Joined by Claudia Louati, EPF's Head of Policy, we're unraveling the layers of the pharmaceutical legislation revision – a topic that not only shaped 2023 but continues to remain a high priority in the healthcare agenda of the new year.

Our guest in this episode of The EU Patients' Podcast is Vivian Leung, Antimicrobial Consumption Expert for the European Centre for Disease Prevention and Control (ECDC).

Vivian Leung works on the European Surveillance of Antimicrobial Consumption Network (ESAC-Net) and coordinates the surveillance of antibiotic consumption across EU/EEA countries. We met Vivian in the podcast last year as well to discuss the important topic of antimicrobial resistance.

In this episode, we delve once again into the topic of AMR as a global health priority, this time in light of 2023’s European Antibiotic Awareness Day.

Welcome to the very last episode of PERISCOPE Talks, with a special guest: in this episode we welcome co-coordinator and strategy director of the PERISCOPE project Andrea Renda.

October 2023 marks the end of the project. A final conference took place on 8 September 2023. In this episode, we look back on what sparked the idea for PERISCOPE, some of the primary goals and focal points, and ways to ensure pandemic preparedness for the years to come.

Listen to more episodes of PERISCOPE Talks and other episodes here.

Welcome to a new episode of PERISCOPE Talks. If you’re tuning in for the first time, the PERISCOPE project was launched in 2020 and investigates the broad socio-economic and behavioural impacts of the COVID-19 pandemic, to make Europe more resilient and prepared for future large-scale health risks.

In the context of PERISCOPE, the European Patients' Forum, in collaboration with project partners FEAM, CEPS, and INSERM, conducted a survey to assess the impacts of the COVID-19 pandemic on the welfare of patients with chronic diseases. The COVID-19 pandemic has posed significant challenges to patients, especially as healthcare services faced major disruptions and backlogs and the hospital environment became less safe.

A special thanks goes out to the co-authors of the survey report: Simon Ducarroz (INSERM), Juan José Fernández Romero, Emma Martinez (FEAM), and Timothy Yeung (CEPS).

To discuss the results of the survey, we have a chat with Anca Toma, Executive Director of EPF. 

Joining The EU Patients' Podcast today in PERISCOPE Talks special are Michele Calabrò and Marco Di Donato, respectively Director and Policy and Project Officer at EUREGHA, otherwise known as European Regional and Local Health Authorities. EUREGHA is a partner in the PERISCOPE consortium. EUREGHA is a network of  21 regional and local health authorities covering more than 10 different European countries. The organisation aims to promote collaboration amongst regions and local authorities, more specifically regional and local health authorities in Europe, within the framework of policies related to public health and healthcare. EUREGHA also establishes focused collaboration with the Institutions of the European Union and with the international and public organisations related to public health and healthcare throughout the world.

In this episode, we look back on the project's final conference that took place on 8 September 2023 in Brussels, explore the role EUREGHA played in developing the MOOCs (Massive Open Online Courses), and look at Euregional collaboration in pandemic preparedness in Europe.

Welcome to our special World Patient Safety Day podcast episode.

In this episode, we welcome OECD's Niek Klazinga on the podcast. Niek Klazinga is a medical doctor by training and professor of social medicine at the Academic Medical Centre at the University of Amsterdam since 1999. Niek has been coordinating the Health Care Quality Indicator work of the OECD in Paris since 2007. Over the past 25 years, he has been involved in numerous projects and publications on quality of healthcare. Since his retirement in September 2022, he works as strategic advisor to the OECD’s HCQO programme, i.e., the Health Care Quality and Outcomes programme.

In this special episode of The EU Patients’ Podcast, we will talk about World Patient Safety Day, best practices to ensure patient safety is at the centre of healthcare systems, the OECD’s initiatives on identifying and promoting strategies to support cross-national sharing and learning of patient safety, and the new report on patient engagement in patient safety.

This episode will bring into the spotlight one of our longstanding projects: EATRIS-Plus.  EATRIS-Plus aims to build further capabilities and deliver innovative scientific tools to support the long-term sustainability strategy of EATRIS as one of Europe’s key research infrastructures for Personalised Medicine.

As the project will come to an end in December 2023, we invited Oriana de Sousa to sit with us and reflect how meaningful patient engagement took shape throughout all the activities of the project. 

Oriana is a Patient Advisory Committee representative for the EATRIS+ Project. A survivor of rare cancer, she's now a Patient Advocate and EUPATI-certified Patient Expert. Oriana recently completed training in Scientific Innovation and Translational Research with EURORDIS. Her advocacy focuses on childhood, AYAs, and Small Cells Ovarian Cancer. She's part of the Rare Tumors of the Ovary network and Genomics in Oncology Patient Expert Network, and an Ambassador for the EU-CAYAS-NET Project. Oriana collaborates with diverse stakeholders, amplifying patient voices and championing a patient-centered approach.

In this episode, we talk to EPF member AOECS' board director Katre Trofimov on marking Coeliac Disease Awareness Day, the issues that arise from underdiagnosis, inflation, and high food prices, reaching out to the research community, and the leverage of the ecosystem coming together. Join us for this interesting chat and subscribe to The EU Patients' Podcast for more on the latest in the world of patient advocacy.

Today’s episode of the PERISCOPE Talks will discuss the contribution brought by Goethe University Frankfurt, with a particular focus on the online courses developed throughout the project.

Today’s episode will discuss the work done in work package two by Karolinska Institutet, with a focus on the effects of the COVID-19 pandemic on mental health in several European countries.

Our guest today is Anna-Clara Hollander. She is an associate professor at the Karolinska Institutet and clinical psychologist studying how social risk factors affects psychiatric morbidity and mortality and utilization of psychiatric care. In the Periscope project, the Karolinska Institutet studies mental health and health inequalities in the context of the COVID-19 pandemic.