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In this episode, I’m honored to be joined by the remarkable Nadine, who opens up about the heart-wrenching journey of losing her son, Archie, to a rare degenerative condition known as PCH CASK Mutation. Despite the grim prognosis and the challenges along the way, Archie defied expectations and lived longer than anyone—especially the doctors—thought possible. Throughout this difficult journey, Nadine, supported by her devoted family, never wavered in her hope or her fight for Archie. Her story is a testament to the extraordinary strength of a mother’s love and the profound impact of unwavering support and perseverance. As Nadine turns her grief into something beautiful, this episode beautifully illustrates the power of resilience and the boundless nature of a mother’s heart.
In this episode, I’m honored to be joined by the remarkable Nadine, who opens up about the heart-wrenching journey of losing her son, Archie, to a rare degenerative condition known as PCH CASK Mutation. Despite the grim prognosis and the challenges along the way, Archie defied expectations and lived longer than anyone—especially the doctors—thought possible. Throughout this difficult journey, Nadine, supported by her devoted family, never wavered in her hope or her fight for Archie. Her story is a testament to the extraordinary strength of a mother’s love and the profound impact of unwavering support and perseverance. As Nadine turns her grief into something beautiful, this episode beautifully illustrates the power of resilience and the boundless nature of a mother’s heart.