HC&U

By Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show i... more

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FAQs about HC&U:

How many episodes does HC&U have?

The podcast currently has 38 episodes available.

HC&U episodes:

January 30, 2025 Episode 35 with Yasenia Castro
In the thirty fifth episode of HC&U, we interview Yasenia Castro whose sister, Enelcita,is an HCU patient.

We discuss Enelcita's diagnosis journey and the behavioral symptoms that arose throughout this time. We also talk about the progress Enelcita has made since her diagnosis.

During Lindsey's Low Pro Bitesss, we talk about vegan shepherd's pie.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Vegan Shepherd's Pie

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
34min
December 26, 2024 Episode 34 with Laurie Bonucci
In the thirty fourth episode of HC&U, we interview Laurie Bonucci whose son, Joe, is a Classical HCU patient.

We discuss Joe's delayed diagnosis and the impact that had on his life. We also talk about the awesome successes Joe has had throughout his HCU journey.

During Lindsey's Low Pro Bitesss, we talk about one of Ben's favorite dishes, veggie pizza.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
37min
November 28, 2024 Episode 33 with Holly Fulginiti
In the thirty third episode of HC&U, we interview Holly Fulginiti whose husband Chris was diagnosed with homocystinuria.

We discuss the Chris's long journey to a diagnosis and the role Holly played in advocating for Chris.

During Lindsey's Low Pro Bitesss, we talk about a great Thanksgiving side, veggie casserole.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
49min
October 31, 2024 HCU Awareness Month Bonus Episode
In this bonus episode of HC&U, we talk with Kristen Skvorak, a preclinical consultant focused on rare diseases, about drug development, research, and potential treatment options for HCU.

We would like to give a special thanks to Syntis and Iditarod!

During Lindsey's Low Pro Snacks, we discuss Lesser Evil Paleo Puffs.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Syntis HCU oral enzyme

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
29min
October 24, 2024 Episode 32 with Valerie Mayorga, Vicente Jimenez, and Victor Jimenez
In the thirty second episode of HC&U, we interview Valerie Mayorga, Vicente Jimenez, and Victor Jimenez, 3 adult patients living with Classical HCU.

We discuss the challenges of growing up with HCU, family planning with HCU, and give some advice to younger patients.

During Lindsey's Low Pro Bitesss, we talk about crockpot vegetarian chili.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Crockpot Vegetarian Chili

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
44min
September 29, 2024 Newborn Screening Awareness Month Bonus Episode
In this bonus episode of HC&U, we share patient and caregiver submitted audio clips of successes with HCU.

We hope this episode uplifts and encourages you! Special thanks to Joanna, Clara, Jacob, and Melanie!

During Lindsey's Low Pro Snacks, Solely organic mango and guava gummies.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

EveryLife Foundation's Newborn Screening Action Center

CDC Newborn Screening Page

Baby's First Test

HCU Network America's Newborn Screening Page

Sign HCU Network America's Petition on Change.org

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
15min
September 29, 2024 Episode 31 with Dylan Simon and Dr. Neena Champaigne
In the thirty first episode of HC&U, we interview Dylan Simon, Senior Director of Policy at EveryLife Foundation and Dr. Neena Champaigne, Division Chief of Pediatric Genetics at the Medical University of South Carolina.

In honor of Newborn Screening Awareness Month, our coversation focuses on NBS policy and practice.

During Lindsey's Low Pro Bitesss, we talk about garlic and herb steakhouse mushrooms.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

EveryLife Foundation's Newborn Screening Action Center

CDC Newborn Screening Page

Baby's First Test

HCU Network America's Newborn Screening Page

Sign HCU Network America's Petition on Change.org

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
26min
August 29, 2024 Episode 30 with Dr. Stephanie Hitti
In the thirtieth episode of HC&U, we interview Dr. Stephanie Hitti, a neuropsychology postdoctoral fellow at Children's Hospital Colorado.

We discuss IEPs, 504s, IHPs, and accomodations that could be beneficial for children navigating school with HCU.

During Lindsey's Low Pro Bitesss, we talk about crockpot cauliflower rice stir fry.

Please share the podcast and give us a 5 star rating and review!

Help HCU Network America raise money for research by registering for the Race for Reseach here!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

Email the podcast!

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Cambrooke School Lunch Program

Sample Letters:Requesting and Initial Evaluation for Special Education Services

Email Dr. Hitti!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
32min
July 25, 2024 Episode 29 with Brandon Tornes
In the twenty ninth episode of HC&U, we interview Brandon Tornes, father to Mason, a patient diagnosed Cobalamin C.

We discuss Mason's journey with Cobalamin C and vision loss. We talk about coping with vision deficits in relation to school, extracurriculars, and everyday life.

During Lindsey's Low Pro Bitesss, we have a special guest and enjoy some southern gravy.

Please share the podcast and give us a 5 star rating and review!

Help HCU Network America raise money for research by registering for the Race for Reseach here!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

Email the podcast!

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
39min
June 27, 2024 Episode 28 with Gabbi Lewis
In the twenty eighth episode of HC&U, we interview Gabbi Lewis who is an HCU patient, advocate, and recent college graduate.

We discuss Gabbi's journey with HCU and scoliosis. We also talk about navigating college life with HCU.

During Lindsey's Low Pro Bitesss, we enjoy some vegetarian tostadas.

Please share the podcast and give us a 5 star rating and review!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

Email the podcast!

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
31min

FAQs about HC&U:

How many episodes does HC&U have?

The podcast currently has 38 episodes available.