HC&U

By Ben and Lindsey Massengale

HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show i... more

5

1818 ratings

Download on the App Store

Download on the App Store

Get it on Google Play

FAQs about HC&U:

How many episodes does HC&U have?

The podcast currently has 48 episodes available.

HC&U episodes:

August 28, 2025 Episode 42 with Brittany Parke
In the forty second episode of HC&U, we interview Brittany Parke.

Brittany is the mother of cblG patients, Drew and Grayson. Brittany and I discuss her family's journey to diagnosis and the challenges and successes of living with cblG.

During Lindsey's Low Pro Bitesss, we talk about taco stuffed sweet potatoes.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Grayson's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
47min
July 31, 2025 Episode 41 with Hannah Llewellyn-Jones
In the forty first episode of HC&U, we interview Hannah Llewellyn-Jones.

Hannah is the mother of Olive, a cblG patient living in the UK. Hannah and I discuss Olive's journey to diagnosis and the challenges and successes of living with cblG.

During Lindsey's Low Pro Bitesss, we talk about vegetarian hamburger helper.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Olive's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
48min
June 26, 2025 Episode 40 with Rene van Oorschot
In the fortieth episode of HC&U, we interview Rene van Oorschot.

Rene is the father of Nico, a classical HCU patient living in Scotland. Rene and I discuss Nico's journey to diagnosis and the challenges and successes of living with HCU.

During Lindsey's Low Pro Bitesss, we talk about jackfruit sloppy Joe sandwiches.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Nico's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
46min
June 19, 2025 Newborn Screening Bonus Episode
We hope you enjoy Ben's interview with Allison Herrity, senior policy analyst at NORD, about Newborn Screening in America and what the path forward for NBS looks like!

In Lindsey's Low Pro Snackssss, we talk about Simply Nature fruit strips.

P.S. Thanks to everyone who voted in our poll for HC&U's new podcast art!

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

NORD's Paper

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
40min
May 29, 2025 Episode 39 with Michael Stevenson
In the thirty ninth episode of HC&U, we interview Michael Stevenson.

Michael is a classical HCU patient living in Australia. Michael and I discuss his journey to diagnosis and his brother, Phillip's, instrumental role in the overall understanding of HCU.

During Lindsey's Low Pro Bitesss, we talk about jackfruit salad sandwiches.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Michael's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
42min
May 23, 2025 Bonus Episode 2025 WHAD Panel
We hope you enjoy the 2025 WHAD panel featuring Erica Arnaud, Brandon Tornes, and Brittany Hunter hosted by Ben. Thank you to our panel sponsor, Syntis Bio!

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Syntis Bio!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
1h 8min
April 24, 2025 Episode 38 with Andreana Lanpouthakoun
In the thirty eighth episode of HC&U, we interview Andreana Lanpouthakoun.

Andreana is a Cobalamin G patient. Andreana and I discuss her journey to diagnosis including some brain and nervous system difficulties experienced after her late onset Cobalamin G.

During Lindsey's Low Pro Bitesss, we talk about cabbage steaks.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
20min
March 27, 2025 Episode 37 with Jessie and Trace Fordham
In the thirty seventh episode of HC&U, we interview Jessie and Trace Fordham.

Trace is a Cobalamin C patient. Trace, his mom, and I discuss Trace's journey to diagnosis including some brain and nervous system difficulties.

During Lindsey's Low Pro Bitesss, we talk about jackfruit pot roast.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Vegan Shepherd's Pie

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
40min
February 28, 2025 Episode 36 with Dr. Curtis Coughlin
In the thirty sixth episode of HC&U, we interview Dr. Curtis Coughlin, genetic counselor, PhD researcher, and associate professor at the University of Colorado.

We discuss the importance of genetic testing and the role it plays in metabolic disorders.

During Lindsey's Low Pro Bitesss, we talk about Lindsey's cream cheese and tomato pasta.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Vegan Shepherd's Pie

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
35min
February 20, 2025 Bonus Episode with Joy Brown
In this bonus episode of HC&U, we interview Joy Brown whose daughter, Ari, is a classical HCU patient.

We discuss Ari's homocystinuria journey and the implications of a late diagnosis.

During Lindsey's Low Pro Snacksss, we talk about Trader Joe's Grainless Tortilla Chips.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Ari's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
...more
41min

FAQs about HC&U:

How many episodes does HC&U have?

The podcast currently has 48 episodes available.

More shows like HC&U

Pod Save America by Crooked Media

Pod Save America

86,903 Listeners