The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

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Residential Providers Conference - Prader-Willi Syndrome Association | USA

Spotlight on PWS

Share Your Story - Prader-Willi Syndrome Association | USA

Resource Spotlight

PWS Rare Disease Day-15 Ways to Raise Awareness

Share Your Rare Story - Prader-Willi Syndrome Association | USA

Events | Fundraisers

Plunge for PWS - Campaign

Email Anne at [email protected] to be challenged.

Family Zoo Day - Miami | Prader-Willi Florida Association

PWSA | USA EVENTS Webpage

PWSA Fundraising Pages - Campaign

Podcast

Ep78: Miriam Chernick: Educating the Community | PWS United

Home - Global Prader-Willi Syndrome Registry

Advocacy

Congress Passes Five-Year Reauthorization of the Rare Pediatric Disease PRV Program! - Prader-Willi Syndrome Association | USA

Official Super Bowl 60 Game Program

PWSA | USA and Soleno Therapeutics Take PWS Awareness to the Super Bowl - Prader-Willi Syndrome Association | USA

PWA of PA Member Questionnaire

Family Support

Nasogastric and Gastric Feeding Tubes: What, Why, and When They Are Needed - Prader-Willi Syndrome Association | USA

PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: Behavior and Medications for Adults - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Home - Global Prader-Willi Syndrome Registry

Announcements/Resource Spotlight

Stephanie Elizabeth Pircher Obituary (2026) - Windsor, MO - Hadley Funeral Home - Windsor

Intro Music: https://www.bensound.com/  License certificate #2242442 

Disclaimer for show notes: 

This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.