi Syndrome Association | USA

Calling Alaska PWS Families - Prader-Willi Syndrome Association | USA

Understanding P&T Committees and DUR Boards - Prader-Willi Syndrome Association | USA

Wisconsin Families: We Need Your Voice to Support SB 203 - Prader-Willi Syndrome Association | USA

Family Support

Operation Holiday Cheer Returns to Support PWS Families in 2025 - Prader-Willi Syndrome Association | USA

Respite & Relationship: PWS Moms’ Hiking Weekends - Prader-Willi Syndrome Association | USA

Community Collectives: Creating Support for Caregivers - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Preventing and Treating Constipation - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

2025_11_03_Whats-TRENDing-Community-Themes-and-PWS.pdf

TREND Community - Prader-Willi Syndrome Association | USA

Aardvark Therapeutics' HERO Clinical Trial Informational Webinar - October 15, 2025

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications

Announcements/Resource Spotlight

Strategies, Interventions, and Routines for the Prevention or Mitigation of Skin Picking in Individuals with Prader-Willi Syndrome

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