The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

Events | Fundraisers

D.C. Fly-In 2026 - Prader-Willi Syndrome Association | USA

2026 Residential Providers Conference - Prader-Willi Syndrome Association | USA

2026 Moms' Retreat - Prader-Willi Syndrome Association | USA

2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USA

PWSA Fundraising Pages - Campaign

Spotlight on PWS

Share Your Story - Prader-Willi Syndrome Association | USA

Angel Drive

Hope in Action: Where Community Becomes Family — Annie’s Story

Hope in Action - YouTube

Podcast

Ep73: Stacy's End of Year Message | PWS United

Advocacy

Rare Disease Week - EveryLife Foundation for Rare Diseases

Rare Disease Week 2024

Family Support

Sibling Spotlight: Ella Frazier’s Heart for Service - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: PWS BMI Ranges - Prader-Willi Syndrome Association | USA

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

PWSA | USA’s 2025 Research Year in Review - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

Exercise, Movement, and Mental Health - Prader-Willi Syndrome Association | USA

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