EthicsLab

Have you ever experienced an event, a situation or a decision where you felt that your professional integrity had been compromised? It may have occurred because of something you did, something someone else did or simply a number of events that lined up in a way that made you feel that you were between a […]

The pace of developments in genetic editing over the past two years seems fast and accelerating. What are those developments, the tough choice decisions and accompanying infrastructure that are needed to support researchers, clinicians, and ethics committee members? It may seem trite but is the key to success here better listening, inclusion of voices, and honoring the need for diversity in the human genome itself? Our guests today discussing these issues are three international experts: Damon Hostin, Fr. Kevin FitzGerald, and Michael Burgess.

Resources referenced in this episode:

Participedia - a Participatory Process Database

Public Deliberation Resources and Bibliography - University of Guelph

A deliberative community engagement - Biobanking at the University of California

Australian Published Article - Blueprint for a deliberative public on biobanking policy

The pace of developments in genetic editing over the past two years seems fast and accelerating. What are those developments, the tough choice decisions and accompanying infrastructure that are needed to support researchers, clinicians, and ethics committee members? It may seem trite but is the key to success here better listening, inclusion of voices, and honoring the need for diversity in the human genome itself? Our guests today discussing these issues are three international experts: Damon Hostin, Fr. Kevin FitzGerald, and Michael Burgess.

Resources referenced in this episode:

Participedia - a Participatory Process Database

Public Deliberation Resources and Bibliography - University of Guelph

A deliberative community engagement - Biobanking at the University of California

Australian Published Article - Blueprint for a deliberative public on biobanking policy

On EthicsLab we often look at specific clinical ethical issues, tough choice dilemmas that patient and clinicians are involved in. In this episode we take a step back and look at the bigger picture…an ethic of care. How should someone be treated? Why are we asking this question today? What are some of the stories that makes this apparent? What are some of the tools and practices that are leading the way to honor patients and their human dignity? Our guests in this episode are two national experts in palliative care that will speak to us about “Whole Person Care”. Dr. Ira Byock, Founder and Chief Medical Officer at the Institute for Human Caring at Providence St Joseph Health and Dr. Mimi Pattison, Medical Director of Palliative Care at CHI Franciscan.

Helpful Links: 

Dr. Pattison - House Model

The Institute for Human Caring

Dr. Ira Byock's Website

The 3rd International Congress on Whole Person Care

2018 International Congress on Palliative Care

On EthicsLab we often look at specific clinical ethical issues, tough choice dilemmas that patient and clinicians are involved in. In this episode we take a step back and look at the bigger picture…an ethic of care. How should someone be treated? Why are we asking this question today? What are some of the stories […]

Since the Human Genome Project was declared complete in April of 2003, there has been great anticipation of medical treatments tailored to the individual genetic makeup of patients. For you, for patients, for family members…where have most of the advances been made since that time and what ethical questions are arising as this work continues to evolve? Our guests today are two national experts that have been immersed in this work over the past decade: Damon Hostin, CEO of the Precision Medicine Alliance and Amy Lynn McGuire, Director of the Center for Medical Ethics and Health Policy, at Baylor College of Medicine.

Since the Human Genome Project was declared complete in April of 2003, there has been great anticipation of medical treatments tailored to the individual genetic makeup of patients. For you, for patients, for family members…where have most of the advances been made since that time and what ethical questions are arising as this work continues […]

Health care ethics committees help patients and clinicians with tough choice decisions. Within this work of clinical ethics consultation, what are practical tools being used to improve their competence and impact? In this episode, our guests present such practical tools that help health care ethics committee members become more competent, become more aware of gaps and trends, and have more impact on improving the care and health experience of patients.

Our guests in this episode include:

Becket Gremmels, PhD, System Director of Ethics, Mission Integration Department. CHRISTUS Health

Katherine Wasson, PhD, MPH, Associate Professor, Neiswanger Institute for Bioethics, Stritch School of Medicine, Loyola University Chicago

Mark Repenshek, PhD, Executive Director, Ethics & Mission, HSHS Eastern/Western Wisconsin Division, Door County Medical Center

Laura J. Bishop, Ph.D, Associate Teaching Professor and Academic Program Manager, Kennedy Institute of Ethics, Georgetown University

Additional Resources in this Episode: 

10 Week Free Online Introduction to Bioethics (presented by Laura Bishop)

Ethics Tracker Screenshots (presented by Becket Gremmels)

REDCap Software  (presented by Becket Gremmels)

The ACES Project: Online Clinical Ethics Consultation Skills Assessment (presented by Katherine Wasson)

HCEUSA Dashboard Article 2012 (presented by Mark Repenshek)

Dashboard 2011 Data (presented by Mark Repenshek)

One of the challenging areas in clinical practice today is wanting to honor patient wishes but not being clear on the competency or capacity level a patient with dementia or behavioral health issues. In this episode we explore different challenging situations that ask: a) What is the best assessment of capacity? b) What level of risk should be supported? c) How might health care professionals approach these situations at a deeper human level? Our guests, who are national experts in this area and will offer insight and practical consideration and approaches to the questions list above and others.

Our guests in this episode include:

Sherri Boggs, Quality, Patient Safety & Education Manager, Our Lady of Peace Hospital

Dr. Stephen Post, international speaker, best selling author and the Director for the Center for Medical Humanities, Compassionate Care, and Bioethics at Stony Brook University

Dr. Paul S. Appelbaum, New York State Psychiatric Institute and Columbia University Department of Psychiatry

Dr. Ali Abbas Asghar-Ali, Michael E. DeBakey VA Medical Center

Our guests are editors of key healthcare ethics journals with an international readership:

Fr. Charles Bouchard, Editor, Health Care Ethics USA - Catholic Health Association of the United States

Gregory  E. Kaebnick, Editor, The Hastings Center Report - The Hastings Center

Leslie LeBlanc, Managing Editor, Journal of Clinical Ethics

What are the issues in health care ethics that are impacting ethics committees, health systems, public policy and patients over the past year? What issues do they expect to continue and emerge within the next year? What are the trends they are seeing from their seat and from talking with authors and readers? What articles have been most downloaded or cited recently. What would be their recommended reading for our listeners? These questions and others, our guest discuss in this episode of the EthicsLab.