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In the forty eighth episode of HC&U, we interview Amy Flanagan.
Amy is the mom of Classical HCU patient, Carson. Carson was originally misdiagnosed with Marfan syndrome. Amy shares Carson's and his family's journey to diagnosis with classical homocystinuria including the challenges and struggles they have faced while navigating the transition of care between two rare diseases.
During Lindsey's Low Pro Bitesss, we talk about vegetarian curry.
Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!
Check out HCU Network America!
HC&U on Facebook
Find Our Low Protein Ideas on Instagram!
HC&U on Twitter
HCU Network America on Twitter
What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!
Share your NBS story with HCUNA!
Carson's Story
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
By Ben and Lindsey Massengale5
1818 ratings
In the forty eighth episode of HC&U, we interview Amy Flanagan.
Amy is the mom of Classical HCU patient, Carson. Carson was originally misdiagnosed with Marfan syndrome. Amy shares Carson's and his family's journey to diagnosis with classical homocystinuria including the challenges and struggles they have faced while navigating the transition of care between two rare diseases.
During Lindsey's Low Pro Bitesss, we talk about vegetarian curry.
Please share the podcast and give us a 5 star rating and review! Email us at [email protected]!
Check out HCU Network America!
HC&U on Facebook
Find Our Low Protein Ideas on Instagram!
HC&U on Twitter
HCU Network America on Twitter
What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!
Share your NBS story with HCUNA!
Carson's Story
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr