Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America. We hope you enjoy this new, limited series brought to you in conjunction with Science 37 and Travere Therapeutics. This will be a 3 part series focused on decentralized clinical studies (episode 1), the nurse/patient experience (episode 2), and specifics on Travere's Harmony and Compose studies (episode 3).

We are grateful to have been given the opportunity to work with Science 37 and Travere Therapeutics on getting this information out to the homocystinuria community.

In episode 1, we hear from Dr. Debra Weinstein, Science 37's CMO and Jeff Richardson, Science 37's VP of Recruiting and Operations. They give an overview of decentralized clinical trials and discuss why this approach to clinical research may be especially relevant to the homocystinuria community.

During Lindsey's Pro Snacksss, we talk about Lindsey's homemade applesauce.

HARMONY/COMPOSE Study Sign-Up

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In the fifty fourth episode of HC&U, we interview Brittany Hunter.

Brittany is mom to classical homocystinuria patient, Anniston. Brittany shares Anniston's story of her homocystinuria diagnosis through newborn screening and how their family has made the management of homocystinuria a normal part of their routine.

During Lindsey's Low Pro Bitesss, we discuss low protein pasta salad.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

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Find Our Low Protein Ideas on Instagram!

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Anniston's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the fourth installment of HC&U Bite Sized, we talk to the Senior Director of the RareX Research Program with Global Genes, Dr. Zohreh Talebizadeh about data sharing through RareX.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the fourth installment of HC&U Bite Sized, we talk to the Senior Director of the RareX Research Program with Global Genes, Dr. Zohreh Talebizadeh about data sharing through RareX.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

In the fifty third episode of HC&U, we interview Patrick Lynch.

Patrick is a classical homocystinuria patient. He shares his story of his homocystinuria diagnosis at the age of 9 and some of the struggles he faced as a teenager in regards to treatment adherence. Patrick also talks about how he manages his treatment of homocystinuria and being physically active.

During Lindsey's Low Pro Bitesss, we discuss fried cabbage.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

Patrick's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The third and final installment is called Clinical Trials in Motion.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Travere Therapeutics!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The second installment is the Harmony Global Clinical Trials Live Q and A.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Travere Therapeutics!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

Welcome to HC&U, the homocystinuria podcast sponsored by HCU Network America! We hope you enjoy this three part series, sponsored by Travere Therapeutics. The first installment is called Clinical Trials 101.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Travere Therapeutics!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

We hope you enjoy the 2026 World Homocystinuria Awareness Day panel hosted by Ben featuring Jacob, Amy, and Isaac! Thank you to our panel sponsor, Syntis Bio!

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

Check out Syntis Bio!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the fifty second episode of HC&U, we interview Brandon Tornes.

Brandon is the dad of Mason who has Cobalamin C. He shares an update on Mason's and his family's journey with Cobalamin C as well as some advice for people in a similar situation.

During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.

Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

Mason's Story

Brandon's First Interview on Spotify!

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr