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In the twenty ninth episode of HC&U, we interview Brandon Tornes, father to Mason, a patient diagnosed Cobalamin C.
We discuss Mason's journey with Cobalamin C and vision loss. We talk about coping with vision deficits in relation to school, extracurriculars, and everyday life.
During Lindsey's Low Pro Bitesss, we have a special guest and enjoy some southern gravy.
Please share the podcast and give us a 5 star rating and review!
Help HCU Network America raise money for research by registering for the Race for Reseach here!
Check out HCU Network America!
HC&U on Facebook
Find Our Low Protein Ideas on Instagram!
HC&U on Twitter
Email the podcast!
HCU Network America on Twitter
What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
By Ben and Lindsey Massengale5
1818 ratings
In the twenty ninth episode of HC&U, we interview Brandon Tornes, father to Mason, a patient diagnosed Cobalamin C.
We discuss Mason's journey with Cobalamin C and vision loss. We talk about coping with vision deficits in relation to school, extracurriculars, and everyday life.
During Lindsey's Low Pro Bitesss, we have a special guest and enjoy some southern gravy.
Please share the podcast and give us a 5 star rating and review!
Help HCU Network America raise money for research by registering for the Race for Reseach here!
Check out HCU Network America!
HC&U on Facebook
Find Our Low Protein Ideas on Instagram!
HC&U on Twitter
Email the podcast!
HCU Network America on Twitter
What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u