Have you heard of IVIg?

It is a blood/plasma product administered by infusion.

I was administered IVIg by the pulmonologist who was overseeing my care as I was working to get on the lung transplant list and waiting to be transplanted.

An uncommon side effect of IVIg is meningitis and I got it with my first infusion.

I was getting IVIg for a week of every month for 2.5 years.

I got meningitis five times. Eventually, the side effects of having meningitis wasn't worth the limited quality of life the medication was giving me. This was a really difficult decision.

What if the medicine that is saving your life is also robbing you of a quality that makes life worth living?

Have you had an infusion reaction?

Have you had meningitis from IVIg?