HC&U

By Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show i... more

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1818 ratings

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FAQs about HC&U:

How many episodes does HC&U have?

The podcast currently has 67 episodes available.

HC&U episodes:

July 17, 2026 Clinical Trials Bonus Episode 3: Clinical Trials in Motion
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The third and final installment is called Clinical Trials in Motion.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Travere Therapeutics!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
1h 9min
July 11, 2026 Clinical Trials Bonus Episode 2: Harmony Global Clinical Trials Live Q and A
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The second installment is the Harmony Global Clinical Trials Live Q and A.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Travere Therapeutics!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
17min
July 03, 2026 Clinical Trials Bonus Episode 1: Clinical Trials 101
Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The first installment is called Clinical Trials 101.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Travere Therapeutics!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
1h
June 30, 2026 World Homocystinuria Awareness Day Panel
We hope you enjoy the 2026 World Homocystinuria Awareness Day panel hosted by Ben featuring Jacob, Amy, and Isaac! Thank you to our panel sponsor, Syntis Bio!

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Syntis Bio!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
1h 6min
June 25, 2026 Episode 52 with Brandon Tornes
In the fifty second episode of HC&U, we interview Brandon Tornes.

Brandon is the dad of Mason who has Cobalamin C. He shares an update on Mason's and his family's journey with Cobalamin C as well as some advice for people in a similar situation.

During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

Mason's Story

Brandon's First Interview on Spotify!

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
...more
26min
June 18, 2026 HC&U Bite Sized with Brittany Parke
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the third installment of HC&U Bite Sized, we talk to HCU Network America Research Coordinator and mom of cblG patient Grayson, Brittany Parke about her presentation for the Society of Inborn Metabolic Disorders.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
...more
11min
May 29, 2026 Episode 51 with Zamira Castaneda
In the fifty first episode of HC&U, we interview Zamira Castaneda.

Zamira is the mother of Luciano who has Cobalamin G. She shares her family's medical journey along with some struggles and triumphs of living with Cobalamin G.

During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

Luciano's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
...more
38min
May 24, 2026 HC&U Bite Sized with Nicolo Betoni
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the second installment of HC&U Bite Sized, we talk to Nicolo Betoni about his presentation at the American Academy of Neurology conference.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
...more
7min
May 07, 2026 HC&U Bite Sized with Kristen Skvorak
HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the first installment of HC&U Bite Sized, we talk to Kristen Skvorak about her presentation at ACMG.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
...more
5min
April 30, 2026 Episode 50 With Ruby Jean
In the fiftieth episode of HC&U, we interview Ruby.

Ruby is a patient with classical HCU living in Australia. She shares her journey with homocystinuria and goes into detail about her experience with clinical trials.

During Lindsey's Low Pro Bitesss, we discuss chili cheese tots.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

Ruby's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
...more
35min

FAQs about HC&U:

How many episodes does HC&U have?

The podcast currently has 67 episodes available.