Welcome back for another episode of Tube to Table! This week we are talking about how to measure progress while weaning your child from their feeding tube. We have been hearing from various families that we work with that there is confusion over how progress is measured. This is also a common conversation we find ourselves having with healthcare teams when discussing a child’s progression throughout a tube wean. Last week, we talked about how to initiate the conversation with your medical team and the importance of providing them resources on tube weaning. This week, we are focusing on how to shift the focus from a “number” to the whole child when looking at measures of success. There is confusion when people look at factors that we consider parameters or boundaries, as the way to measure progress. This week’s episode will identify the four measures of progress that we focus on at Thrive and why they are important. Heidi and Jennifer will break down each factor to discuss what to look for and how to identify these measures of success. 

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!